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Deleted member 28403
I don't know what to say.
It's 4 AM, I'm crying, and can't calm down. I am scared, so f*cking scared. I don't want to lose her. I don't want her to die. Why am I so afraid... ARGH
I don't know what to think anymore. I don't know anything anymore... I just want to be there and make sure she is okay now. But it's 4 AM. I don't know what to do.
She said it herself, she could die easily if she had another seizure like that. The chance of survival is 50%. She had a 20 minute seizure, and she could still have them, the medications don't help, someone needs to be awake to prevent the seizures. She said it herself... She doesn't think she will live up to 25 or 30. I don't know what to do.
No other triggers to epilepsy, no photosensitivity, no signs of epilepsy when awake. Just central apneas of unknown source, not found after many many search. Not a heart problem, no area of brain found to be more activated or similar during the seizures. No source found. How to prevent that. Only f*cking thing that works to stop the sizure is to say "pssst" as soon as a central apnea is starting, otherwise, a few seconds more, and it could turn into a seizure.
She had a clinical death, and she survived, but the chance of surviving twice is lower, and every other time, it gets exponentially smaller. If another seizure like that happens, she could easily die. I don't want her to die.
Why can't I stop crying already. Whats up with me... ARGH
She thinks the 3 year old parrot she has is going to outlive her.
I don't know what to do.
It's 4 AM, I'm crying, and can't calm down. I am scared, so f*cking scared. I don't want to lose her. I don't want her to die. Why am I so afraid... ARGH
I don't know what to think anymore. I don't know anything anymore... I just want to be there and make sure she is okay now. But it's 4 AM. I don't know what to do.
She said it herself, she could die easily if she had another seizure like that. The chance of survival is 50%. She had a 20 minute seizure, and she could still have them, the medications don't help, someone needs to be awake to prevent the seizures. She said it herself... She doesn't think she will live up to 25 or 30. I don't know what to do.
No other triggers to epilepsy, no photosensitivity, no signs of epilepsy when awake. Just central apneas of unknown source, not found after many many search. Not a heart problem, no area of brain found to be more activated or similar during the seizures. No source found. How to prevent that. Only f*cking thing that works to stop the sizure is to say "pssst" as soon as a central apnea is starting, otherwise, a few seconds more, and it could turn into a seizure.
She had a clinical death, and she survived, but the chance of surviving twice is lower, and every other time, it gets exponentially smaller. If another seizure like that happens, she could easily die. I don't want her to die.
Why can't I stop crying already. Whats up with me... ARGH
She thinks the 3 year old parrot she has is going to outlive her.
I don't know what to do.
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