Welcome Jokuzzi, my child has effected my life in so many ways. I always maintain it would be easier if the trauma events had of directly happened to me, as opposed to, sitting by watching helplessly.
So much great advice and support on the forum here,
Take care
They are playing up the road in Brisbane tonight!!! Still tickets left but unfortunately i have no coin. Would love to see them, it would bring back a lot of '90s memories, for sure.
Cheers,Sounds as though you have been quite an ordeal yourself, just medically. Hope you can have some halcyon days ahead. We have another biopsy on Thursday, second last one until they start spacing out a little, we hope.
Hi Citygirl, i'm the dad of a nearly 6 year old who was born with HLHS and has had five major open heart ops and about another ten procedures that include angiograms, biopsies, catheters and coiling.
Last year he had a transplant that was complicated by a few factors. The end result was a new...
Hey Teddy, I was up in sunny Brisvegas today, relaxing by the pool. Um, wait on, that was a dream i was having while I was sitting at the Mater Childrens Hospital all day. I was more than happy to get in my car after all of the appointments and head back down the M1 to get home.
I like the hard line on grammer, i have been pulled up on two occasions regarding my posts so far and I appreciate any lessons, as one day i would like get something written down and the forum seems a good place to also iron out the bugs in this regard.
I have been involved with HLHS support...
For every action there's a reaction and in this sense I have to agree with deserving it for what we are doing. We continue daily, everytime the car starts, everytime we use plastics, even everytime we use a cell phone, mainly because we are limited of choice thats needed to sustain our...
Yeah Deer, under doctors supervision, there's no repeats with the prescription when i was put on the 1/2 dose of the meds. This way it ensures that my doctor sees me every month or so. I am a little curious how i will feel drug free, although this will probably be in a few months.
I looked in the mirror and saw an older person with darker bags under my eyes and wrinkles etching themselves into the pores on my face.
It has been a while since i really looked into the mirror, i'm not sure if i'm ready to look past my eyes just yet as i think i'm still trying to avoid what...
Hi everyone, please ignore my last post above, i wrote it last week during a stage of withdrawal from my meds and i just needed to vent. A couple of months ago, i managed to kick valium and now my sights are set on relieving myself of venlafaxine. Not so easy.
Even though the source of my stress...
Thanks Iam and Shelley, the Natural Bridge is a beautiful spot that my children affectionately refer to as " the hundred acre woods". Our beaches, on the other hand, are probably our best natural asset.
This place is called the Natural Bridge, the cave comes complete with a waterfall and a night show complete with tiny bats and glowworms that light the cave ceiling like another universe.
Thanks deer for the big hug. Yesterday I thought I'd check out an anxiety forum that had a chat room, after reading for a while and talking to a few people I realised that there is a big difference between anxiety and the next level that is PTSD.
What I mean is reading how some people were...
Prayers are always welcome Deer, i did an incredible amount of it in recent times, when things are totally out of control and you know no matter how informed, enlightened you may be, when it comes to a child needing a new heart as a parent, the helpless/powerless feeling is always in the...
Thanks Suzie and FemVet, our little man has so much to look at already, if you would like to see his blog that i wrote since before he was born its http://www.hearts-of-hope.com/kellin , i wrote it basically so i didnt have to repeat myself 20 times a day to relatives, friends etc, as we went...
Thanks guys. Anthony, no doubt we had a tough road and i feel like my nerves are fried but i am lucky i don't have to look far for inspiration, That is getting back to the mind convincing the body everything is ok, just hasn't happened yet. I would love, what feels like, the second pit in my...
Hi everyone, my name is Nev and i'm new to the group. I am a parent of a little boy who was born with a heart condition called hlhs. Effectively he was born with 1/2 a heart. Three palative operations were needed for him at 3 days, 3 months and 4 years of age. The final operation didn't fair so...