I was going to wait a few months to post this but after talking with my psychiatrist yesterday, she convinced me that posting now might help someone.
My life has been a living hell. I have felt like I'm barely hanging on by my finger nails most of the time. I manage to keep a job but that's about it. I am so freaking symptomatic. I was misdiagnosed with bipolar years ago and the meds nearly killed me. Finally I was diagnosed correctly with cptsd and therapy has helped immensely but I never have felt like I was going to make it.
Then two months ago my psychiatrist requested I be tested for MTHFR gene mutation. My primary rolled her eyes when I made the request but she ran the bloodwork. Came back positive for the c677t mutation - the one that causes havoc in the body and mind.
Pdoc put me on some specialized supplements. I won't mention them here because different mutations require different supplements and what I'm taking now will make someone with another mutation very sick. But basically some fancy stuff mixed with b vitamins. Been on them eleven days now. Here's a small list of things NOT happening anymore:
You can do a 23andme dot com genetic test and get all kinds of interesting information including the MTHFR mutation. I paid nearly $400 for a single test at my doctor's office which insurance didn't cover. 23andme is only $99.
Pdoc so wants people to know about this. She thinks most people with trauma and diagnosed with bipolar, borderline, and adhd are probably positive for the mutation and the treatment is so simple.
If you have any questions, please ask. Most likely I'll google the answers. There are great resources on FB and forums for the specific mutations. It's hope. And it's real.
My life has been a living hell. I have felt like I'm barely hanging on by my finger nails most of the time. I manage to keep a job but that's about it. I am so freaking symptomatic. I was misdiagnosed with bipolar years ago and the meds nearly killed me. Finally I was diagnosed correctly with cptsd and therapy has helped immensely but I never have felt like I was going to make it.
Then two months ago my psychiatrist requested I be tested for MTHFR gene mutation. My primary rolled her eyes when I made the request but she ran the bloodwork. Came back positive for the c677t mutation - the one that causes havoc in the body and mind.
Pdoc put me on some specialized supplements. I won't mention them here because different mutations require different supplements and what I'm taking now will make someone with another mutation very sick. But basically some fancy stuff mixed with b vitamins. Been on them eleven days now. Here's a small list of things NOT happening anymore:
- No more muscle spasms & my hands don't shake anymore
- Balance is perfect (I fall a lot)
- Extremely mild panic attacks - coming from debilitating collapse attacks nearly every morning and not being able to be in public crowds
- The veins in my legs no longer bulge out and hurt
- I wake up NOT confused about where I am.
- More mental focus and clear thinking
- ENERGY - I was sleeping 15-18 hours a day. Now 7 gets me through just fine.
- I can breath easily for the first time in my remembering
- No pain in the morning. I didn't realize how much pain I was in until it disappeared.
- DEPRESSION IS GONE! NOT HERE! FOR ELEVEN DAYS!
- Skin is looking good,.
- Being in crowds and meeting new people aren't scary anymore. I actually have been on a date for the first time in two years.
- I'm able to cook again. I haven't been able to. I'd go into a major panic attack.
You can do a 23andme dot com genetic test and get all kinds of interesting information including the MTHFR mutation. I paid nearly $400 for a single test at my doctor's office which insurance didn't cover. 23andme is only $99.
Pdoc so wants people to know about this. She thinks most people with trauma and diagnosed with bipolar, borderline, and adhd are probably positive for the mutation and the treatment is so simple.
If you have any questions, please ask. Most likely I'll google the answers. There are great resources on FB and forums for the specific mutations. It's hope. And it's real.