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New Team Approach

Discussion in 'General' started by sibemom, Nov 9, 2006.

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  1. sibemom

    sibemom Active Member

    This week has been almost to much to take. I have had a doctor appointment every single day along with PT and psychotherapy and I am so exhausted. Yesterday we started to work on a PAIN COCKTAIL of sorts to not only manage the RSD, but also to stop the mini seizures from the TBI that I get, and HOPEFULLY to also aid in the PTSD, GEE do I have alot of abbreviations attached to me LOL. Can't help it if I don't laugh about it I will loose what is left of my brain. He put me back on zoloft, I really wanted to be med free and I am kinda dissapointed for now that I can't be. The other drug he added in was Lyrica to stop the nerve pain, and the seizures. Both are in very small doses because I do respond to the smallest dose of just about everything, that is if I can tolerate it. He is a wonderful doctor and has stood by me from the beggining. He is so angered by my EX neurologist because if she would have treated the RSD from the moment she diagnosed it and not sent me home for 6 months between appointments it probably would not have spread to FULL BODY, like it is now. He will add some Lidoderm patches at a later date and once he gets all my test results like Blood tests, EEG, EKG, etc... we will add and subtract meds as needed. The goal is to get this under good managed pain controll so that eventually YES we may be able to take something away and add something natural. Seizures are not something to fool around with and I am not sure if anything natural prevents them. So this is where I have been. I do have a better outlook on things at least for now and I am hoping that the pain is reduced by not only the meds but MORE AGGRESIVE PT. Hope the rest of you are doing well.
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  3. Boo-Damphir

    Boo-Damphir Active Member

    Hang in there! It sounds like you are being appropriately cautious right now. Until you are more medically stable, any minor adjustments to your routine can really take their toll on you.
  4. permban0077

    permban0077 Policy Enforcement Banned

    I look forward to hear when you get the pain under control, it really sounds awful.
  5. anthony

    anthony Silently Watching Founder

    Sibemom, it sounds as though you are finally getting some great care, which is excellent. Isn't it just disappointing that these doctors don't give a shit enough with us, the patients, that things like this occur from nothing more than pure ignorance on their part. If she treated you earlier for it, it wouldn't be the way it is now. Absolutely typical of laziness IMHO. I am really glad you have a good doctor now. Specialists are the only way to go IMO, because you have someone who specifically knows a shitload about one topic, not a little about a broad range, which makes medicine dangerous at that level IMHO.

    The RSI.... not sure if you watch the news or not, but medical science has just finished proving a whole lot of good things about Olive Leaf Extract, which is now being used to cure people of ageing illnesses, colds, flu's, and they are currently researching its affect on cancer at present, in that preliminary results are showing the daily usage of it may actually completely prevent cancer cells from forming all together. Long way to go, but maybe Olive Leaf Extract is something you could look into to for yourself, and see if it works. I believe a daily dose, if not more is needed, and it does taste disguisting, I know, because we have it for colds and flu symptoms, which is works like nothing I have even been exposed too before. Just food for thought anyway....
  6. sibemom

    sibemom Active Member

    YEAH WELL SO MUCH FOR THIS TREATMENT. I have been on a TRIP TO THE CIRCUS for the last 3 days and I DO NOT LIKE IT ONE BIT:crazy: :crazy: :eek: This new wonder drug Lyrica can be shoved right up someones:moon: I could'nt see, I could'nt walk, I felt like I was on some sort of awful nightmare that would not go away. I tried it I was being compliant but NO THIS IS IT! Well I suppose this was just the start I have no idea where we go from here. Zoloft is fine I have taken it before no bad effects and after awhile it does seem to take the edge off the anxiety. I was better off when I was on Valium, because that relaxed me enough to at least get rest and no it did nothing for pain but it put you in a state of mind like you did'nt care about the pain. I am so frustrated I want this ALL TO GO AWAY, and even though I know I have to be patient I can't be all drugged up. I called my doc on his cell and he said STOP THE LYRICA and I did but I do not think I have come back from the CIRCUS JUST YET. Back to the drawing board I guess. I am sure I will rant much more before this is settled.:crazy-eye
  7. YoungAndAngry

    YoungAndAngry Well-Known Member

    Don't be discouraged sibemom,
    Getting the "medication cocktail" right takes trial and error.
    As horrible/painful as it can be at times...
    ...it's worth it when you find the right one.

    I was also put on Lyrica for nerve pain,
    I remember my eyes feeling like they were going to pop out of my head (lots of pressure)
    and it wasn't really helping my pain, so I switched back to Neurontin.
    Which I've been on for awhile now, but it's just not cutting it for the pain anymore.

    Tomarrow I am seeing the med doctor, just to go over my meds again, and make adjustments for the extreme increase in pain I'm feeling.

    If I end up changing meds for the nerve pain,
    I'll keep you updated,

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