Soooo they say C-PTSD is curable..is that a lie?

Charmd1

New Here
So they say C-PTSD is curable.. is that a lie??
I've jumped through all of the hoops, therapy, medications, counselling, safety plans you name it. I've been treated for 14 years as needed

I am not going to lie sometimes for chunks of time it gets better. Or I had thought it was better.. I felt good and energized and the long lost feeling of hope blanketed my entire life.
until I realized that I was making extremely irrational decisions in an attempt to live a little before the next crash that I could always feel looming on the horizon.
After all when my downs are severe and last years upon years with little to no reprieve a two year up should be celebrated right.... so instead of repressing and isolating my behaviors flipped to the other side of the coin which was just as unhealthy as the depressive side.

So again I'm in a down... Its been nine months since I had a severe trigger... all of the triggers I had thought I had mastered and the behaviors that came along with them are as prevalent as if I had never participated in treatment to begin with.. the medication that was new for me worked great but I acclimatized to it very quickly. So I have had to increase the dosage multiple times.. and now i need to discontinue that med as it is now a lot more than i can afford as my coverage changed.

So now i am faced with the question... how do i keep going.. its getting harder every day to show up.
Has anyone else experienced this?
 

OliveJewel

MyPTSD Pro
I agree with SRG. I think that with the right support survivors just get more skilled at managing the symptoms and filling their life with more meaningful activities. So it’s not cured but the person generally feels better.
 

Charmd1

New Here
I don't think it's curable, but it is manageable. And the more you learn how to effectively manage it, the easier it gets ... Until something happens and suddenly it's not so easy anymore.

What's your support situation look like?
I guess it just feels like I made it out. I went from unemployable to working a skilled position. I went from over medicated to not needing to medicate at all except for rare bouts of anxiety. I went from borderline agoraphobic to parent council. Then I got pushed back to the bottom of the pit again. Dredging up energy to claw my way back out again feels overwhelming.

My support network is non existent at the moment. The people I thought were friends have done the slow fade. The only family I have other than my kids are the type of people that make c-ptsd a thing. My kids are both in therapy so I can’t afford to take anymore time off work to accommodate appointments for me.

Just a rock and a hard place kinda thing
 

Friday

Moderator
So they say C-PTSD is curable
Who’s “they”?

Because if a cure for PTSD &/or CPTSD was discovered? That would be front page news.

Don’t get me wrong, I THOUGHT I was cured for over a decade, that I “had” (past tense) a perky little case of PTSD once upon a time, but no more.

Then a perfect storm of stress, stressors, loss of coping mechanisms, & new traumas drop kicked me right back to square 1.

Turns out… nope! I wasn’t cured. I was exquisitely well managed, with my entire (badass, amazing) life built around doing exactly that.

So I might have been one of the “they” (Sure! I used to have PTSD. Don’t anymore) back durin those years… because I knew Jack Squat about PTSD. Yes, I was diagnosed. No, I never did any kind of treatment for it, nor educated myself about it. Until Round2! And one of the very first things I learned?

PTSD is an incurable, but extremely treatable, cyclic/relapsing-remitting/ reactive disorder.

Oh. Well that makes sense! A lot like diabetes, or asthma. Copy.

is that a lie??
If “they” know that PTSD & CPTSD is incurable, and they say it’s curable? Yep. That’s a lie.

If “they” don’t know it’s incurable? Then, no. It’s not a lie. They’re simply wrong.
 

arfie

MyPTSD Pro
i am another who wants to know who "they" are.

neither my professional theys nor therapy peer supporters have ever told me such a thing, though i have heard it from many theys in denial. denial is not quite the same thing as a deliberate lie. the meanest lies in the world are the ones we tell ourselves.

to the best of my knowledge, there is no known cure for ptsd, but the symptoms are eminently manageable.
 

Charmd1

New Here
i am another who wants to know who "they" are.

neither my professional theys nor therapy peer supporters have ever told me such a thing, though i have heard it from many theys in denial. denial is not quite the same thing as a deliberate lie. the meanest lies in the world are the ones we tell ourselves.

to the best of my knowledge, there is no known cure for ptsd, but the symptoms are eminently manageable.
Lol the they would be the professionals that said disability isn’t needed. The doctors and the psychiatrists that hate to sign off saying this person is going to need lifetime support. Every job I’ve had I had to take long periods of stress leave. While I had a resurgence of symptoms. I went back to school and though I was honour roll I had to drop classes due to mental health issues. I’ve had to get extremely creative so when i crash i don’t lose everything. I’ve been on this roller coaster of give a little more before you break a long time.

Who’s “they”?

Because if a cure for PTSD &/or CPTSD was discovered? That would be front page news.

Don’t get me wrong, I THOUGHT I was cured for over a decade, that I “had” (past tense) a perky little case of PTSD once upon a time, but no more.

Then a perfect storm of stress, stressors, loss of coping mechanisms, & new traumas drop kicked me right back to square 1.

Turns out… nope! I wasn’t cured. I was exquisitely well managed, with my entire (badass, amazing) life built around doing exactly that.

So I might have been one of the “they” (Sure! I used to have PTSD. Don’t anymore) back durin those years… because I knew Jack Squat about PTSD. Yes, I was diagnosed. No, I never did any kind of treatment for it, nor educated myself about it. Until Round2! And one of the very first things I learned?

PTSD is an incurable, but extremely treatable, cyclic/relapsing-remitting/ reactive disorder.

Oh. Well that makes sense! A lot like diabetes, or asthma. Copy.


If “they” know that PTSD & CPTSD is incurable, and they say it’s curable? Yep. That’s a lie.

If “they” don’t know it’s incurable? Then, no. It’s not a lie. They’re simply wrong.
I really like the way you phrase this!!! And yes it seems as long as I manage my environment there’s no tailspins. But no one else seems to have gotten that memo 😂
 

shimmerz

MyPTSD Pro
I think that's the whole thing. Stress aggravates PTSD. So when people say you can learn how to manage it I think it is more about building a life being uber mindful of stressors, the people in your life, your routines, your physical health. All of these things need to be managed with your best mental health in mind. Still things can happen in life that we can't control but I find keeping my 'anxiety baseline' super chill helps massively with my quality of life.
 

Mr Canis

Learning
Hi-
I have C-PTSD - as a result of 14yrs police service / accident investigation / forensic branch etc etc etc.... I dont know about "curable" the phase I have adopted is now the volume is lower, its still there and it visits from time to time messes with my mood , thoughts sometimes at night before I go to sleep but after years of support, meds , meditation the volume is lower.
This I believe is the goal, it is still there but to live life whilst acknowledging what happened not having the volume of it so intrusive, understanding what is happening so you recognise dysfunctional thoughts earlier. Its just taken me a long time so far .......its over 20years I left the job... its does and can get better though
 

Freida

MyPTSD Pro
I think it gets easier to deal with as you build coping skills - but it's always going to be there.
It took me two years to get social security to agree that ptsd was disabling - but then they always deny people the first time around sooooooo
 
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