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    Undiagnosed 12 Years Of This...

    Thanks for your replies. I really appreciate your having taken the time! I have made some changes over the years to help me manage my son's disease; I was a stay-at-home mother for 7 years but didn't want to be, so you can imagine how that went. My marirage started to tank (my ex's method of...
  2. A

    Undiagnosed 12 Years Of This...

    Hi. My son, 14, has a serious neuromuscular disease that may end his life early, or not, or...we just never know. I've resuscitated him myself twice. My ex-husband has done it once. My son has conked out due to an insufficient airway managed by an untrained school employee most recently, and...
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