Dreading My Son's Wedding

[Deleted member 28740]

How about a private re-ceremony with you where you live? You will be there in heart and spirit in Curacao. Your love travels. Keep you at your best physically to be around for the blossoms that come forth.

 

[Friday]

How do you do with your own o2 supply?

Would sailing be better/worse?

 

[StarChild]

Dear @KwanYingirl, another idea; What about to "participate" via Skype, or something similar and a big screen?

 

[KwanYingirl]

Friday, oxygen doesn't help me detox. I was supposed to participate in a clinical trial of glutathione, an antioxidant. It was all planned to take place in the mountains east of LA but a month before the start, the town burned in a wildfire. Then Dr. Kilburn retired and no one picked up where he left off. If I can maintain proper pH and reduce toxic load, I have a chance to make it.
I'll have to have a heart to heart with my son.
He would be heartbroken if I weren't there. The problem of having PTSD is that I will dwell on it all the way to December. Got to find a way to settle and live one day at a time.

 

[Sammyiam]

I have the same problem, my sisters son is getting married in two weeks and I really don't want to go. It's either a 3 or 4 hour flight or a day's drive each way. I hate flying and don't want to drive that far. Also I really know about the chemical thing being so very hard to live with I suffer really bad paranoia to do with smells and fumes and it just takes such a huge toll on my life. No one would have any idea how hard it is to live with unless they go through it or someone close to them goes through it. I really hope you find a way to get there.
Take care
Sammy

 

[Chava]

These major events are hard. I was a candidate for a big-deal thing years ago and was horrified but felt like I couldn't say no or tell anyone how horrified I was (I was supposed to just be happy and excited, right? :nailbiting::wtf::speechless:). I don't have any advice on the trip or anything, but are you able to create some sort of phrase for yourself like, "I want to go, but I do not have to go..." and imagine setting it on a little shelf in your mind for later? You can see the doctor, which will give you more information to help you not feel so torn...like hopefully the info will help you feel more sure of going or more sure of not going. But I hear that you are perfectly caught right now and I know that's a yucky feeling.

 

[KwanYingirl]

I told my sons fiancé that I need as much time as possible to arrange my travel. She still hasn't committed to an island. Now she's considering St. Martin which would be great it's a much shorter flight.

This mass murder of all those innocent people on the plane in France has got me stressed out.

My immediate concern is to stop dwelling on it. Worry doesn't change reality but is sure is a buzzkill.

 

[Born to Run]

I am wondering why your son could not take into account his mother's ptsd and mcs and marry someplace that would be much easier for you travel to?

 

[KwanYingirl]

My children feel that I have overcome my demons. After having lost my career they watched as I rebuilt my life. There were very dark days. Very dark. At the time my daughter thought what I had was post dramatic stress disorder. She even wrote about it in a school report!!!
I did reach out to my son and his fiancé. They assured me that they would find an island that will be easy to get to and have safe rooms.
Their wedding is about them, I think, and I wouldn't want them to discard their hopes and dreams.
In the meantime, I have been researching face masks that have filters to protect against fumes and germs. I have found one that has excellent reviews. Especially for travel by plane. Reviews written by people with the same Multiple Chemical Sensitivity that I have.
That's reassuring.

 

[Born to Run]

I respect your point that their wedding is about them. I can not help, but feel sorry for you as if your children do not take your condition serious enough. You write you have a special relationship with your son, and yet you have to find gear to equip yourself for a travel to Mars. I have no children, but from any true relationship I would expect the others to take me and my condition seriously.

 

[KwanYingirl]

They do take it seriously. They've not worn fragranced products or scented laundry soaps and dryer sheets for 16 years. In high school they took showers and washed their clothes when they got home from school to get perfumes from other people off of them. No one is as considerate to me than my children. I ended up in an emergency room due to a pesticide exposure at my sisters house. The same sister that has plug in air fresheners in every room and burns scented candles when I go to her house. She's also a chain smoker. Believe me, my children have my back and who would think that paradise is poison?? Chemicals are insidious and ubiquitous.

 

[Born to Run]

Oh, I am really glad that is the case :) and I was wrong.