Fibro Chronic fatigue syndrome and fibromyalgia

[Blondie362]

I have been a sufferer of CFS and FMS for 20 years, what I do know for sure is that an FMS flare can be triggered by major stress, so dealing with PTSD & depression can almost certainly ignite CFS and Fibro
I lived in the USA and have they definitely have better research into Fibro than the UK.

 

[Traumagirl]

I think I could handle the emotional turmoil of PTSD if I didn't have the physical problems of CFS/Fibro to deal with. It's tough to have a positive attitude when you can barely drag your butt out of bed. I guess that's one of the things that makes us courageous. We have so much to deal with, and yet, we get out of bed and face the day anyway.

 

[mamachick]

I was diagnosed with both over 20 years ago and was positive for EB Virus at onset. What did help me was when my kids went off to school and I could go back to bed after a light exercise class, a really healthy diet, and a ton of water. I also cut out sugars as some say there is a connection with years. Wish a knew of a miracle, but I did recover about 90 % until I had an accident and have been spiraling down with spurts of relief occassionally.

No reason to suffer in silence. This evening-friends have made plans, and my mood is ok and would like to go, but may pain and fatigue is relentless. At 6 pm, Ive already hollowed into a down comforter for relief.

 

[Lionheart]

I have recently been reading an article on the possibility of a medical treatment for CFS/ME that is proposed in the US and will hopefully be approved by the FDA by years end. I am not aware of medical treatments in other countries so please forgive me if this is old news, but the drug 'ampligen', if found to be efficacious, will lend physical endurance to people with CFS/ME (and also AIDS patients).

As there is no solid medical treatment, (beyond cognitive therapy, pacing and graded-exercise), at this time, (that I'm aware of), I have some hope for relief in the future from the fatigue and weakness that is generally encountered with this illness....Still I do not want to give anyone false hope as ampligen is only a possible treatment and is not a cure.....and even if the drug is approved, it would require twice weekly innoculations, for up to a year or more.

I have struggled with this disease for 14 years and with PTSD and Depression for much longer than that.... so my heart goes out to anyone and everyone who is dealing with these disorders!!! I am hoping and praying that we will all soon have some deeply deserved relief.

 

[mamachick]

Awesome to hear. Thanks Lionheart for sharing. I was not aware.

 

[Dorri]

Hiya

I also have ME/CFS but it predates the PTSD by over a decade. For me the 2 do have an effect on each other, although I think the PTSD has a much more marked effect on that ME that the other way around. Its good to hear that other people are in the same situation (although obviously I would rather we were all well!)
At the moment I've his a hiccup with the PTSD, which has been well controlled for the last few years - my bodies on alert again so sleeping is not easy, niether is relaxing and so the ME is more active. I've been taking a herb called Astragalus (aka - Huang Qi) and it helps me has anyone else had any experiance with it?

 

[KatKaos]

I first developed symptoms of PTSD when I was around 13 or 14, including emotional numbness and suicidal thoughts. I developed fibromyalgia around 20 years ago, at first it waxed and waned, but now I have very few good days. At the moment I'm in a flare-up, and I get crippling exhaustion and pain and all the other stuff that comes with it. My daughter recently found an interesting article that said this:

One study of particular interest, performed in the year 2004, concentrated on men with fibromyalgia, a disease that is more common among the female population. This study found a strong correlation between fibromyalgia and PTSD in Israeli soldiers. Fibromyalgia was found in 49% of those men with long-diagnosed PTSD as compared with only 5% of those who suffered from depression as a result of their
wartime service. There was no fibromyalgia at all in the control group of healthy male soldiers. Lead investigator of the Hadassah Hebrew University School of Medicine study Howard Amital commented that, "Normal average males have no tender spots on their bodies, so it was very unusual to find such a high number of men showing this level of pain."

 

[sunnyd]

I also have cf, fm and ptsd/

Years and years or stress have done this to me. I think as i go on i am developing further sysmpoyns of fm. Now I have a lump on my neck. find it hard to eat sugar and other carbs that turn into sugar and i end up sleeping and getting sore an exahusted.

One area of my rib also is very painful as well as terrible headaches that i get daily, I tale sleeping tablets when i don't have work to go to the next day and i have a massage mat if i lay on for a few hours a night i feel better in mu muscles the next day.

I work shift work and its hard to get into a pattern. I started tia chi but this also left me buzz and a little to high to sleep at night.

I take cocodamol 1000mg 4 times a day and a sleeping pill at night I haven't been reffered to any specialist. I would like trigger point massage and perhaps a dietition to help me eat Im so sore i am living off of mushroom omelltes. but still time for the most part. depending on ehat sugars and carbs i eat i feel it almost right away.