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Lionheart
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That has been my experience with CFS too.
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Fibro Chronic fatigue syndrome and fibromyalgia
- Post starter Lionheart
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Daisee1203
New Here
Hi. I'm new here. I just posted a thread about Fibro and PTSD but did it in the wrong area. Glad I found this one. :)
It is likely I had fibro as a kid or young teen. Maybe CFS too but I haven't officially been diagnosed with that. Who cares, though. Lol. I'm exhausted 50% of the time. SOMETHING is causing it.
I started healing about 4 years ago. When my recovery process started, I became very interested in healing naturally and how connected emotions are to illness. I have personally found this to be true. When I first started healing, I broke out in a huge exczema rash. It was everywhere...never had it before. Fibro came on very strong in unpredictable episodes. My heart was beating irregularly...so much so I had to go to a heart specialist. Nothing was found as the cause but they could see (after wearing a monitor for 3 days) that my heart does flutter like crazy. Looking back, I think my body was literally going into "fight or flight" on it's own. I was beginning to take a look at all this "stuff" and it was hard, you know? I think my body responded.
Fibro has gotten a bit better...again, stress has gone down a bit in that I'm better able to cope with life. But I have now developed migraines. Again, due to stress. When I am anxious the fibro comes back. Today it shows up as irregular sleep patterns, fuzzy thinking, extreme tiredness, sore muscles, not being able to feel as if I stretched enough and stuff crawling on my skin. Its maddening at times. However, daily stretching has helped. I do it in the shower. It's nice.
It is likely I had fibro as a kid or young teen. Maybe CFS too but I haven't officially been diagnosed with that. Who cares, though. Lol. I'm exhausted 50% of the time. SOMETHING is causing it.
I started healing about 4 years ago. When my recovery process started, I became very interested in healing naturally and how connected emotions are to illness. I have personally found this to be true. When I first started healing, I broke out in a huge exczema rash. It was everywhere...never had it before. Fibro came on very strong in unpredictable episodes. My heart was beating irregularly...so much so I had to go to a heart specialist. Nothing was found as the cause but they could see (after wearing a monitor for 3 days) that my heart does flutter like crazy. Looking back, I think my body was literally going into "fight or flight" on it's own. I was beginning to take a look at all this "stuff" and it was hard, you know? I think my body responded.
Fibro has gotten a bit better...again, stress has gone down a bit in that I'm better able to cope with life. But I have now developed migraines. Again, due to stress. When I am anxious the fibro comes back. Today it shows up as irregular sleep patterns, fuzzy thinking, extreme tiredness, sore muscles, not being able to feel as if I stretched enough and stuff crawling on my skin. Its maddening at times. However, daily stretching has helped. I do it in the shower. It's nice.
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- #27
Lionheart
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Thank you Daisee for your reply,:)
There does seem to be an emotional connection to symptom flare-ups for me too. Thanks for reminding me that stretching and hydrotherapy can help the tiredness and sore muscles. I have access to a jacuzzi and a heated swimming pool and I think I am going to have to take advantage of these to help me manage the pain.
LH
Daisee-so glad you're here. There seems to be a lot of people with the co occurance of fibro/cfid and ptsd. I can not emphasize enough how much a holistic approach helped me even when I did not get diagnosed with ptsd or treat that specifically, I did address my beliefs/thoughts that brought about negative emotions. So I know life can be good and how hard it is staying hopeful some days. Appreciate your post. Thanks for sharing
AngelaMarie
Diamond Member
I have both of these along with a lot of other problems. I do not doubt at all that it is due to years and years of stress. I have been so stressed and have had so much abuse in my life that I just believe that it's piled up and caused the illnesses. I have noticed when I have periods that are going well that the symptoms decrease. However, I also know that whatever the cause they are certainly real. I have had doctors act as if they are only in my mind and I know that is not true. Why would anyone chose to be in so much pain and not be able to live a normal life? Also, I didn't choose to be abused from birth.
AngealaMarie-not in your head and is very real-no matter what its called or how its caused.Many doctors are stumbling around and just trying to treat symptoms.
20 yrs ago, I joined a CFID group and was very good for me. At the same time, I had been working on Co dependency issues. Initially diagnosed, my doctor suggested seeing a psychiatrist? I was pissed-needless to say-not in my head. Most cfid members had been referred to therapy of some sort and anyry about it as well-I was already participating for Co dependency issues. One thing I noticed though was that as a whole, members of cfids atimately denied and thing psychological (deression, anxiety, any mental health issue) other than mild and brought on by cfid.
clearly denied any family dysfunction or co dependency issues etc.
I am often the one in a group that will throw something on the table. I remember saying that before I got sick with this or discovered cfid, I would burn the candles at both ends, I was a caretaker, a bit of perfectionist, etc. Generally bringing up a topic, at least a couple others would relate-nobody did. Nobody had a stressful divorce, alcoholic relative, oppositional kids-nothing-all lives were good, which of course suggested denial to me.
About 6 years later, my 6 yr old needed a psych test looking for ADD. The examiner was very thorough and spent several hours. She wrote a full page report on the fact that I have a chronic illness that involves fatigue and my daughter drew a picture of her family which was-dad on the computer, this daughter watching tv, the other daughter on the paino, and me vacuuming. Three healthy persons were sitting and relaxing or hobby state, the ill person was doing physical work. This opened my eyes further as to how I was raising children and accepting husbands behavior as well.
Dumb as it sounds, I have a changed and returned back to this spot of serving others. Working on getting out of it now.
20 yrs ago, I joined a CFID group and was very good for me. At the same time, I had been working on Co dependency issues. Initially diagnosed, my doctor suggested seeing a psychiatrist? I was pissed-needless to say-not in my head. Most cfid members had been referred to therapy of some sort and anyry about it as well-I was already participating for Co dependency issues. One thing I noticed though was that as a whole, members of cfids atimately denied and thing psychological (deression, anxiety, any mental health issue) other than mild and brought on by cfid.
clearly denied any family dysfunction or co dependency issues etc.
I am often the one in a group that will throw something on the table. I remember saying that before I got sick with this or discovered cfid, I would burn the candles at both ends, I was a caretaker, a bit of perfectionist, etc. Generally bringing up a topic, at least a couple others would relate-nobody did. Nobody had a stressful divorce, alcoholic relative, oppositional kids-nothing-all lives were good, which of course suggested denial to me.
About 6 years later, my 6 yr old needed a psych test looking for ADD. The examiner was very thorough and spent several hours. She wrote a full page report on the fact that I have a chronic illness that involves fatigue and my daughter drew a picture of her family which was-dad on the computer, this daughter watching tv, the other daughter on the paino, and me vacuuming. Three healthy persons were sitting and relaxing or hobby state, the ill person was doing physical work. This opened my eyes further as to how I was raising children and accepting husbands behavior as well.
Dumb as it sounds, I have a changed and returned back to this spot of serving others. Working on getting out of it now.
AngelaMarie
Diamond Member
Brat17:
I really enjoyed your post. From what you said we have a lot in common.
I really enjoyed your post. From what you said we have a lot in common.
After posting that-I googled the story of the Little Red Hen- a childhood favorite that I have thought of many times. I shared it with my grown daughter. She listened just like when she was a little girl, was so nice. Then she replied "that sounds like you mom, you are the little red hen, except you missed the point of the story-at the end she tells them no bread because you did not help, and you give even when others contribute nothing" OUCH...but true
I think I will put a copy on my frig
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- #33
Lionheart
Not Active
It seems childhood trauma is associated with a 3-8 times increased risk of CFS. According to research by Christine Heim PhD. Here is a link to the study... Link Removed I will check to see if I can find more information.
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- #35
Lionheart
Not Active
Hi Junebug :)
Yeah, I was talking about this CFS relapse I am having and swollen/tender lymph nodes in the neck being a part of that.
Yeah, I was talking about this CFS relapse I am having and swollen/tender lymph nodes in the neck being a part of that.
Thanks Lionheart- really- had no idea. Have no idea what are causing mine for a long time, realize you can't 'self-diagnose' but have issues with Drs and no time to be ill, either.
-But I really notice they increase/ decrease with stress/ not feeling good.
Excuse me for my ignorance, but what are the symptoms of CFS?- I know I have literally 'fallen asleep' walking, before. Eating doesn't help and sometimes sleep doesn't, either. But I get so little sleep, who could tell?
I think they can pin-point it with the presence of Epstein-barr virus?, -or I may be totally mistaken?
-But I really notice they increase/ decrease with stress/ not feeling good.
Excuse me for my ignorance, but what are the symptoms of CFS?- I know I have literally 'fallen asleep' walking, before. Eating doesn't help and sometimes sleep doesn't, either. But I get so little sleep, who could tell?
I think they can pin-point it with the presence of Epstein-barr virus?, -or I may be totally mistaken?
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