Hi all you kind friends with spirit lifting pictures:
Please forgive me for not coming on here and saying thank you. I, for whatever reason, was not seeing the alerts for this thread. I think my brain, which is not my friend of late, was seeing the alerts as replies to Nighthawlk's knee replacement thread which I had been posting to.
Not to diminish any other post here, but I did want to say a different kind of thank you to Anthony. I not only want to thank you for being understanding and flexible enough to hammer out a workable arrangement for me to be able to remain connected if/when I have more surgery, but for taking a moment, while busy tending to so many members and site development, to stop by here and wish me well with whatever the future throws at me.
To everyone else (seems so impersonal):
I thank you for continuing to stand with me and by me through this long, arduous, discouraging, exasperating, and insanely sad 13 month (and still counting) hospital "incarceration" without even any "yard time". Silly prison analogy!
I have been having to fight hard again with my medical team, fearing that they may eventually cure me of this most recent virus/infection but at the same time are not respecting the very real danger of C-Diff destroying (eating away the lining/walls of) my intestinal tract.
Additionally, I am worried that when they can get around to reevaluating me, my tumor will have become inoperable due to all the delays, mistreatments, withholding of treatments, and setbacks since the last brain surgery in December (8 months ago - I should have been home within a month or two without all the iatrogenic debacles and complications).
I also fear that if they keep pumping my body full of antibiotics without properly attending to the existing C-Diff, then it will eventually become unresponsive to the limited available treatment options.
And if it comes to that, having had it 3 times before, then the only option left is to surgically remove most of it. However, even if my body could survive that, I doubt that there would be any quality of life left to fight for.
I am sorry! I just meant to pop on while I had wifi service and say:
With much gratitude,
Alex