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Undiagnosed Hi, Stillbirth, Traumatic Live Birth, Nicu Mom

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Hi. I'm Rebecca. I'm in my thirties, a stay at home mom to an active two year old boy, I'll call him G. Clever, I know. I used to be a social worker, providing therapy to childen and adolescents mostly. Three years ago next month, my son E was born. I was 5 months pregnant. On a Thursday they saw a problem on an ultrasound, Friday they confirmed it was fatal, Monday we checked into the hospital and induced labor, Tuesday morning, very early, he was stillborn. The autopsy confirmed the problem. Due to a medical condition I didn't know I had, E did not have kidneys.

We treated the problem and 7 months later I was pregnant again, this time with triplets. Again, two were ill. This is apparently common in triplets. Again, we terminated, to save the other baby, my son G. One of the triplets died on her own. I can still hear our doctor say "she's gone into asystole", very quietly. For more than a month, at our weekly ultrasound, we could see our now, much healthier son bouncing away, his brother and sister floating there, silent. I still worry that my son was lonely. But we focused on G. As soon as he was born, everything would be okay.

Everything was not okay. The anesthesia failed during the c-section. I felt everything. They pulled G out. He was having a seizure, not breathing. They rushed him off to the NICU. I kept bleeding in recovery, couldn't see him. I made a ruckus and got to go. There he was. With wires and tubes and machines dinging. A metabolic disorder. Maybe 6 months they said. My son does not like limits, and he loves playing tricks. He came home after 12 days a perfectly healthy kid. No one knows what happened, but I'm not going to ask too many questions.

Me? Well of course there is the preexisting bipolar type 1 and generalized anxiety disorder. So Acute Stress Disorder. Post partum depression. Then serious anxiety problems. Now a depressive episode, major, since the summer. My therapist. My shrink. A battery of meds. Med changes. Phototherapy. Stress induced hair loss. Worsening of my many health problems. Marital stress. Amenorrhea. Social anxiety. I relived the last week of E's life Every Day. I can't stop it. Over and over. I can't fall asleep. "She's gone into asystole." The sadness in my doctor's voice in the quiet room. I hear it. The guilt. It's my fault. I made them sick. I signed the papers. I let the doctors do it. I can't cry. Why can't I cry anymore?

Depression and anxiety aren't the problems. They're the symptoms.

Sorry for the wall of text. Thank you for reading it.
 
I should probably mention that I am self diagnosed. Being a former mental health care practitioner, I have the clinical skills to self diagnose, but of course, I am completely lacking in objectivity, and that's pretty important. So I've been too embarrassed to say anything to my doctors. I've had patients who self-diagnosed, it was often a stumbling block in treatment. I'm so afraid to be *that* patient. But I see my therapist Thursday. She's been with me eight years. I'm going to finally tell her my suspiscions. I want her to think about my subjective opinion while she treats me. That being said, as eager as I am to finally have an answer, I need her because I don't want it to be the wrong one.

Does that all make sense? I just can't tell anymore.
 
Thank you very much for your kind words. People look at me like I have three heads because I think of my son's birth three whole years ago. I'm glad i found this place, i don't feel so odd. I'll always think of him, but it would be nice to not be trapped up in it. I see my doctor tomorrow, we'll see what she thinks about all of this.
 
Hi Rebecca, welcome.

Whether or not you have PTSD, you most certainly are not crazy.

In the Jewish faith, we have very long mourning periods, especially long when we lose a parent, but if a parent loses a child, the mourning period is much shorter, because it is totally unnecessary to forcibly remind people of a loss they cannot possibly forget. You do not--do NOT--sound crazy to me.

I am very sorry to hear your tale and the toll it has taken on your life. I hope this forum serves you positively.
 
Oh Rebecca, I am so sorry to hear about the loss of your presicous babies.

I think it is a good idea to be honest with you therapist. You most certainly do not sound crazy.
 
I wish you the best. Of course I can't say I know how you feel, but we had a close call with my grandson last year and spent weeks in a bed-side vigil. I DO have empathy.

Hope all goes well with the therapist today. It's awesome that you are doing it!

ISH
 
So sorry for all you have had to go through. During pregnancy you love your little beans as they grow and develop such a bond in-utero. I struggled to get pregnant and was pregnant with triplets. Lost the one and my twins were born premature and were in the hospital for a month. The NICU experience is traumatic enough but I remember grieving as well for the loss of the third baby and I still think of it. I think what you are feeling is a normal response to abnormal circumstances. You need to take the time to grieve and somehow honour your little ones lives. My husband told me he had a dream and in the dream a little girl was running towards him and he asked her who she was and I can't remember what she said her name was but he woke up teary eyed and told me that the little girl was our babe that we lost. He said he did not realize how profound the loss was or how it had affected him. I hope your therapist appointment goes well.
 
Thank you all for your kind words. My appointment went well, my therapist did not think I was crazy. She said that I have long suffered with significant post traumatic stress, and she takes my own clinical assessment seriously. I have bee her patient for eight or so years, so when I asked when the last time I cried in a session was, she quickly realized that I have had a flattened affect for a long time. And she had already noted that I have been displaying a lot of learned helplessness. So she wants to explore the idea of a PTSD diagnosis. But because it is such complex trauma, she wants me to see a trauma specialist for a few visits, one who can teach me self hypnosis.

MomofTwo: thank you for sharing your story. I'm sorry you had a loss and NICU babies. I hope they are doing well.
 
I can sympathize with your story. I too had a baby who went to NICU. I get into too many specifics as it is a really long story but I developed Preeclampsia and he had to be delivered at 25 weeks by emergency c section. He only weighed 1lb 3oz and spent 6 months in NICU. I blamed myself for years.

We tried for another baby and I had an ectopic pregnancy. The OBGYN drug it out for 4 weeks because they couldn't tell if it was a viable pregnancy or ectopic. In the end, I was bleeding so bad that they gave me the choice of surgery to remove the Fallopian tube completely or injections of Methotrexate, which is a chemo drug used in cancer treatment. I chose the injections because I didn't want to lose the tube.

I felt like a murderer. Like I murdered my baby by choosing the injection. The grief was so intense, it was horrible. I blamed myself, even though I was massively bleeding.

I would like to tell you the same thing that someone wrote to me. It helped me enormously for some reason and I would like to pass it on to you.

"You faced a painful situation and made a difficult decision. Your love for the baby is apparent. I suspect the baby is saying "I understand. I forgive you, Mom. Please forgive yourself. You do not have to carry a burden of shame or guilt with you now or for the rest of your life".

Please extend yourself the same compassion and forgiveness that I suspect you would give to another woman.

Linking arms,

Kaii
 
Hello Rebecca Welcome. Not much to add to the above, just wanted you to know I was here. I'm so sorry for your loss, and all the subsequent pain. I hope the trauma folks help.

Wishing you peace and healing. (and the occasional respite from a two year old miracle!)
 
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