Anyone In Az

[Andreab1325]

Anyone in AZ or anyone wanting to talk. I was diagnosed in 2012 with PTSD and having trouble finding someone to talk to. My PTSD is from surviving a physical condition.

 

[Johnny86]

Hi Andrea, I'm living in Southeast Phoenix suffering from PTSD due to a severe illness. I'm due for major surgery in July but I'd be glad to talk to you on here in the meantime. I'd also be fine with meeting you in person later this year if you're in the area. Take care.

 

[Andreab1325]

Hi Johnny thank you for responding. I was diagnosed with multiple pulmonary embolisms last August. I was on Coumadin until last week and am scheduled to have a surgery consultation Tuesday. My blood clots are due to a blood disorder I had no idea I had. I was told "I dodged a bullet" and there is no reason I am alive. My PTSD kicked in September although I was diagnosed in August. I now have fibromyalgia due to the PTSD and pain in my bones, the headaches and being 41 and feeling 141 is bad enough but the worse part is that it is hard to find a doctor who understands this. I keep switching primary care physicians. I only have my boyfriend and dogs as my support system. I have a daughter but she lives in New York and can't understand. I feel anxiety everyday like I am going to suffocate and everyone I know thinks I should just get better. My surgery is supposed to help me no longer get blood clots from my pelvis but people think the surgery will magically make my "craziness" go away. I did talk to a wonderful therapist but my hospital only allows 2 visits with her so I will see her in 2 weeks for some final help. I went to another therapist and she had no idea what PTSD was but said she did until I got there and I realized she was clueless but she got her money prior to talking to me. I would love to hear your experience. I thought if someone can relate I wouldn't feel so alone.

 

[Johnny86]

I'm really sorry to hear about your health problems. I can certainly understand your frustration with your situation and your physicians. Doctors mean well but can be very dismissive of their patient's concerns. They forget that you're the one with millions of nerves giving you information about the problem 24/7, under every possible condition. You know how diet, sleep, mood, and many other factors affect your disease. I hope you can find a physician who listens to your input and works with you to solve the problem.

I am glad to hear that you have a boyfriend and two dogs for love and support. I'd like to hear how your surgery consult goes on Tuesday, and I'm certainly willing to listen if you feel like you need to talk.

I'm also suffering from a chronic illness. At the age of 20 I developed a rare neuromuscular disorder that mimics Crohn's disease. I go to the bathroom 10-20 times/day and get painful cramps that leave me shaking & sweating. After getting sick I managed to finish college, continue working full-time from home, and buy a house. But I've also been housebound and completely alone for 6 years. The illness and isolation are causing recurring nightmares that I can only guess are PTSD. The good news is I'm getting a colostomy in July which should end this nightmare and give me my life back. I can't wait.

 

[Johnny86]

By the way, I stumbled on an incredibly relaxing guided meditation today. You might enjoy it. Search for "ASMR Whisper Visualization: Twilight Forest" on Youtube.

 

[amethist]

Please keep this thread as find a friend.

Conversations should be done either in the appropriate thread or by PC.

Thanks

 

[Andreab1325]

I am so sorry to hear about what you have been going through. I hope that the surgery in July changes your life. I feel terrible you have been homebound for so long. I work from home because there is no way I could make it to work. The pain is to unbearable and the ptsd makes me want to be alone or I can get angry or sad. I burn up and sweat all the time and my legs have been hurting to where it is getting harder to walk. I am looking forward to tomorrow. 1 doctor will tell me about my surgery and another doctor I hope can help me with my fibromyalgia. It's not often I can be positive anymore but if I could wish for anything it would be both of our surgeries work and by the end of the year we can be on a path to a normal, happy life. Thank you for the YouTube link, I will look at it tonight. I don't know if you are religious but I am not so it seems to make it harder to reason this illness. I don't know if that makes sense.

 

[cherryblossom]

Andreab, please follow directions given by moderators (Amethist) and continue this conversation either in the appropriate section or via private message. Many thanks.

 

[Johnny86]

Andrea, I sent you a private message. We can just talk there.

 

[Johnny86]

Hi Andrea, did you get my message? Hope you're doing well.