• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

C-ptsd Diagnosable In The Uk?

Status
Not open for further replies.
Welcome @RedRose!

As you can see, from the many threads, the CPTSD can be a bit of a contentious issue, not only in the wider community but on here as well. I think sometimes on these forums it is an issue of invalidation. For some, having had many, multiple trauma's over a prolonged period of time (usually childhood abuse over many years), the diagnosis of 'PTSD' leaves them feeling the complex nature of their multiple trauma's is unrecognized. For others, they feel their experience is at risk of being invalidated, if someone else's trauma has been deemed 'complex' while theirs is not. (That of course, is not true for everyone, it's just one of my observations and opinions as to why this topic often gets so heated up and people on 'both sides' feeling invalidated).

I think where a LOT of confusion lies with discussing 'CPTSD' is that because there is no 'official' diagnosis of CPTSD, the term is used to mean very different things. In the link above, which shows the pamphlet given by the NHS as 'listing complex PTSD', it is used to describe someone who has had multiple trauma's over a long period of time. BUT other uses of the term 'CPTSD' are referring to a much more complex (no pun intended) definition of what 'CPTSD' is (google Judith Herman and you will come up with a very long list of possible diagnostic criteria for what she means the term to mean). In essence, some use CPTSD to mean 'multiple, varied, trauma's over a prolonged period of time'; others use it to refer to a differential diagnosis (that has not yet been included in some official publications) encompassing a disorder that straddles PTSD with aspects of a BPD diagnosis.

For me, I initially latched onto CPTSD as an explanation for my experience. I too was misdiagnosed as having BPD as a teenager - and it did a lot of harm to me as a result - namely because the 'treatment' was to essentially ignore my distress (because it was attention seeking behavior). Can you imagine someone with PTSD being told and responded to as if their distress was merely manipulation attempts to get attention / sympathy? The damage that does, is huge (spoken from experience :().

I liked the CPTSD term, because it seemed to validate my childhood experience greatly affected me - it helped me recognize and feel validated that my entire childhood was one long trauma, with no escape or hope for freedom. Like being in a hostage situation, but with no capacity to understand that 'one day I might be able to break free from this'. As a child, there was no escape, it seemed to be forever (I tried to kill myself by wishing myself dead, and by putting my head under the water in the bath, with the intention of never coming back up - I was too young to know it would not be successful but I was despite to escape). Initially, I used the term as it applies to the work done by Judith Herman - and I probably latched onto her work BECAUSE of her move away form BPD as a diagnosis. As she writes, 70% of those diagnosed with BPD fit the criteria for CPTSD (as a straddle between PTSD and BPD, but not in the context of those with it as having BPD, if that makes sense!). At the time, it helped explain to me WHY the mental health professionals might have misdiagnosed me as having BPD - because there is quite a bit or overlap (but significant differences) between her theory of CPTSD, and BPD. In short, it gave me an explanation I was desperate for.

Nowdays, I sometimes think of my trauma as 'complex' in a different context - that it is complex due to it being so multi-layered, multiple, and over a prolonged period of time. It was not a one off trauma that has left me with PTSD; but many incidents, of all different kinds (sexual, physical, emotional abuse; witnessing the death of my mother as a child; and later, the series of devastating earthquakes in my city). My use of the term is not intended to 'take away' from anyone else's experience - I am not saying my trauma is 'worse' or that I 'suffer more' because my trauma's were multiple. Trauma is trauma, and it while the causes can be very different, there is a great deal of overlap as to how it affects us. But, at the same time, multiple trauma's will likely take more time for me to work through and resolve, that they would if I had had the one trauma to work through.

But personally, because it can cause angst, I generally do not refer to my PTSD on these forums as anything other than 'PTSD' (come to think of it, I don't in 'real time' either now because it's less important to me in that way). Those that can relate to having experienced many trauma's over a prolonged period of time still relate to my stories whether or not I add the 'c' word into the discussion - as do those who have had one trauma or not experienced prolonged abuse as a child :).
 
@Laura 2 haha, I think I may well join you in the move :-p but yes, that's very fortunate @Lucycat I guess it is always to some extent luck of the draw in the UK, or anywhere. I've not had terribly good NHS experiences up until now, but will keep my fingers crossed for the future :)

@NovemberStar Yes, I can WELL imagine the damage that is done by dismissing someone on the basis of 'being manipulative' or 'attention seeking'. It really scares me! I also appreciate the lack of clarity in the diagnostic criteria of Complex-PTSD, given that it hasn't ever been officially formalised. I've read up a little on Judith Herman and I think she wrote some pretty cool stuff! I guess I've managed to escape the pd label up until now, I'm just hoping I can avoid ever getting stuck with it.

On a different note - I've read a little about DESNOS as well, and again this appears to be used as something distinct from C-PTSD and also used as the same thing. Any ideas anyone?
 
Nowdays, I sometimes think of my trauma as 'complex' in a different context - that it is complex due to it being so multi-layered, multiple, and over a prolonged period of time. It was not a one off trauma that has left me with PTSD; but many incidents, of all different kinds

That's my understanding too.

From the Royal College of Psychiatrists website:

Complex PTSD
People who have repeatedly experienced:
  • severe neglect or abuse as an adult or as a child
  • severe repeated violence or abuse as an adult, such as torture or abusive imprisonment
can have a similar set of reactions [to PTSD]. This is called 'complex PTSD' and is described later on in this leaflet.
This [CPTSD] can start weeks or months after the traumatic event, but may take years to be recognised.

Trauma affects a child's development - the earlier the trauma, the more harm it does. Some children cope by being defensive or aggressive. Others cut themselves off from what is going on around them, and grow up with a sense of shame and guilt rather than feeling confident and good about themselves.

Adults who have been abused or tortured over a period of time develop a similar sense of separation from others, and a lack of trust in the world and other people.

As well as many of the symptoms of PTSD described above, you may find that you:
  • feel shame and guilt
  • have a sense of numbness, a lack of feelings in your body
  • can't enjoy anything
  • control your emotions by using street drugs, alcohol, or by harming yourself
  • cut yourself off from what is going on around you (dissociation)
  • have physical symptoms caused by your distress
  • find that you can't put your emotions into words
  • want to kill yourself
  • take risks and do things on the 'spur of the moment'.
It is worse if:
  • it happens at an early age – the earlier the age, the worse the trauma
  • it is caused by a parent or other care giver
  • the trauma is severe
  • the trauma goes on for a long time
  • you are isolated
  • you are still in touch with the abuser and/or threats to your safety.
============
That the RCPsych recognises CPTSD is enough for me to make it a valid dx!

It seems that there isn't a dx of BPD in the UK. The RCPsych website gives a really clear explanation and surprisingly kind support suggestions about "personality disorders" - which seems to me a bucket term for all sorts of problems they just don't know what to do about.
 
Just wanted to add, @RedRose - even if you don't find a Dr or T that will diagnose you with CPTSD, it does not mean you don't relate to it, or use it as YOUR term of reference. When I started with my current T (a clinical psychologist), I explained said to her "Even though the DSM doesn't recognize CPTSD as a diagnosis, it is what I find explains my experience" - my T was happy with that, and gave me some info sheets on CPTSD. We didn't get into the 'debate' as to if its 'real' or not; that was irrelevant really. What was important is that she understood where I was coming from, and did not dismiss my experience or my description and understanding of it.

That might be the same for you too - regardless of the diagnosis on the piece of paper, as long as you feel your experienced is validated and understood, it might not matter what term/s are used to describe it. (Unless, like me, you are very very strongly opposed to the label 'BPD' - for me, use of that term resulted in serous emotional and mental harm to me, so I cannot cope with it being used in reference to me as it brings up traumatic feelings. Not to mention that it is simply the wrong diagnosis!!!).
 
Could you point me to where it's specified?
No. I can't - maybe others can. But your question has made me think, because I always believed it to be true - basically that you need to be a doctor to make a diagnosis. But I do wonder if that has changed (or was ever true?) especially as other professionals have taken on so much more. By this I mean that if you go to A & E these days you may see a Nurse Practitioner (NP) or Emergency Nurse Practitioner (ENP) and if they are allowed to see, treat, prescribe and discharge ( without reference to a doctor) then the presumption is that they have made a diagnosis.

The other point that I wonder is about the term 'therapist' Personally here in the UK I use it to refer to my Community Psychiatric Nurse (CPN) as he has 'done' my therapy (EMDR and talk), but I know it is a very widely used term. After all Occupational Therapists and Physiotherapists amongst many others are all 'therapists' and within their field of expertise they do diagnose. My concern is when people without qualifications call themselves a therapist, and I think that is why people advise a doctor for diagnosis because some therapists are not qualified to make any diagnosis or even to offer an opinion really.
 
I was diagnosed at 15 years old (23 years old now) with complex ptsd by a psychiatrist after a year in and out of psychiatric units and I'm from Wales. The diagnosis has never been disputed or questioned of its validity by any psychiatrist, psychologist or consultant I've seen since then and I've never been considered for an alternative diagnosis of a pd, but I do have bipolar too. I'm currently about to undergo EMDR for it after repeatedly refusing treatment for it as a teenager because it was way too raw to deal with back then. Hope this is of any help x
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom