Fibro Chronic fatigue syndrome and fibromyalgia

[pandora]

I have not been diagnosed with CFS but feel exhausted all of the time...What symptoms do others experience? Or is it just that you feel like you are exhausted and can never get the right amount of sleep? I have a pain issue because of my back and suffer from bad insomnia so I thought it was that....

 

[nie]

I have been wondering about CFS too. I do have a fibro diagnosis as I have already mentioned. I feel like they just keep doing tests and finding no answers, but no one is saying CFS. I know what it is not: anema, apnea, vit d deficiency, RLS, narcolepsi, lack of sleep, insomnia. I was switched on to Cymbalta for the fibro, but now they are taking me off to see if that is the cause of the fatigue. They have run so many blood tests. I am so frustrated. I am on naproxine, but they are trying to get me to stop that to see if I can just handle the fibro pain without it. I am so tired of being tired.

 

[pandora]

Thanx nie for the info....I say the exact thing, I am so tired of being tired ALL the time. I too, have the fibro dx.

 

[Lionheart]

After a particularly nasty little CFS flare-up, I tried an ephedra-free herbal supplement that seems to be giving me a bit more energy without giving me the shakes or other unwanted side-effects! :D It is a little too early to tell if I will be able to take this supplement safely, on a consistent basis, but I am keeping my fingers crossed...(and continuing to pray for a cure).

Prayers and healing hugs for all that need them,
LH

 

[Lionheart]

The herbal energy supplement is helpful to a degree, but contains caffeine, so I can't take very much of it because of the anxiety and shakiness/jitters.

However, I did find another energy supplement that is supposed to be helpful for CFS... it is called D-ribose and is involved in the production of energy at the cellular level. I will begin taking the supplement this weekend and after awhile, I will let others know if this works for me. I am hopeful, but having tried many things that didn't work, I am a little bit scared to hope for much.:confused:

I am thinking of and praying for all of you who suffer with cfs/fibro!!!

 

[Lionheart]

Proposal to reclassify CFS as a neurological disease...
http://www.cfs-info.com/joomla/index.php?option=com_content&task=view&id=1746&Itemid=85

 

[DadsWife]

Suffered with CFS for 3 years.. got it shortly after I was married and his ex and kids started targeting me. It seems to me that with CFS, you may get on the "merry go round" at a number of different points.. some folks get Epstein Barr, for others it's long haul travel, chemical sensitivities, emotional trauma, partnering someone with CFS (makes you 8 times more likely to develop it yourself..) and a million other things that may trigger it. Once you are on it.. the downward spiral is like knocking over dominoes as one physical system after another is knocked out of whack and the textbook patterns of CFS then emerge.

 

[BloomInWinter]

Got Fibromyalgia, CFS/Adrenal Fatigue...just don't feel up to dealing with this stuff too. Am too exhausted and in pain most days it's all I can do to work and be a Mommy. Forget having a life...

 

[nie]

Am too exhausted and in pain most days it's all I can do to work and be a Mommy. Forget having a life...

Ditto

 

[Lionheart]

((((BloomInWinter))))

CFS is a truly debilitating disorder and I understand your frustration with it. I have good days and bad, but most days are challenging to say the least. I will keep you in my thoughts and prayers!!!!

hugs,
LH

 

[Lionheart]

I grew up believing that I was not supposed to show pain or weakness and with CFS, I feel a lot of both. When I was abused and traumatized I suffered in silence for many, many years and now that I am physically ill with CFS, I am again told to suffer quietly.

Hiding weakness, pain, emotion etc, makes me feel like something less than human and I am no longer willing to suffer silently. I am ill, I hurt, and dammit ...I don't freaking' like it!!!! *(sorry had to get that out of my system)

It has been difficult to accept that I am disabled due to PTSD but I have managed to do that. Now I am beginning to realize that CFS is also disabling me. I haven't quite accepted that yet. :(

A woman I talked to yesterday has PTSD, CFS and FMS and was told she would never work again. It makes me wonder what the future holds for me.:confused:

 

[discovering me]

I don't have FB but I do believe I have CFS, not diagnosed.. I am ALWAYS tired and anywhere between 12-4, this wave hits me, and there is nothing I can do to hold my head up straight and I have to take a nap. It's exhausting.
I was wondering if anyone has tried any dietary restrictions (Carbs, sugar) whatever I've seen online and if they had seen an improvement with the fatigue.