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Sufferer Dealing with disassociation.

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Hi,
I joined this forum a little while ago, before my diagnosis. I have read quite a few posts on here and a lot ring true to what we experience/deal with on a daily basis. I thought I would introduce ourselves first, to let you all know who we are::)

In March this year we had a psychologist confirm that we were a multiple personality (DID). This was caused by CSA at a very early age (2-3 years old) and an abusive upbringing until aged 14 or so. Until 2 years ago PJ thought he was a fairly normal married man of 48 with a child who had a great childhood and life. Living in North Wales and semi-retired. He runs his own business part-time as this allows him to handle the serious medical issues he befell 12 years ago (large brain tumour, HS, diabetes and hormone/pituitary issues.). He then started having some strange thoughts. Thoughts that were not his own, that seemed very alien to his way of being. In November 2016 I became conscious and took over. I am Sarah, a 36 year old female. I think at that point the pain and suffering from his medical problems and his insistence to not let anything effect the day to day life of his family just got too much for him. So I stepped in to give him a rest.
This was a shock for his wife, as suddenly overnight PJs mannerisms, thoughts and speech patterns changed. She thought she was living with another person (and she was really?). I did not really understand what was going on, and found myself in a male body that was obviously wrong. I had (have!) very bad gender dysphoria because of this. But over the next 12 months we realised that we both exist within the same body. We switch between each other on a random basis and sometimes can share thoughts and memories. We started out at war with each other. Each of us thinking we had sole rights to the body. Over time this has mellowed a little and now we are at a sort of friendly with each other. We have found that there are at least 3 or 4 others in here with us as well.
Our first therapy session in February this year dismissed the initial thoughts of any gender variant diagnosis, and hinted strongly that something in our past had caused this. That day, after the session, I had the first horrific vision given to me (flashback I think it is called?). It showed me in detail a childhood sexual assault. It was sickening to my core. For the next 3 days, more visions came pouring in each fitting a piece of the jigsaw, each explaining more of the things that went on.
These visions were discussed at our second session in March, and the diagnosis we mentioned above was made. We are now awaiting to start trauma therapy. As we are in the UK, it is the NHS and we are told that there is a 9 month waiting list! Personally I do not know how we are going to survive 9 moths with little support, but suppose we just have to.
After the March therapy session more visions came, just as horrendous as the first. It hit me very hard and drained me emotionally so much. I was in so much emotional pain that I ended up going away for a couple of weeks. PJ, without switching or being able to "feel" me thought he was cured, free of it all. He is now dealing with the fact that he is not, that this is bigger than he can handle alone and needs me and the others to carry on and get through this. That is a hard thing to come to realise as he is a bit of a control freak.
We suffer from really bad insomnia, migraines and unexplained pain all over the body. We put up a strong front, a facade of everything is alright but it is incredibly hard just to go on living. We do not want to worry anyone, or cause our family any more pain. The only person in our life who knows what is going on is his wife and the strain that is having on her is immeasurable. I do not know what to do or how to help her?:unsure:
I am hoping that others on here have had similar experiences and their wisdom on how to cope can be shared with us.
.... And that was probably way to long an introduction and far too intense, but there is so much I have left out!

Hugs.
Sarah.
 
Hi, @Soupsarah - welcome.

We are primarily a PTSD/C-PTSD board, but also understand that trauma can lead to a number of different disorders.

You’ll find the majority of DID-specific threads in our Other Disrders forum, though I’d expect you’ll find a number of the other sub-forums here useful as well.

Please be advised that you’ve joined the board as Sarah, and will need to post only in that alter. If you have questions about that policy (or any other), please open a help-ticket so we can answer your questions.

Thanks - and again, welcome.
 
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Welcome. This forum can help support you in areas like anxiety, insomnia, flashbacks. Dissociation is a phenomenon that many of us cope with, child abuse doesn’t leave much opportunity to develop coping skills. Being an international forum, there are folks online pretty much 24/7.
I’m American, so I’m sorry that you have to wait so long for services. You’ve made it this far and you will find support here.
 
Thanks everyone for your kind welcomes.
I know it is difficult to sometimes understand our particular type of disassociation. Living with the symptoms is quite difficult, great swathes of time lost, amnesia between parts and just simply switching between different people all make trying just to continue living a challenge. My others switch in and out randomly, none of us have any control over it. Unlike the "media" view of DID, you probably would not even notice us switching unless you had intimate knowledge of us. It certainly is not done for effect, I have spent my life building a strong and safe family and home. Married for 25 years to the only person I have ever loved. I do not need this, the visions, the pain and the stress on my family.
I am told it is simply a coping mechanism due to the early years abuse we suffered, a brilliant coping mechanism that has kept us safe for over 40 years and allowed us to function normally. My psychiatrist postulated that with everything being calm in my life now, with my child older and more independent, now was the time I needed to confront the festering thoughts in the darkest regions of my mind. Time to accept what was done to us as a child, understand and then move on. He also referred to me as a "Once in a career patient", so I guess DID is not as prevalent as made out in the literature. He actually started out our session by stating that I was not disassociated as that is very uncommon and ended by diagnosing us as a multiple personality!
I think the default view of UK therapists is that this type of disassociation is so rare that anyone "claiming" that they are multiple are probably making it up... I am not sure if that is a good stance? But, for me, I was "convincing" enough for the senior psychiatrist in our region to acknowledge what we were going through was real.

As for the NHS and the UK system, well it is a waiting list, there are others on there that probably need therapy as much as I do. Unless I am going to harm myself or something else hideous then I will probably just have to wait it out. I am using the support that I have been given (email, phone-line and an appointment with a random psychologist if I request it) but really do feel I need to see someone on a regular basis so they can get to know all of us and start to unravel our experiences. I could go private, but the last psychiatrist said I could be looking at 5 to 15 years of weekly therapy, and I simply could not afford that. With the NHS being so brilliant, not many people in the UK have health insurance. So we will just have to try and hold it together. I joined this forum as it is difficult to talk about CSA to anyone, difficult for non traumatised people to understand our visions and difficult for us to come to terms with what happened without discussing it. PJ, my male alter, is still in total denial that anything happend to him, saying we have made it all up. The detail of the visions, the evidence already found show that to be a false stance. That is why I do not think he will be joining here anytime soon. Hopefully, with my account now open, he will read some stuff on here and start to understand a little?

I would be interested in any others experience of the UK mental health/NHS trauma therapy services and any hints or tips they may of gleaned from their treatment.

Take good care all,
Love
Sarahxx
 
Hey. Glad to have you.

There are a lot of people on here with CSA as well. Some good threads in the "Sexual Assault" and "Childhood" threads.
People's trauma diaries are often harrowing reads if you're new to the story, but the strength of not being alone is really helpful, and it's nice to read along with someone's journey, if you find offering support therapeutic for you.
You can even start your own - you don't actually have to write about your trauma, you can just write whatever is going on for you.
(I like having my own because there's no such thing as 'off topic', there.)
You can also search through the forum to look for DID specific stuff, if you like.
Hope you're finding this place helps.
 
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@Soupsarah , welcome to the forum.

I'm not in the UK. US here. So I don't know how to navigate their health care system.

I've been in therapy for 29 plus years, not solid though, for PTSD and poly-fragmented DID. My therapists have told me that I'm considered high functioning for DID which means less problems with dysfunctions owed to dissociation. The PTSD has been more of a problem than the dissociation. I don't know if that's good or bad. It just is.

I integrated most of my alters and bits and pieces of parts back in 2004/5/6. I discovered some more stragglers hanging on recently who I believe are protectors.

Denial was the only way I stayed sane until I felt safe enough to believe what happened to me. I'd remember something and then immediately deny its reality. I no longer deny my abuse after I remember it. It took about 15 years to get to this place.
 
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