Frustrated -I'm Not Getting The Help I Need

[Tsalagi]

I just broke down crying last night. Crying is something I seldom do. I have a new therapist whom I like but I feel like I'm not seeing anything positive yet come out of talking to her. I mean I NEED the nightmares to stop, I need a decent night's rest. I also need help with the cognitive problems after the repeated head injuries I miss my old self and dislike not being able to remember. Yet I keep seeing all these doctors, having tests run and still no help. I had 7 hour neuropsych re-evaluation last week and that neuropsych spends only 5 minutes speaking with me yet thinks she knows what is wrong with me and wants to tell my GP, therapist and Vocational counselor what I need. And the number one thing she says she made up because its not an issue. I don't see how 5 minutes of talk can make her an expert on me. The rest of the that 7 hours was spent on cognitive tests. Now she wants me to sign a release so she can speak with my new therapist after she ruined things with my old therapist. I'm afraid she's going to taint this new therapist where she won't listen to me when I tell her what I have problems with but instead thinks she knows it all about me beforehand. I feel like I'm going to have to find another new therapist.

I just want to scream I am so tired. And I have terrible headaches now since the newest head injury. But am I getting treatment for that? NO. I couldn't even sleep last night after I got scared and started worrying and then had a trigger from the tv. Then today took all the strength I could muster to know start screaming, crying and kicking because I had a PETscan today and they strapped my arms down. They said they do that to everyone so they don't move and mess up the picture. Okay but strapping someone down who has been tortured and abused is not okay unless you prepare them beforehand. If only someone had talked to me about this prior or if I had a friend or therapist in the room to calm me down. Instead of being lashed tight to the table then screaming at them why are you tying me down after the fact. I wonder if the scan even came out the way I was shaking like a leaf inside the machine. Now am I going to start having nightmares related to being strapped down and shoved in that #%#$! tunnel?

 

[Seeking_Nirvana]

Holly crap! I can't believe they strapped you down after knowing you were tortured. I would sue or hurt someone.

I was in a serious car accident years ago and fractured my skull and hemoraging on the brain in 5 places.

After I was released from the hospital a month later I still had to go in for MRIs and scans for different injuries. The doctor that put me in that tube asked me how I felt about it and I was thinking I was going to jump up and run out of the room.

He told me he would give me a sedative and as soon as I felt OK to let him know and he would put me in that tube.

He was an excellent doctor. He gave me an IV of Valium and within a few minutes I didn't care where he put me. I told him I was ready and he patted me on the hand and said it will be ok and over in no time to just relax.

While I was in there I was relaxed and felt safe because of his concern of my well being in addition to the medication.

That doc should know better to strap you down without a sedative after being tortured. If you declined the sedative you should still be able to have the test done without being strapped down.

Hang in there and speak up when doctors do things that make you uncomfortable. It's their job to help you not make you worse.

Tammy

 

[goingonhope]

Now she wants me to sign a release so she can speak with my new therapist after she ruined things with my old therapist. I'm afraid she's going to taint this new therapist where she won't listen to me when I tell her what I have problems with

Hello Tsalagi, Welcome.

Good job at expressing yourself here, and your fears too. Breaking down crying after seldom doing so, is always good news.

If you don't mind me asking for clarification was it the nueropsyche that ruined things with your old therapist, and how was this done?

As for head injuries, and MRI's I too have had these in that tube you speak of and my very first time, I remember experiencing flashbacks while in process, it's not at all pleasant, but I guess it doesn't really matter where I experience flashbacks, they've been bound to occur regardless what triggers and incites them, or of where and when. Restraint, flashbacks, feeling trapped and stuck this whole Ptsd illness and often debilitating symptoms thing sucks across the boards, but it sounds like you're seeking and have found some help and this certainly must be a postive amongst all our pain and fear, and any resistence or contempt at times.

Tsalagi, hope you find and accept all the help you may need, while asserting yourself and getting through logistics.

My best,

Hope

 

[lsully]

Hey your not alone, awake and supine is not a good thing for me either knock me out or let me up, I stopped going to all my DR's can't handle the stress of it all. Good luck mate. Luke.

 

[cragger65]

I know just how bewildering everything is with a head injury, I had one myself. My paranoia, my inability to trust people, really really got to me. Not to mention that with insurance involved, you never know who's on your side. Was it a car accident, hon??

 

[2quilt]

I had a PET scan once for migraines, and they didn't hold me down at all. But I know they gave me too much radiation because my skin on my forehead bubbled up and turned beet red. Every part of the top half of my head was bubbled up and I got a rash.

If you have to get any tests done like PET scans or MRI's or CT scans again, demand sedation; there's no reason to put you through hell. How do they expect you to hold your head still when they restrain your arms? The first natural thing to do is fight!

Can you get a different provider before she ruins it with your new therapist? I had a bad one too once, who never took notes while I was talking to her, and didn't dictate our session, from memory, until much later, and you guessed it, she got my facts confused with those of other patients she saw that day and now those false notes are part of my permanent record. I guess if you can't get her out of your treatment team at least you can complain to your new therapist to discount or eliminate the bad provider's notes since she thinks she knows you after 5 whole minutes of meeting you for the first time. Geez. And we have to pay the bad ones too.

 

[sallysellsseashells]

I've had to deal with this too 2quilt: false records...

... I don't have time to have them changed back to the truth.

My old councellor believed that my best friend and my boyfriend were getting hot together... how did she get that out of: he raped me and she tried to stab me (they were two completely separate incidents... and they hate each other).

 

[twodogen]

understand

Tsalagi,
ask for a copy of your neuropsych testing then all you have to do is copy that to give to medical staff that you trust. I understand the head injuries also, but according to my neuropsych I don't have problems. So what's causing all the migraines since 1995? I cried too and am not a crier at all period, but did cry after driving home from my brother's house for Christmas Eve and Christmas day (my therapist recently called him and gave him info that I would never give him on my own). I wish my house had a walk in cooler where I could go and scream in order not to be heard.