Yeah I get you with the "my body" is suffering anxiety but my brain is oh its a lovely sunny day. So it also made sense to me when I learned that about chronic anxiety and sleeping heartrate. It also explains why people with anxiety wake up tired.A fitness tracker is a great idea! I've never been afraid of a heart attack, but the heart rate trackers they have on the tread mills are really bad. My heart rate usually gets down quite easily after cardio, which shows me that I am in fact quite fit. The problem is not even during cardio. I usually feel great and fit while running, but then afterwards I get brainfog and feel extremely tired.
I'm getting lots of tests done atm because of my PCOS. I have very high testosterone levels but I don't have any of the other PCOS indicators and the specialist told me that it's a mistery why I have it in the first place. Anyway, my husband said something interesting: that with that much testosterone, it's like I'm constantly doped and maybe don't feel that I'm overexerting myself when working out, which obviously isn't healthy.
I'll make sure to get a tracker in any case.
Interesting about the heart rate at night! That makes sense... it's what I meant with it not being "normal" anxiety, as in the anxiety you can clearly feel since it's also in your mind. I mean, PTSD shows up in scans - so it's not surprising that it must be somewhere in the body and haunt us when we least expect it.
Talk with your GP for a referral. They’re craaaaaaazy common, used to both diagnose many many things, as well as to confirm details about existing diagnoses, and very useful.No, not yet... how does that work?
Oh wow! That sounds only slightly frightening!Talk with your GP for a referral. They’re craaaaaaazy common, used to both diagnose many many things, as well as to confirm details about existing diagnoses, and very useful.
Basically? You’re hooked up to a robot-suit-thing (think bedecked in rainbow wires, not TinMan/Dahleks) that monitors your …everything… as you’re preparing to sleep, sleeping, and waking up.
- Most of the time they’re just an overnight, 7pm to 7am, kind of thing… in something more like a hotel room than a hospital room.
- Sometimes, if they’re looking for something specific (that comes with portable devices to measure that thing) they send you home with “gear”… but the first one is nearly always in clinic. Because they’re looking at everything.
I once spent a month in a sleep clinic because the average/normal sleep study I did produced some wacky results, so they asked if ai’d mind staying on? So it became a weekend, then week, then month. That’s being PART OF a sleep study / part of their research; rather than HAVING a sleep study done, where they’re studying your sleep (and heart/lungs/brain/etc.). Insomnia is no worries, as that still provides a whole helluva lotta useful data/numbers for them, although if you don’t sleep at all they might book you for a 24-72hr sleep study, to see what happens when you finally do sleep -as well as- what’s happening when you’re trying to sleep but cannot.
If you’re in Western Europe, they’re very common, most hospitals -especially in major cities- have either sleep clinics or sleep labs in respiratory* clinics; Eastern Europe, not so much! So there is a lot of “medical tourism” into Germany, France, Switzerland, UK, Finland, Belgium, etc. from the Baltic, Balkan, former Soviet bloc, etc.I'll see if they do that in my country as well... From what I've heard I feel like people are much more open towards things like that - doing the effort to really check how someone's doing, testing alternative treatment methods etc. in the US.
That's crazy!If you’re in Western Europe, they’re very common, most hospitals -especially in major cities- have either sleep clinics or sleep labs in respiratory* clinics; Eastern Europe, not so much! So there is a lot of “medical tourism” into Germany, France, Switzerland, UK, Finland, Belgium, etc. from the Baltic, Balkan, former Soviet bloc, etc.
* Roughly 175 million Europeans have obstructive sleep apnea, according to an presented by ResMed at the European Respiratory Society's (ERS) annual ERS Congress in Paris
Best of luck!
Have you had a tilt table test or otherwise been assessed for postural orthostatic tachycardia syndrome (POTS)? It is a form of dysautonomia (autonomic neuropathy/dysfunction of the autonomic nervous system) that is often missed by cardiologists and neurologists, but awareness has been increasing due to its association with COVID. The diagnostic criteria can be found at dysautonomia.org and the American College of Cardiology, and is essentially an increase in heart rate of at least 30 bpm (or more than 120 bpm) when transitioning from lying to standing.
There is evidence that POTS is an autoimmune condition as patients have been found to have autoantibodies against specific nervous system receptors. Basically, the autonomic nervous system (fight/flight) cannot function properly and get the blood vessels to pump blood back up to the heart and brain, so the heart beats faster to compensate.
Given the research into childhood trauma and its association with autoimmune diseases in adulthood and other research on PTSD and autonomic dysfunction, it would make sense for it to be possible that there is overlap in these patient populations.
More importantly, POTS is often misdiagnosed as anxiety. One study showed that when mental anxiety was measured independently from physical anxiety, POTS patients actually scored lower (!) on mental anxiety than the non-POTS patients. But they physically present as more anxious due to a dysfunctional autonomic nervous system.
Basically, what I'm trying to say is that if meditation, therapy, and other stress reduction techniques are not working, this may not be in your mind, and you may want to be assessed for autonomic dysfunction, specifically POTS.
I was misdiagnosed for a long time as we assumed my issues were all PTSD related and more controllable in my head, and many doctors just didn't have the awareness to assess and diagnose me properly and/or were misogynistic. My head got a lot better and even during periods where my PTSD scores were consistently low (remission), I still was very ill with POTS symptoms, including the tachycardia for which the condition is named.
Just posted this reply to another thread, and thought it fit here as well. Your symptoms sound a lot like my own! I had the coldness and chest pain and everything.
I have POTS, and I also have a mitral valve prolapse with mild regurgitation. I have had soooo many traumatic doctors appointments and ER visits, and I know how it is. Keep advocating for yourself. Take breaks, and join online support groups for chronic illness (specific or not specific) and keep going. You are not alone. I know how depressing and horrible this is. The health system can do a number on your head.
If you have not already and I were you, I would ask for a tilt table test and the ability to read the report myself (I have seen in my POTS support groups that many doctors don't seem to understand the diagnostic criteria even though it is quite explicit as written by the American College of Cardiology).
You can also do a preliminary test at home: Lay down for 10 minutes. Take your heart rate. Stand up. Take your heart rate. Ideally do this with a pulse oximeter or fitness watch so that you can see how the heart rate fluctuates, and take photos. If your heart rate goes up by 30bpm or more or is 120bpm or higher when you go from lying to standing, show this to the doctor with a print-out of the POTS diagnostic criteria, and ask for a tilt table test or to be tested by them in the office (same as at home, but with blood pressure monitoring too).
Also see if your feet and/or hands tend to turn red or purple when standing (e.g., when you get out of the warm or hot shower, what color are your feet? for many of us we feel like a shower is a marathon and have to lay down after, and our feet are purple from blood pooling).
Regardless of what is going on, I believe you. Keep advocating for yourself, and keep going. You are not alone.
Also, I saw that you mentioned that you had COVID, and POTS can be a manifestation of long-COVID. So you have even more cause to get tested for it, in my opinion.
If you feel your doctors aren’t treating your heart symptoms seriously because of your PTSD condition, isn’t the easy solution to see another provider and not tell them of the PTSD diagnosis? Personally only my regular physician and therapist know and if I felt my regular physician was in anyway holding it against me I’d find a different doctor and not tell them about it. Can you see a heart doctor without a referral to one? How could you be seen by someone who doesn’t know your mental health status and therefore couldn’t decide that it’s the reason for your complaint?
I am so glad you are seeing a cardiologist soon! Make sure that you read your own tilt test results (the numbers, not just the conclusions), because many patients in my support groups have doctors who for whatever reason do not understand the diagnostic criteria and told them the results were normal when they had POTS. I am not sure the source of the confusion but it seems to be that they confuse it with other forms of orthostatic intolerance, such as orthostatic hypotension, which it is not.I'm starting to feel a bit anxious about the whole thing now... before I wasn't anxious at all - despite the heart palpitations at night.
I don't want to change anything now or make a drama out of nothing so close to the cardiologist appointment.