I am supposed to be better after 12 weeks?

[Fadeaway]

38 this month so within the age range, but they told me just a few weeks ago no. I just have very high prolactin due to a prolactin secreting tumor, estrogen dominance and like no progesterone.

I would go somewhere else but it took forever to get in here and now I am afraid if I just stop going they will have me hospitalized against my will.

 

[EveHarrington]

12 meds in 10 weeks is waaaaaay too much! Are you coming of them so fast because of side effects? What does your genetic test say would be best for you? (IIRC you’ve had one done.) Have you tried these meds?

 

[Gs172003]

In my state unless you are a danger to yourself or someone else they can't hold you more than 24 hours once you are an adult. You have a right to get the right health care and it sounds like they are just playing Guinea pig to me. But I'm no expert..

 

[Fadeaway]

I have shown my genetic test to my psychiatrist and he knows it pretty much says stay away from all psych meds because I don't have the enzymes to processes them. My personal opinion is I would do best on what I was on previously with a small allotment of ativan for panic attacks.. but they are dead set against the hydroxyzine again, for some reason that is beyond my comprehension.

 

[Fadeaway]

@Zoogal I know, but being restrained against my will even if it is only for 24 hours sends me into severe panic I am guessing because of being locked up as a kid. Plus associating hospitals with death. The lack of freedom to do some of my coping skills. Even in the e.r. or a dr.s waiting room when I feel like i can't just get up and leave I freak out. Knowing I can leave AMA is what keeps me sane in the E.R.

 

[EveHarrington]

Are you taking methylfolate?

My take on the genetic testing is that there are categories which indicate we may need more or less of a med because of the genes we have. In addition, it tells us if we have the MTHFR gene mutation which indicates if we need methylfolate supplements, as taking methylfolate can/will help with symptoms.

 

[Gs172003]

@Zoogal I know, but being restrained against my will even if it is only for 24 hour...

Oh honey I understand that. I don't so the whole "feeling trapped" thing myself.

 

[Fadeaway]

Yes, I am taking methylfolate and methylcobalamin. That is the one good thing I can say about my psychiatrist is he had a lot of knowledge regarding the MFTHR gene. I had to do a low climb though because I wasn't sure if it was contributing to the nausea since he had me start at super high does of 900mg when I was on 400mcg before seeing him.

 

[EveHarrington]

My nurse practitioner and doctor both said the recommended dose is 15mg. I still need to reorder from Amazon as my last package arrived damaged. I hope they still carry the stuff without glycine. I am going to taper up as well.

 

[blackemerald1]

Can you get a second opinion without dumping your current drs?
I reckon you have been trialled on too many drug's too fast & they have no idea what they are really doing.

Professionals should know when someone is puking & in pain what a 'expression' of speech is! Good grief!

12 week's to get better or be committed.. what a bunch of quack's?!

Even when I don't respond or stay silent... ppl think I am angry so lots of things get misinterpreted. Most of the time I'm not able to process what was said because I have a disability!

Autism??? What in the world are they thinking?

Absolutely recommend a 2nd opinion!

 

[Deleted member 541]

@Fadeaway You seriously need a second opinion and I would walk away from all antidepressants that they are pushing down your throat at this point. I would put both feet down and say, “NO MORE”. You have the RIGHT to do this. It’s your body your life. I would feel like a f*cking guinea pig and not be too happy about it.

The last time I was in the Psych ward for a VERY serious suicide attempt, where I was in intensive care for 4 days first, then private room for 4 days, then the psych ward for 8 days..... I fought the shrink and every other councilor about putting me on ANY med, antidepressants included. I stood my ground, I argued, debated and flat out said NO!!!! In the end the psychiatrist, whom I had great respect for, admitted that antidepressants only cover up symptoms, and they basically don’t do anything for people with PTSD,,,,,,, Something we had argued about all week, with me telling him that......

It’s your body, start demanding them to treat you with some respect in that you know what’s better for you, than they do.....

 

[Abstract]

This may not be relevant but just throwing it out there that vomiting can be related to the prolactinoma, usually a reaction to the medication given for this. They often have an effect on the digestive tract. The hormonal imbalance from this will be effecting your mood and they need to take this into account. Plus take into account not only that you are feeling unwell but the understandable distress experienced from finding out you essentially have a brain tumour. Its not like having a stubbed toe.

I think I would write a letter, in point form, which states:
Any new diagnoses needs to be done when you aren't on a roller coaster ride of med changes screwing with your head and body.
Aren't in a phase trying to come to terms with a serious health issue.
Aren't presently very symptomatic with PTSD and you insist all they analyse is seen through the lens of PTSD first.
That your trauma is the fundamental issue and it is being ignored.
That being hospitalized against your will will make your PTSD symptoms worse and that is your main difficulty.
That you insist on the right to have a second opinion before any new diagnoses and not when in the above state.

Being significantly depressed and exhausted can give you a flat effect. Its not only spectrum disorders. Good luck.