I Have Reached Acceptance Of My Situation At Long Last.

[Spiderallis]

Oh Gizmo, it's so beautiful to see you handling such a hard thing this well. You're doing a great job, have and many hugs as you'd like ((((((((((((((((((((((GIZMO)))))))))))))))))))))))))))))))))))))

My family sort of shielded me from the details of how Gram got into a home. Medicare has different rules if the patient is in a hospital. I know Gram went from the hospital to a care home without nearly as much trouble as moving there from her house. She's in the end stages of alzheimers, but doing far better in the care home than she was in her own house. Hospice schedules a planning meeting every six months to make sure the person needs hospice care, but they don't say "Time's up" and walk away. It's just a bit of paperwork to continue with the hospice program if someone needs that type of care. Medicare makes it sound more difficult than it really is. I'm not sure how to find a patient advocate, but they can be a blessing in trying to navigate how things work.

 

[Philippa]

Big turning point here. I hope you can make time to also take care of yourself and treat yourself amongst all this. Your husband is very lucky to have you.

Now that you have found this new acceptance, I'm sure it will take one load off at least. Struggling with it on top of having to deal with the reality I'm sure was not an easy place to be in...so now you are stronger and can give it your very best, and knowing you also have our support.

 

[ms spock]

It is a long and arduous journey that is for sure.

Really take care of yourself gizmo.

 

[Deleted member 12723]

Well I talked to a Medicare advocate and there are services available. I do not know why members services lied to me.

I have to make an appointment today for him to see his family doctor and get permission for home health services. I am nervous about taking this step but I have to see what is available for me and my husband.

I am back to acceptance again, having my daughter going through her trauma and filing for a permanent restraining order and filing for divorce fills me with peace.

I feel up to the challenge of my husbands disease. He is a wonderful man. He deserves so much good.

When the trauma with my daughter hit us, he got agitated and confused and focused on the savings account and some miscellaneous papers I had to try to help him.

Now that things have calmned down he has his routine again. He does really well with his routine. He is having a so so day. But he managed to open the curtains. Today I have to figure out how his shaver works so he can shave. He could not get them to work yesterday and just gave up. So I figure with a fresh start we will try again.

He needs his routine. I had a break last Saturday and I went to my daughters house alone. He stayed home because he was not feeling good.
.
Yesterday he wanted to get his hair cut so we went to a place and I got a shampoo and a new haircut too that I really like. It is very short and should be very easy to take care of. He started to feel sick so we went and got frappes and went home.

He loves the news. I am so glad that I found something that holds his interest. He does not do anything but take care of himself.

I am doing so much better now. I am nervous about having strangers in my home. I will get used to it. I am hoping to get a home health aide that will stay with him while I get out of the house.

I am going over to my daughters house on Valentines Day to drop off some treats. I will get my nails done this week, and I will go to my daughters house on Saturday. I am hoping that he will stay home by himself. I give him his cell phone by him and I call him to check up on him. It is a system that works pretty good.

 

[safenow]

I've had hospice care a few times. This time, it has been about 9 months. About the time they think I can't make it another week, I get better. LOL. I love the services they provide. I'm sure you will as well.

 

[Finding Shawna]

((((gizmo))))

 

[ms spock]

Once you have some respite care in place gizmo you won't know yourself. Having regular breaks will re-energise you.

My partner, B, is at home having his weekly Wednesday break whilst his Dad is in day respite care. He is doing things for him and having a break with some time in the house for himself. He also has some in house home care on Mondays. He has two hours that he doesn't have to worry about his Dad.

 

[Deleted member 12723]

I believe you Ms Spock. The brief interludes that I have already experienced has lifted my spirits already. It is very hard to be the only one twenty four seven.

I made the doctor appointment and he will see his doctor next week. He has two doctor appointments. One with a neurologist and one with his family doctor.

I will find out what I have available to me. He will not go to a day care because he does not feel good. I do not know how he will handle it having a stranger in the house. I will have to wait and see.

 

[Sailorgal]

(((Gizmo)))

I'm glad you found some options. Sadly, often times we don't get consistent and correct information when we call for more info! It's wonderful you are moving forward and keeping strong. :)

Miss you my friend!

 

[Deleted member 12723]

Sailorgal, I miss you too, hope all is going very good for you. I miss our chats on the phone.