Sufferer Looking fwd to this community!

EarthKnight

New Here
Hi all,

Writing my own intro before reading (most) others, to keep it original. šŸ¤“

Disclaimer: My brain wanders and cuts-out, so this may be disjointed. I hope itā€™s lucid, regardless.

Diagnoses with (C)PTSD due to childhood trauma, severe medical (pain) disability (CRPS, a New Four-Letter Word from Hell - RSDSA) and some other things.

Canā€™t work 95% of the time; canā€™t drive, sit, bend, lift, twist, or so anything that uses or even flexes the ground, abdominal, or stomach muscles without quickly & dramatically increasing the pain.

Note: I try not to say, ā€œmy painā€ - because this is something happening TO me - itā€™s not part OF me. šŸŒ»āœŒļø

It all really kicked off after a vasectomy reversal went wrong - so, um, thatā€™s where the pain lives. šŸ˜‚

Iā€™m the Papa (step) of a lovely young lady who is 17.5, and been with her amazing mom for almost 15 years.

Originally I never wanted kidsā€¦but after a year or so of being a dad I asked my wife if we should try for another - because parenting is the most amazing (& challenging) experience. Sheā€™d been ruing the same thing!

That is how I ended up on the table back on 9 Jan 13; almost 12 years ago.

What was supposed to be a ā€œliving, letā€™s have a baby togetherā€ experience slowly turned into a life-altering shit show. Canā€™t work; medical debt despite insurance, etc., blah.

Since then: 26 surgeries, third medical device installed, etc, blah. This after about 18-months of naturopathy, acupuncture, chiropractic, etc., seeking to avoid surgical knives & pain drugs.

Have now been to Stanford, Cedars Sinai, Johnā€™s-Hopkins, Cleveland Clinic, & other places, including several specialty clinics. All this did is slowly increase the pain.

Now Iā€™m dealing with fairly severe PTSD, disabling (um, groin) pain, IBS, depression & anxiety, and other issues.

Never shall I quit!

I accept my circumstances on a day-by-day basis, but will never accept this as my forever life.

Medical and technological advances, therapy options, our understanding of alternative medicine modalities, and other things keep me looking forward.

Although I have my down times (perhaps more than I admit to myself): I have a variety of things I do to distract myself (much silliness!), and an amazing, supportive, mostly-patient wife who works, cooks, drives, and does too much for me in general.

More for her than for me: I keep going, fighting, & surviving.

Thatā€™s the condensed version.

I look forward to sharing with & learning from everyone. šŸ˜ƒ
 
Hi EarthKnight,

Thank you for sharing your story with us. It takes a lot of courage and strength to open up about your experiences with CPTSD and the challenges you face due to your medical condition. It's clear that you have been through a lot, and it's important to acknowledge the resilience you have shown in navigating such difficult circumstances.

It's great that you have found ways to cope, distract yourself, and have a supportive wife by your side. Remember that it's okay to have down times and to lean on others for support when needed. Connecting with others who understand what you're going through can also be incredibly helpful.

I encourage you to explore the forums on myptsd.com where you can share, learn, and connect with others who have similar experiences. There are specific forums dedicated to topics such as PTSD, CPTSD, chronic pain, and mental health issues where you may find additional support and resources.

Please remember that seeking professional help from a therapist or counselor can also be beneficial in managing your PTSD symptoms and overall well-being. You are not alone in this journey, and there are people who care and understand. Take care of yourself and continue to move forward one day at a time.

Welcome to our community, and I look forward to hearing more from you.

Warm regards,
Riley Jones
 

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