Sufferer Need Help Desperately. Brain Trauma Memory Loss Need Support.

[Deleted member 25711]

I've recently been diagnosed with PTSD as a result of a brain injury. The brain trauma was caused my grand mal seizures, falls during the night due to contraindicated medications for migraine disease and depression. Two years ago we started noticing my memory was suffering. My memory is so bad now I've lost memories of my children growing up. I am constantly being triggered about the loss of memory. Photos traumatize me. I'm engaging in "avoidance" behavior and am becoming agoraphobic. My spouse minimizes this trauma despite full knowledge of the gravity of my trauma explained to him by my medical providers.

I'm angry at the medical professionals who did not coordinate my care. It didn't have to be. I need hope. Hope that I can participate in life again without dwelling and panicking. Has anyone been there? Words of support would help. Please no pity.

 

[It's all my fault]

So sorry of what your going through. My son also had a brain injury and is having memory loss. He is seeing a speech therapist to helping with this along with organization. I would suggest getting a neuropsych evaluation to pinpoint which part of the brain is effected so treatment can be tailored to you. An excellent resource is the brain association of America. They have great links. Wish you the best.

 

[DarrinTBradley]

I'm so saddened by your struggles, I definitely agree with the previous comment concerning a Neuro - psychological evaluation. I've had several Severe TBI's and I certainly appreciate the fact that I have had a few full Neuro - psychological evaluations along with the MMPI's. I can say that I came from having a GCS of 3-4 to a 5, after being in a month long coma in 2009. I have had a recent full Neuro - psychological evaluation, but have not had a follow up appointment.

If I were you, I would definitely have one administered by the most notable Psychiatrist I could find, or be referred to. I also want to encourage you to give your life to God and follow Jesus Christ with all your heart, if you have not yet been saved by Grace through Faith in Jesus. I will be praying for you; lifting you up in Jesus name, for restoration of your whole body. In prayer I will pray that PTSD will not dominate, nor dictate your life; that you will once again become able to completely be in control of your life. God Bless You In Jesus Name! Take care, friend!

 

[Nicolette]

I also want to encourage you to give your life to God and follow Jesus Christ

Please be mindful of not pushing your beliefs onto another as religion is a very sensitive topic, with a cross section of people on the forum with differing views, and the above comes close to preaching. I appreciate your goodwill and intentions and hope the thread can continue on track.

Thank you :)

 

[HFA_Cat]

My memory took a radical plunge due to severe trauma-induced PTSD. I went through 2 weeks of 'brain shock' during which I'd write notes and forget how to read them.

Believe it or not, it is sort of passing (14 years of lousy memory, a lot of that prior to the Bad Thing.) Now, perhaps because of my therapist, my memory is improving.

The brain is still the wild frontier of science. It accomplishes strange, almost magical things. After two weeks of not functioning at all, almost, mine began to improve for the first time in SO many years. EMDR helped me... maybe it would help you also?

 

[DarrinTBradley]

Please be mindful of not pushing your beliefs onto another as religion is a very sensitive topic

I would like to apologize first and foremost for my comment seeming to come across as nearly preaching and pushing my beliefs onto another. II did not intend for that effect; I would also like to simply say that was my very first response in this forum arena. I will be more considerate of others beliefs, because I myself as a Christian do not believe in condemning others for their beliefs, regardless of what their belief structure may be. Thank you and have a Blessed Day!

 

[intothelight]

Hi Sunnyfan,

Welcome to the forum!

PTSD can have a negative effect on memory and other cognitive functions as can seizures, head injuries and medications. I don't know if you are under the care of a neurologist or a neuro-psychologist, but they can provide some information about ways to improve memory. There is also information on this site about improving cognitive ability and how to manage stress and PTSD symptoms. I hope you find it beneficial.

Debbie