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Etns [external trigeminal nerve stimulation] to treat ptsd symptoms - anyone tried it?

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tontoe

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Saw a TV programme here in the UK last week which described two treatments being trialled at UCLA for PTSD symptoms. This is [a slightly cut-down version of] how they described it.

"One of these neuromodulation treatments is called transcranial magnetic stimulation, or TMS, and uses electromagnetic pulses to create small currents in parts of the brain. The treatment is administered in 40 minute sessions. Patients sit in a chair, where a specially designed magnet is positioned over the affected part of the brain that is targeted with short repetitive bursts of energy.

External trigeminal nerve stimulation, or eTNS, uses electrical stimulation is applied to a nerve called the trigeminal nerve which sits close under the skin in the forehead and runs directly into the brain. The treatment is so simple to administer that it can be done at home."

Full article at Trust me I'm a doctor : Could targeting networks in the brain help to alleviate the symptoms of PTSD?

They interviewed a Gulf War vet who reported big improvements in symptoms; reduced depression, startle response etc, and better sleep.

It sounds great; especially for someone like me who is incredibly intolerant to meds but who's making [slow] progress with a specialist therapist. Sounds like it would be a good support to the therapy.

I know, I know... it sounds too good to be true. In most cases I would dismiss it as Snake Oil, but it's research from an extremely reputable U.S. university.

I can buy a unit here in the UK for £650 [about 800 US Dollars] and a month's supply of the forehead patches costs £100 [about 125 dollars]. So it's not an insignificant investment.

I can't find much on the web about this, as search results heavily favour NeuroSigma [the manufacturer], who presumably pay for Search Engine Optimisation to get them up in the top results.

So... has anyone tried this? Has it worked for you?
 
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I was going to try TMS, but the clinic that did it moved 150 miles away, and it just wasn't doable to travel there every day, as the treatment requires.

It did sound too good to be true, and I was worried about being able to sit for 44 minutes and have my brain zapped. Plus, I get easily overstimulated anyway, and no one could tell me this wouldn't make that worse. But I've also heard from others that the effects of TMS aren't permanent, so if there are bad effects, they might not last.
 
I was going to try TMS, but the clinic that did it moved 150 miles away, and it just wasn't doable to trave...

Thanks @hodge . Totally understand your reluctance - I felt the same way about TMS.

It's pretty expensive [around 4000 USD] here in the UK and not covered by health insurance, and then you have to add travel costs & time.

Plus the places that offer it have v. little info on their sites.

It's the eTNS unit I'm interested in 'cos you can use it at home. But that's still around 1000 USD for the unit and a two month supply of electromagnetic patches...

However, I may take the plunge anyway. You can't take it [money that is] with you as they say :) Will report back [without links:D] if I do...
 
has anyone tried this? Has it worked for you?
Yes- I've had TMS, a few times now. And yes - it really did work for me.

I should probably just write an article about it for the site, so I can link to it when this comes up...

It really is non-invasive. There have been no reports of any negative side effects, aside from:
  • On the Neurostar machine: a brief headache that one can have for the first week while one is adjusting to the physical experience. I'd compare it to a woodpecker knocking on a point on your head.
  • On the Brainways machine: inadvertent stimulation of the trigeminal nerve during treatment, which is an unpleasant sensation, causing lock-jaw. It only occurs when the machine is 'on'
I don't know whether the UK has both machines.

The benefit of the Brainways is that the treatments are shorter - it only takes about 25 minutes to get through a full cycle. This is because they pulse a wider area, stronger, with less rest in-between.

The Neurostar is a much gentler process, and their protocols use a smaller target area - which keeps them from hitting the trigeminal nerve system.

It is the only thing that has ever put a dent in my suicidal ideation, specifically. It also helped with mood, where I've never found a drug that has. TMS, as far as I'm concerned, is a real benefit for those with treatment-resistant depression. I don't know that I'd feel confident recommending it for the depression that is associated with PTSD, on it's own - I think that aggressive trauma therapy is much more warranted. My diagnosis is MDD and PTSD, and I had my first TMS treatment before my PTSD presented itself/was diagnosed.

TENS machines have been around for a long time; I've personally never used one. I think if they were highly effective, they would have become a much more prominent technique. That doesn't mean that they don't work for people, just that (IMO), if your depression is severe, it's not worth the money. If what you are looking for is a little something to give a small potential boost to medication that is already working decently, or for those who are non-medicated and have minor depression and are looking for a non-pharmaceutical option, it could be worth trying.

It's pretty expensive [around 4000 USD] here in the UK and not covered by health insurance,
Yeah, this part sucks. The first time I did it, it wasn't covered. I was lucky to be going through a hospital that gave a very steep discount to people who were self-pay. Still, it was a lot. Insurance is now covering it in the US rather widely - as it becomes more and more recognized, hopefully it will be accepted by the NHS as a valid treatment. It really can be life-changing.

My disappointment was that it ultimately didn't last. The doc who was administering it to me had good explanation for that, based on his own research experience. What he wasn't sure of was whether if I continued to try it, it would eventually help me stabilize. So, that's the road I'm trying to go down. It is daunting, because of the time involved and all the paperwork. But I'd still rather that than ECT, which is the next option up in terms of strength and effectiveness.
 
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