• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

Fibro Axis something causes low cortisol from stress?

Status
Not open for further replies.

WhiteHatGirl

Bronze Member
I have been reading a lot around my Fibro and Cortisol issues and how they are tied to high stress...something about an Axis issue(maybe regulation control of the adrenals gets off-permanently after so much drama/trauma).

Do others have this as a diagnosis? I will keep pushing Dr.'s for adrenal comprehensive testing.
I am frustrated, most GP's don't seem to be interested in testing for adrenal damage/problems at all. It seems to be an up hill battle.
 
I also have fibromyalgia and chronic fatigue syndrome. It has been a monumental battle to get care from medical providers who generally don't want to do much but send me to pain management courses (been there, done that multiple times) and prescribe antidepressants (which I cannot take because they are too activating and cause massive upsurges in PTSD symptoms).

Fibromyalgia (and other chronic pain disorders) is now being looked at as a "centralized" pain issue, meaning that the pain is a result of issues with the central nervous system, and the signals it sends to pain processing centers in the brain. Cortisol and other stress-related hormones do exacerbate the pain and other fibro symptoms. People with centralized pain issues have nervous systems that are or can get stuck in hyperaroused mode, so the fight or flight hormones are constantly cycling, which exhausts the body and confuses the brain (the fatigue and fibro fog). This is why compassionate self-care and daily practice of stress reduction are critical, as well as psychotherapy to deal with trauma sequelae that throw the nervous system into chaos.

It IS important to insist on testing for the things that underlie the fibromyalgia because it can be co-morbid with other issues, or caused by other issues. Have they ruled out all the autoimmune diseases and have you had a complete thyroid workup and a full Lyme screen? Even if all those are okay, there are still things that hide in your system and can contribute to fibromyalgia symptoms (e.g., I finally got to an integrative medicine clinic and had a million blood tests that turned up a reactivated Epstein Barre virus and biotoxin exposure). I also finally strong-armed my doctor into initiating cardiac testing because I noticed my heartrate is wildly high when I'm not lying down. Something called POTS can cause fibro-like symptoms.

I have had similar dismissals with doctors telling me my adrenals are fine. There is a lot of hype out there about adrenal fatigue, some of which is probably true but medical docs only take the most serious cases seriously (like massive weight loss, etc). Once you get a fibro diagnosis, it seems like most docs just default to the standard treatments for it (exercise, SSRIs or SNRIs or Tricyclics, and stress- and pain-management skills).

If your current medical care isn't helping you get your symptoms under control, I encourage you to keep reading about fibromyalgia, chronic fatigue syndrome, etc. I let myself be persuaded that all my symptoms were mental health/stress related for far too long. Don't give up on yourself or bow to your physician if you're not getting better!
 
Do you mean the HPA axis? Hypothalamic–pituitary–adrenal is the long version. It is a finely tuned system and it wouldn’t surprise me that it gets out of whack when exposed to chronic stress and elevated cortisol. Sorry I can’t help beyond that.
 
I also have fibromyalgia and chronic fatigue syndrome. It has been a monumental battle to get care fro...
I am familiar with most of what you just said here. I have had 5 whiplash injuries of my neck. I have severe TRPS and fibrosis in upper body. And cannot yet get Dr.'s to correctly diagnose it. I've been Hashimotos for like 13 years now too.
I will beg my next GP if they can do more muscle enzyme tests or an actual MRI of the whole upper body to see the fibrosis so I can get a diagnosis that is just accurate. I'm filing for SSI, and I want to be able to add the dx. to the case soon.
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom