Dear Cyanide, Pegasus and Caroline
To answer the question on the last post, "all of the above and other".
Let me expand what I mean:
What I've learned the hard way is that some sufferers can not be expected to participate in relationships the way they once had. For some sufferers, the PTSD limits their ability to respond, react, or give back to the relationship in ways that they may have before. They need space, but then they suddenly return and make alot of demands, there are times when things seem normal and then times when everything is falling apart. There is nothing normal about being in a relationship with someone who has PTSD, and I know in my case I am now questioning whether this person isn't better off in his recovery if he did not have to deal with the normal stresses of being in a relationship. I realize that I can not expect him to meet many of my needs and that he is not capable of behaving "normally" in a relationship right now. Please note, I do not mean that carers should tolerate abuse or neglect because their sufferers are sick. Most carers, including myself walk the fine line of becoming enablers if not cautious.
NO amount of a carer understanding PTSD and trying to help will change the fact that some sufferers may not be able to fully participate in a relationship in a way that they feel good about. It must be very confusing for sufferers, especially if they were once fully functioning in the relationship area and now find themselves needy, unsure and uncertain of what they want. Remember that PTSD can actually change a person's brain chemistry.
I've also learned the hard way that too much focus on the sufferer and why they do what they do slowly drains the carer from themselves and from their own mental health. It's really devastating, but it's true. Many of us do not want to let go of our sufferers because we want to help, but sometimes letting go is the only hope. Spending lots of energy on trying to figure everything out can lead to serious inbalance for carers.
For example, I have spent the last 11 months trying to do everything I can to control the environment around my sufferer so that he won't trigger and so he won't have unnecessary stress. It's nice that I've tried to do this, but with all my effort and hard work, guess what? He still triggers. I have tried to make myself into the "perfect" girlfriend in hopes that it would help him and it hasn't helped him at all. After months of therapy and some real progress, he had a major relapse and now we are both back at square one. I doubt this is an uncommon experience.
Sufferers withdraw, or they get mean and cranky, or they go to dark places. Most often, it was going to happen anyway, it's part of the journey they are on, even if the journey includes therapy and a loving wonderful partner.
By all means stand by your sufferer, but more important than that, focus FIRST on your own needs and getting them met by other people in your life. Let my experience of trying SO hard for almost a year (by being patient, kind, understanding, creating the perfect environment, letting go, etc etc) and then having a huge incident blow up suddenly and quickly in front of my face be a lesson to everyone.
I tried everything but detaching and now because of what happened I have no choice.
My efforts to try to control some of this stuff and or try to figure it out were ultimately fruitless in stopping his triggers and I should have been taking better care of myself all along. What I need and what he can give me are not in balance. Now it's all up to me as to what to do next. I'm afraid to let go completely because I still have hope, but I realize that I haven't climbed the mountain with him yet, I've only gone up a little foothill and if I choose to stay with him, it's going to be a long, hard, and at times lonely climb to the top.
There are no quick fixes or easy answers to some of these questions as to why sufferers do what they do, so it's best to try to put your life first and learn how to store your energy. Allowing a sufferer to totally drive the relationship "bus" is probably not the best strategy for anyone, on the other hand a carer can not force the relationship issue either. In many cases, I think detaching with love is the only answer. Give the sufferer the reassurance that you love them, yes, but realize that you must live your life, sometimes without them, perhaps not forever with out them, but perhaps for times. Decide if that's what you want and can deal with.
Shoka