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How Does One Go About Getting A Diagnosis?

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Hatshepsut

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How does one go about getting a diagnosis? Do I have to go to a psychologist for like 6 months to get diagnosed or can I just make an appointment just for a diagnosis or psychological testing alone? And how do they go about figuring out if you have a particular diagnosis or not? I'm not sure as of this point if I want therapy, but I think I should at least get diagnosed first, so how do I do this? Should I just straight out call and say I want to be diagnosed or should I just make an appointment with a psychologist and in the first appointment tell them what I think I have and that I'd like a diagnosis...would that be rude? I don't want to be pushy or rude to the psychologist either but I know what I have so I don't want them to spend 6 months trying to figure out what they think I have when I already know what my issues are. Could someone please explain how all of this works and the best way to proceed?
 
In my case I pretty much knew but it is important to make sure by seeing a mental health professional. You can look up the DSM criteria if you're interested in knowing what they consider when diagnosing someone. I went to my family doctor and brought it up. He suspected it was PTSD, but referred me to the psychiatrist for diagnosis and possible med management. When I eventually got up the courage I also went into a psychologist and he also went through the criteria with me before starting therapy. I think he was just the type to make sure with all of his clients. I think you can just call and make an appointment saying you suspect something, or you could go to your family doc. I don't think there's any one way to do it.
 
In my experience my pdoc treats the symptoms rather than diagnosing He has know that I have had since 2010 that I suffer from nightmares........He wasn't sure what was causing all this until I got on the prazosin, Than once I started to notice that the nightmares where getting less violent I knew I had PTSD.....It was a revelation to what I went thru in 08. I was going thru a flashback of the psychosis than I obsessive OCD theme. Even tho they are both anxiety disorders. I realized that i was obsessing that I would go thru another spike like I did. I did suffer pure o OCD before I had the flashback which in turn made the theme switch.
 
The point of seeing a mental health professional, as @sonicwhite said, is to get treatment. The diagnosis is far less important, although you need it for insurance purposes, and such. Beyond that, the diagnosis is convenient and may suggest certain forms of treatment. But your individual situation is far, far more important in terms of treatment. What works for me may be detrimental to you.

That said, you can certainly set up appointments with one or more psychologists and get information. And they could give you a diagnosis after that first 45 minutes. Will it help? I don't think so. But the diagnosis alone will not tell you what treatment to get. Many of us have been in therapy for months and years and have tried various approaches with varying degrees of success.

This isn't a broken leg or a cavity we're talking about. It's not an x-ray. Treatment is not linear: diagnosis > treatment > happiness; its a lot more like pushing a rock up a hill everyday, only to watch it roll to the bottom every evening. Prepare for a long, tough journey.
 
It's a bare minimum of 2 appointments. 1 diagnostic, & 1 differential.
But it's often something spread out over several appointments.

Diagnostic varies, but it's not just looking at a checklist for 1 disorder. It's usually 500-1500 question test(s) that look at all the disorders in the DSM (or smaller tests that look at a suspected grouping of disorders), and then refine down to most likely &/or possibly present (disorders share symptoms). And then the T goes over the test (to further refine things down, rule out quirky answers, etc. These tests are designed to spot lying as well as minimizing, amongst other things, and there is always context: a person who just spent 6mo in the hospital may "test" as being possible hypochondriac, 2 seconds worth of interview rules that out, because it's natural/normal to be abnormally focused on health stuff, or may work in healthcare, or, or, or. Or a person from a faith that proscribes alcohol may mark that friends and family have told them to stop drinking, they drink too much, etc... When they drink 1/2 of a glass of wine twice a year. Those answers highlight possible alcoholic/alcohol abuse. That 2 seconds of "Oh. You're LDS/ Muslim/ etc." scratches that off the list), and there are some basic interview questions, as well as some pointed ones. After all of that... At that point you've got a pretty solid symptom set & a provisional diagnosis.

But it's only provisional, because you need a full med workup.

Differential tests are done through your GP. They include blood & urine tests (to look for everything from infection to malnutrition to hormonal imbalance, it's a lot of vials of blood), a general physical to look for things like injuries, tumors, sometimes scans of various kinds... a whole host of things.

Because everything psychological? Can have a physiological cause. What might present as schizoaffective disorder may "just" be sleep deprivation, or malnutrition, or dehydration, or a bad reaction to a medication (Just 4 of dozens of which cause hallucinations and a whole host of other psych symptoms). So you have to, have to, have to rule out a medical cause... Or contributory factors. Like, sure, sleep dep may be causing paranoia and hallucinations, but the sleep deprivation itself may be caused by nightmares (or paranoia and hallucinations ;) )

Diagnosis is a complicated thing. And IMO, correct diagnosis is vital , because the most effective treatments for different disorders are often 180 degrees different from each other!

Far too many people are misdiagnosed, and waste years and years treating the wrong disorder. It's especially sad when someone spends years in therapy, gets a new T who insists on that med work up, and come to find? They're allergic to their multivitamin, or their thyroid is out of whack, or they have an STD. And the problems they've spent years trying to treat? Solved with a pill. Taking one, or stopping one. Happens all the time. This is why so many "cures" for incurable disorders get flashed around. They never had the disorder to begin with.
 
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Whoops...

1) No. It's not rude. It's proactive and engaged.

2) As far as wording:

"Hi. I suspect I may have PTSD. Do you do diagnostic evaluations, and if so, what's you're procedure?"

Fair warning diagnostic appointments generally run between $500-$1000 if you're paying out of pocket, just on the psych side of it. Typically 3-6 hours in a block, or a couple 2-3 hour appointments. Insurance will often pay for therapy but not diagnostic appointments. It's something to ring them about ahead of time. Med side is usually covered by insurance as an annual "physical", so you don't have to pay for all the individual pieces, just the extra law work & scans.
 
As a dissenting voice here

Have you thought about why you want a diagnosis?

The other guys have covered the plus side, and there certainly are positives - but I suggest that you consider the possible negative sides too.

If you can pay for it, therapy is available without a formal diagnosis, a decent therapist should be able to work out what works for you and what doesn't without need for a formal diagnosis being written on a piece of paper.

So what might the costs of getting a diagnosis be (apart from the $$$$ you pay to the tricpsyclist)?

One might be a diagnosis which comes with stigma [unfairly] attached to it, appearing on your notes, as an example, some would claim/stereotype that people with BPD can be "manipulative" or "troublesome".

There may also be problems with doing certain types of work (I'm an engineer, I used to organize the blasting for quarries - I don't have a formal diagnosis, if I did, and it became widely known, I suspect that it would have caused some raised eyebrows amongst people in regulatory positions who want to have an easy life that doesn't involve them actually using their brains - it's often easier to say "no" than it is to make a reasoned assessment).

The same goes for some hobbies and keeping some possessions, even if you do use them for the constitutionally guaranteed hunting of wabbits... </sarc>

even if you assess that you won't be affected in the near future, there is no guarantee that having your name on a list wouldn't affect you in the slightly longer term future.

If you don't have the diagnosis, then there are no records which can be abused.

I must stress that it is an individual matter and choice, for you to assess and weigh up based on your own individual circumstances and aims, both short term and long term. There is no universal right answer. I'm offering this as info, not as an attempt to persuade you one way or another.
 
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Eh, I'd go with the "get evaluated" route instead of the "live in a world of paranoia and fear and wonder WTF is wrong with you indefinitely" route.

On the outset, people who are totally F'ed in the world of PTSD don't hesitate for a minute to get a formal diagnosis because we know its essential to getting the right treatment. If you're someone like the last poster who has the luxury of hiding it all away, I'd say that your symptoms are not as serious. No, I'm not comparing (GASP! a faux paus around here....) but truth be told, there are those of us who are more symptomatic and suffer more than others. (Its a fact, deal with it.)

You're in the USA, so no worries about having your guns taken away due to a PTSD diagnosis. The only thing that will take away gun rights FOR SOME is if you are sectioned (this is a state law and varies from state to state).

IMHO your health is more important than some stupid job, some stupid hobby, etc. Honestly, this paranoia shit grinds my gears as I've never seen someone so paranoid about a diagnosis as to advocate staying in the damn closet. Haven't we been silenced enough? Honestly @Anarchy, I'm surprised you're even on the forum as guess what? There is no privacy online.... You can be discovered here, too! Its bad enough that the rest of the world tells us to STFU, I don't think we need this crap from fellow sufferers. Maybe you should talk with @rightkindofme. She's out about it all and doesn't give a damn what anyone thinks. Yeah, I think she's got the right attitude.

Get a diagnosis. Otherwise you might just spend years here on a forum when you don't even have PTSD, thus wasting lots of your time when you could be getting proper treatment elsewhere. Yeah, what helps us hurts others, and vice versa (in terms of different mental health diagnosis')
 
Have you thought about why you want a diagnosis?
I am with you on this Anarchy.

Here in the UK the tide is turning away from diagnosis and towards treatment of 'distress' - in whatever form it presents. Because we do not generally have this need of a diagnostic label for insurance purposes we can take it or leave it. If having a label makes you feel better about the emotional distress you are in - then by all means seeks a diagnosis. However I think it is far more important to have the therapy than the diagnosis.

On a personal note I was diagnosed - I needed it for legal purposes. However it was given to me in writing - but has not been shared in writing with my GP. I like it that way. My GP has plenty of information about me from my Therapist - about the level of distress, the cause and the treatment and it is regularly updated. What I don't have is CPTSD plastered over my notes. When I saw the psychiatrist, he wrote back to the T with his opinion and treatment suggestions not the GP.

There are many people here on the forum, undiagnosed but with significant impairment in their daily functioning. They know that they suffered trauma and that is why they are struggling. Many of them are in therapy to help them deal with the situation and their emotions and feelings. Would spending money ( if they needed to do so) to get a diagnostic label make them feel any better? After all they have already found the forum and worked out what they are dealing with.
 
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Hi @Solara
I strongly suspect that there are very few situations in which there is only one course of action that can be taken to reach a given goal.

If we define our terms:
I'll make the assumption that the OP's "goal" is to reduce their symptoms to a manageable level, at which they can get on with life, work, play and interpersonal relationships.

To do that, requires both an assessment of what (I'll call it "proper function", I suppose it could equally be called "normality" or "good health") might consist of or look like.

and,

an assessment of how and where the OP's current situation differs from what ever that desired end point might consist of or look like.

I haven't written "feels like" because the only person who can "feel" it is the OP.

Implicit in that is some form of "evaluation"
Eh, I'd go with the "get evaluated" route instead of the "live in a world of paranoia and fear and wonder WTF is wrong with you indefinitely" route.
I'm not completely disagreeing with you.

What is an evaluation? and is it synonymous with "diagnosis"?

What follows is probably going vary from place to place. The received wisdom among posters who come to this site appears to be that "only a psychiatrist can make a diagnosis"

My own, very cynical take on that, is that that has more to do with job demarcation lines and restrictive practices (modern day guilds) than it has to do with finding out why someone doesn't feel like they are functioning in the way that they want to, and finding a route for them to get to a stage where they feel that they are functioning in a way that is more to their liking.

Individual psychiatrists vary widely in their outlook, however, if we can take the image presented in the DSM and ICD as defining some sort of a mainstream paradigm (I hope that I'm not constructing a straw man here in my attempts to keep this to a readable length); Then psychiatrists are looking at collections of behaviours and self reported feelings which generally fall onto a spectrum, and if they check the boxes, then a "disorder" is diagnosed. A large section of the current paradigm, is that these are due to "chemical imbalances in the brain" which can be "corrected" by swallowing very expensive pills that often have nasty side effects.

There are a huge number of criticisms of that;
  • dysfunctions are being defined without any reference to what correct function might look like, and by definition, most of those spectra pass through the undefined "normal".
  • The number of symptoms from a check list which is required to diagnose, has zero scientific basis - in the case of depression - the man who set the number later said "it felt about right" about the number required.
  • In the case of people with childhood trauma (many of us here) there are about eight or ten, overlapping "diagnoses" listed, all with the same symptoms.
  • The "chemical imbalance" has never been satisfactorily demonstrated.

There are some (the late Thomas Szasz was one well known example) who even from a highly respected level in the field of psychiatry (Szasz was a Professor of Psychiatry), reason that the entire medical model which psychiatry uses, is falsely medicalizing something which is not medical at all.

Away from the "medical model" and writing a "diagnosis" onto your medical records, where it may or may not result in adverse consequences for you.

There are other schools of thought, both within psychiatry and psychology, which can demonstrate at least as good an initial improvement in trials as the best published drug trials (we only rarely get to see the dud drugs trials, those which failled to demonstrate any statistically significant improvement), and usually a far better continuing improvement than the drugs - as they teach coping skills which drugs cannot teach. Contrary to the idea of a single diagnosed and medicatable "illness", those other methods, such as CBT, mindfulness, and the somatic techniques such a yoga, do not require a single "diagnosis" but can work on teaching us how to cope with the symptoms which we experience in the present. other techniques such as EMDR or EFT for flashbacks, again do not require a specific diagnosis to be used.

I, personally think that it is important to point out that there is no single path that is "right" for everyone.

Assessment and evaluation is not necessarily synonymous with "diagnosis" by a psychiatrist. and they need not result in something being written on your medical records, where it may be used or abused for the rest of your life, and perhaps beyond.

Psychiatry, even though it comprises many schools of thought, is just one career path and job demarcation within a much wider field of possible sources of understanding and possible help. There are others, at least as good and perhaps better.

Honestly [DLMURL="https://www.myptsd.com/c/members/28019/"]@Anarchy[/DLMURL], I'm surprised you're even on the forum as guess what? There is no privacy online.... You can be discovered here, too!
I could indeed be discovered here, but I rely on the relative incompetence of the state at finding insignificant needles, and the large size of the internet haystack.

however, it is certain that I would be discovered if it were written on my medical records. I am required to grant bureaucrats access to my medical records for several of the things which I do in connection with my work. If the information is not on my medical records, then it cannot be mis-used.

Paranoia is a strong term; I'm probably a little older than you (I'm round about a half century, give or take), certainly up until I was in my twenties, people were still being coercively detained and "treated" in psychiatric institutions (including in America) for being gay, and the united state was still funding coerced eugenic sterilization for "disorders" as trivial as being too short sighted to see the classroom black board, in Sweden.

I had some same sex relationships in my teens (when the legal age of "consent" here was 21, and, although it was long before I became sexually active, homosexual acts were criminal offences in Britain in my lifetime), I'm short sighted (and also need reading glasses -middle age sucks), and I have considerable investment in a skill set that before my symptoms took me down about five years ago, earned me very good money for things like rock blasting.

Even if having a diagnosis on my medical records wasn't going to cause me problems in the present (it would cause me problems in the present), there is absolutely no guarantee that that benign state of affairs would persist for ever.
 
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@Solara although I agree with you about getting the diagnosis I've noticed a general theme lately. You seem to point to everyone's feeling that differ with your own as them not suffering. They didn't do what you did, they don't see it as you do, they don't agree so they either don't have PTSD or they don't suffer as badly as yourself.
On the outset, people who are totally F'ed in the world of PTSD don't hesitate for a minute to get a formal diagnosis because we know its essential to getting the right treatment. If you're someone like the last poster who has the luxury of hiding it all away, I'd say that your symptoms are not as serious.

I disagree that people who hesitate in getting diagnosed are somehow not suffering as badly. In fact in many circumstances I'd say its the exact opposite.

If you're someone like the last poster who has the luxury of hiding it all away,

The "luxury"....let me ask you this have you ever hidden yours? Really hidden it from everyone? Absolutely everyone! It is in no way a "luxury". It's a chore. It's being constantly on edge. Yes it's a paranoia, and yes we've been silenced for too long...but there are many circumstances in which those sufferers hiding don't have the "luxury" of being as open as yourself. Ie. when there's two hungry mouths to feed, two children to clothe and provide for and the job is a necessity because there's no one else who's going to help them. When your whole life has been spent fighting for things as simple as the next meal or place to sleep many learn quick being "different" doesn't help. I'm not discrediting those who get through these things in different ways, but for myself and others I know with similar situations...its suffering to have to hide it because you have no other choice. Anyone who hasn't been there wouldn't know. Which is why I'm try to not be as quick to judge others level of suffering. I personally think there's suffering on both ends of the spectrum that the other end can't begin to understand.

I also agree with @Anarchy that the diagnosis, really, doesn't mean THAT much in the grand scheme of things. Although I'm sure my psych at the time had been listening to what I'd been telling him, and doing his own deductive reasoning for some time, the actual amount of time we spent talking about the diagnosis was about 15 minutes. He literally sat next to me with the DSM...and said these are the one's you've brought up in session, based on those you "qualify" for a PTSD diagnosis, and then went through the rest of the list with me to which I said either I had or hadn't experienced the others. As well as some questions to rule out other diagnosis' and why those were not fitting. And the world "qualify" bugs me, although I don't know why. 15 minutes on diagnosis and I've spent a years worth of sessions and still going on everything else.

Yes, I haven't been in therapy for long, but it also seems to me that even the psych's I've had really don't care much about the specific diagnosis. It is important in circumstances as far as the psych's specific understanding, but the actual treatment of symptoms and dysfunctions is what's important. A good psych is going to pull the information of what will be helpful and not helpful for the client from the therapy interaction. Yes the diagnosis might give them specific areas to look, but I think a good psych would end up there anyways. For example someone suffering a trauma who does not have PTSD would still probably benefit the same from some CBT regarding that trauma. The underlying dysfunction is the same.
 
I might have had a Dr & a mother for that matter who were brilliant in deducing things accurately & quickly, but fwiw the Dr could have been viewed as irresponsible, considering what little feedback or info he had from me directly, because I didn't disclose 1/10th of it, nor was honest. Maybe my mom filled him in, Idk.

Then again, I work in health care, you know what the #1 sign of a heart attack or stroke is (along with symptomology presenting)? Denying you are actually having one. So who knows?

Thank you @Samantha_38 , totally 'get it'. :hug:
 
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