Living In Pain And The Toll It Takes On The Mind

[ladee]

Very happy to hear something is finally working!
I don't understand with all the proof, that you are still being denied pain meds.
When you fell on the ice I can't imagine how hard you hit to cause so much damage. Just happy to hear you have had two remarkable days.
Cipro has crippled me for life. I already had issues with my knees. Got a UTI, which I have not had in over 20 years and they gave me Cipro. By day 5 I knew I was in trouble as I could hardly walk!. I three that Poison in the trash! It did damage that can't be undone or altered. I want to rage at the Dr sometimes. Its nothing I did. Or wasn't trying to take care of myself...it was a damned dangerous drug that should have been taken off the market.
I have successfully cut my pain meds in half since starting pain managment.
But my Dr knows on the days I work..I have to take more.
Like you I have arthritis all over from neck to ankles. Some ostieoarthritis in my back.
But I would be like @Lionheart777 , I would be self medicating if I couldn't get meds.
Some days, like today, I have stayed home. I hurt too bad to be civil in public. Its not their fault.
Just very happy you are finally getting some relief.
Sending gentle hugs so as not to hurt anything!

 

[mamachick]

ladee I did not know that you got pain from Cipro...I have been reading about that and think that I worsened severely after being on it 2 yrs ago. I have never recovered after bronchitis and being put on cipro and steroids but did not correlate it.

I am also very happy to hear that you have had a couple days with less pain, hope that this keeps up.

It is horrible when you feel to bad to expose yourself to others!

 

[ladee]

That stuff was pure poison to my damaged knees. I will never get better. Permanet damage..and it makes me so angry that so many damned Dr's don't have a clue!

 

[mamachick]

I am so sorry ladee. That is what I have been reading about. I already had many herniated discs and spurs and fibro and rotator cuff surgery, but it re tore during cipro treatment and now knee is bad and other stuff. Wish I would have known. I just have not been able to get any relief from pain. I know they say moving is better, but I am spending a lot of time in bed....just can't deal with it. It has been one thing after another for 10 years. Right now the fatigue is overwhelming and I think its due to constant pain.

The FDA sure does not do a very good job. It is now black boxed and some other brands removed. It was suppose to be used as last resort. Drs supposedly knew that but not the patients. Not right!

 

[Deleted member 541]

@brat17 Cipro can cause tendons to rupture, it can cause neuropathy, and it can cause muscle weakness. It's one of those drugs, it's very effective and yet dangerous to some people.

As far as section 8. We have a waiting list of over 3 yrs. I do have my name in for senior housing, but that list is a 2-3 yr wait too. So, I'm pretty much SOL. Plus.... My landlord hit the lottery for a million dollars and is putting the house up for sale. So, now I have the worry that if and when the place sells, the new owner will raise my rent. I can't afford to pay anymore than I already do, so I would have to move. I'm not stressing over this, but there is some worry.

@ladee I think the reason I can't get pain meds...... My history of suicide attempts. So I guess it's just die in pain....

 

[ladee]

I'm sorry @She Cat , that is asine to me. Like that is the only way to do it.
Covering thier own add as opposed to helping you.
I thought I was going to have a hard time getting pain meds because I'm an addict.
Maybe you need to move to Texas..they are much more humane here.
But hope you continue to feel better every day.
I understand.
Hugs my friend!

 

[Deleted member 541]

Pain clinic on Thursday, so I wonder what they will do. I'm betting nothing!!!!!

 

[ladee]

I don't see the point of them setting you up with this if they aren't going to give you something!
Of course easy for me to say. I haven't been given the runaround like you have.
Get your Dr's to give you printouts of all the xray and MRI results. That will help.
They are going to request them anyway. Just save having to wait another month.
Really hoping they listen to you!

 

[Deleted member 541]

@ladee In my area Berkshire county, the hospital and I would say about 95% off the drs, and most medical offices are all associated with one medical facility. Berkshire health systems. They are all linked electronically, so all a Dr has to do, is look up my medical history. Every Dr I've been to, is linked to this, including the main hospital. They will have access to any and all test, X-rays, MRI and all medical reports. They even know when I've had a script filled, if I haven't, what meds I am on, what pharmacy I use, how much, blah blah blah. So, there is nothing they don't know..... And I couldn' hide anything either, which I wouldn't. So, I've always been very upfront and honest, including my history of mental health and past suicide attempts. I'm not ashamed of any of it, it is what it is and I learned long ago, to accept that I'm nuts, and have attempted suicide. No different from being a drug addict, an alcoholic, or someone that self harms. Accept it, find a way to accept and move on.

I don't have much faith for getting any meds to help. Pain is back, not as bad as it has been, but it's there. Not quite ready to cut the leg off, but getting close again. I can tolerate the back pain, but the leg pain......... Can't handle it.

 

[ladee]

That's me @She Cat n I can live with the pain in my back, neck, wrists, handsn shoulders. The knee pain is about to send me over the edge! Constant. Pain meds atent touching it. So many times daily with peppermint and eucalyptus essential oil. Only thing that is giving me temporary relief.
But as you suggested on another thread..am going to check into "new knees".

 

[joeylittle]

No different from being a drug addict, an alcoholic, or someone that self harms. Accept it, find a way to accept and move on.

Is this why they won't give you opiods? (Just curious...and I know you might not be able to reply right now because of technical difficulties....)

 

[Deleted member 541]

@joeylittle I'm not sure exactly what you're asking.