More Stress To Deal With Concerning Health.

[Deleted member 541]

In the past 2 weeks I have been dealt a diagnosis of Central Diabetes Insipidus (having nothing to do with regular Diabetes) I was told it is a rare condition, and even rarer for an adult at age 55. Mine, they say is due to under developed Pituitary Gland, that finally gave out a few months ago. The treatment is medication. Ddavp. Doing well on the med, only problem so far has been weight gain......Like that was not going to happen!!!!

Yesterday, I saw my neurologist, regarding migraines, and told him my new diagnosis. His reply.... "Wendy, I am extremely suspicious of the cause, an under developed Pit Gland. This disease is usually seen in young children, and NOT in adults your age. I am going to review your MRI results to see if they possibly have missed a tumor." Spent a not so great night with stress once again...

This morning I had an appointment with my Nephrologist. My appointment was an hour, and we discussed ALL of my concerns. He mentioned that I seemed to be a very nervous person......I was thinking to myself, well DUH Sherlock, I may have a ****ing tumor growing in my brain, should I be excited about this???????

He read the comments made by the Radiologist that read my MRI, and he has concerns also. His are basically the same as my Neuro, doc. This is usually a disease of a very young child, not that of an adult.

So, I may have to have another MRI, if my Neuro asks for one, or I will have the one already scheduled in January. Needless to say, I am once again in stress mode. Wondering if there is a fricking tumor growing in my Pit. gland.

I'm also NOT happy that he has increased the Ddavp to 3 times a day, as my symptoms are not completely gone. Oh great, I get to gain more weight, and stress even more over that..........

On the way out of his office this morning, I asked him what his first clue was that I was a nervous person??? He just about pissed himself laughing, shook his head and left the room.......I guess I don't hide it as well as I think I do...:crazy:

All in all, NOT a good 2 days.....

 

[BethRSA]

Thinking of you, She Cat.

Glad you went back to the doc--not so glad about all the mystery in the diagnosis.

Hang in there.:Hug_emoticon:

 

[TLight]

Sorry She Cat.........we are thinking of you. Keep us updated.

 

[midi]

Hang in there!

 

[Seeking_Nirvana]

I'm sorry to hear this Wendy. I have a friend who has a tumor in her head (not sure of the location though) and she gets migraines too.

The doctors told her that she can live a normal life with a few occasional migraines from the tumor.

I guess what I'm trying to say is please try not to think the worst. I will say a prayer for your health.

Blessings!
Tammy

 

[cragger65]

Hey She Cat, we're all behind ya. I know it must be stressful as hell thinking about all this shit, so take extra good care of yourself, and treat yourself in any way you can. Hot bath, an ice cappacino... whatever feels soothing.

I'm surprised they didn't order an fMRI (functional MRI) which may show up other things in process, but I suppose if they are thinking it's a physical tumour their not going there yet.

All the best. You've helped me in the past, I hope I get the opportunity to lend some aid back to you.

take good care of yourself,
Dave

 

[pandora]

I am thinking about you and praying that they are wrong...that there is a solution!!!

 

[Deleted member 541]

Thanks everyone..

It's hard to remain optimist, when I feel like I am in limbo waiting till the next MRI...... I don't do well with not knowing. I am the type of person that needs to know everything, before I can properly deal with an issue....

I still have to call my Neuro sometime later in the week to see what he thinks after reading the hard copy of the MRI. Until then, I will try to remain as calm as I can, and to try and stay as positive as I can.....

 

[amethist]

Hi She Cat

Take care of yourself, I'm sorry to hear your still in limbo with all of this. I really hope it turns out better than you think.

Take it easy if you can.

Amethist.

 

[SunnyBrookFarm]

She Cat - I'm also sorry to hear your still in limbo - I am thinking of you and also truly hope every thing turns out ok.

 

[Deleted member 541]

Thanks Amethist and Sunny!!!!! Still have to call my Neuro later this week to see what he thinks about the MRI I had a couple of weeks ago.....

 

[Deleted member 541]

Finally some good news. No tumor!!!! The back portion of my Pituitary gland....... I actually don't have one, well at least nothing that they can see in the MRI. So under develpoed Pit gland is what has been agreed on by all of my Dr, with a follow up MRI in 6 months.

I can deal with the Diabetes Insipidus, just take 3 pills a day and I am good to go. Well, actually I won't go..LOL!!!!!!

This scare has taught me some lessons. Life is short, too short to let shit bog you down. Too short to fight the battles that rage within. I have apologized to some that I have hurt in the past, and asked for forgivness from others, and made peace with myself that I have done the best that I can do. It's up to the others to see if they can put things to rest or not. I have also learned that I am not afraid to die, and if I am ever faced with a life altering event again, I can deal with it, and stay sane in doing so.....