Thank you for this thread. It's been something I have been wondering about myself. I'm also in the UK. I see a private t. I have been wondering about diagnosis of C-PTSD (I know it doesn't officially exist) but I would probably fit what used to be called DDNOS. (Forget the new name). I wouldn't know how to go about getting a diagnosis as GP doesn't seem to understand. For me it's about having something official so I can 'believe myself' as I have blocked out the trauma. Also having something credible to be able to say to my family as I doubt I'll be believed by them. Even if they don't believe me I can say, well I have this diagnosis do something has happened.
-
We are a multilingual website again. Read the notice about this.
-
Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.
Official Diagnosis Of Ptsd - Good Idea?
- Post starter RedRose
- Start date
- Status
Hi Rainydaiz,
Family members denying, minimising and invalidating
Is often their way of making what they cannot handle, into something that is small enough that they can fit it into their "world".
It is also too big to fit into our worlds, which is why it breaks our worlds, and we need to build a new and bigger world that can accommodate it.
My limited experience of telling friends and family members has resulted in minimising and denial, coupled with the assumption that I am somehow disabled, and need " helping" but without being ask first...
Family members denying, minimising and invalidating
Is often their way of making what they cannot handle, into something that is small enough that they can fit it into their "world".
It is also too big to fit into our worlds, which is why it breaks our worlds, and we need to build a new and bigger world that can accommodate it.
My limited experience of telling friends and family members has resulted in minimising and denial, coupled with the assumption that I am somehow disabled, and need " helping" but without being ask first...
I needed another diagnosis for insurance & disability purposes.
Because apparently people 'heal' from PTSD. Dissociative issues were closer, since the doctors figured those are 'permanent enough' to require putting one on benefits. Still doesn't change what I've been in therapy for when I was in therapy, is PTSD.
Because apparently people 'heal' from PTSD. Dissociative issues were closer, since the doctors figured those are 'permanent enough' to require putting one on benefits. Still doesn't change what I've been in therapy for when I was in therapy, is PTSD.
Last edited:
I'm doubtful that non-medical/non-researchers family would understand something so complex, if professionals are struggling with it.
It is not your job to prove your history or struggles to them; you keep yourself as well as you can, they can tag along or they won't be able, but none of that is your responsibility in my view.
Thank you Anarchy
woundedmind
Bronze Member
I think you need the diagnosis that gets you the proper treatment. Its one thing if a mental health professional puts one thing and treats you for another but if care gets transferred without any consulting with your current doctor or what-have-you, you may have to start all over again if good documentation of what goes on in your treatment and why there is a disparity in the "official" diagnosis in your chart.
I believe in honesty is the best policy, screw what anyone else thinks - but I also recognize that not everyone needs to know your diagnoses, you're entitled to some privacy. DDNOS from what I understand is hard to get from some doctors, they have to witness the dissociation themselves rather than hear of it. Some practitioners have no experience whatsoever with making that diagnosis and more comfortable with other diagnoses.
There is poor inter-rater reliability when it comes to many different diagnoses especially when patients could qualify for several comorbid conditions (conditions often found together).
I believe in honesty is the best policy, screw what anyone else thinks - but I also recognize that not everyone needs to know your diagnoses, you're entitled to some privacy. DDNOS from what I understand is hard to get from some doctors, they have to witness the dissociation themselves rather than hear of it. Some practitioners have no experience whatsoever with making that diagnosis and more comfortable with other diagnoses.
There is poor inter-rater reliability when it comes to many different diagnoses especially when patients could qualify for several comorbid conditions (conditions often found together).
- Post starter
- #21
Hullo everybody, thanks very much for all the replies :)
Essentially it's just as Rainydaiz says above, for me. I can entirely block out the trauma, in part because it was primarily a result of narcissistic abuse. I wouldn't be ashamed of having a diagnosis of (c-)PTSD, it would actually probably be very useful to me in many ways. Considering I've been making reasonably good progress so far without a diagnosis, I really was just enquiring as to whether anyone had experienced any substantial negative sides to the diagnosis. I'm aware there are prejudices in the medical field for example, I also wondered if it impacted on insurance prospects or even if it would affect having a driving license, things like that.
I will speak to my therapist again and see whether I fit the criteria for full diagnosis, or if it's more that I fit the symptoms but wouldn't perhaps be fully diagnosable. I think for me, it would validate that something actually did happen at all, and it may even be a safeguard against returning to that situation during a period of dissociation/amnesia if pressure and manipulation to do so were exerted. It would also, as woundedmind pointed out, make sense for any future treatment were it needed at any point. Especially since during times of high distress I can seriously struggle to articulate what the hell is going on, if I could point at a diagnosis at least we'd be on the right track!
Essentially it's just as Rainydaiz says above, for me. I can entirely block out the trauma, in part because it was primarily a result of narcissistic abuse. I wouldn't be ashamed of having a diagnosis of (c-)PTSD, it would actually probably be very useful to me in many ways. Considering I've been making reasonably good progress so far without a diagnosis, I really was just enquiring as to whether anyone had experienced any substantial negative sides to the diagnosis. I'm aware there are prejudices in the medical field for example, I also wondered if it impacted on insurance prospects or even if it would affect having a driving license, things like that.
I will speak to my therapist again and see whether I fit the criteria for full diagnosis, or if it's more that I fit the symptoms but wouldn't perhaps be fully diagnosable. I think for me, it would validate that something actually did happen at all, and it may even be a safeguard against returning to that situation during a period of dissociation/amnesia if pressure and manipulation to do so were exerted. It would also, as woundedmind pointed out, make sense for any future treatment were it needed at any point. Especially since during times of high distress I can seriously struggle to articulate what the hell is going on, if I could point at a diagnosis at least we'd be on the right track!
KwanYingirl
Diamond Member
@RedRose I did have a negative experience due to my PTSD. I got overexposed to darkroom chemicals at work and developed an allergy to aldehydes. All man made chemicals cause me to get asthma attacks and I can never work in medical field again. I lost everything. But at the workers comp hearing, the lawyer for the hospital I worked at said because I have PTSD then I am looking for secondary gain and my symptoms are all in my head. So I lost my claim, but not my dignity. Those f*ckers ruined my career just to save money by not disposing the chemicals safely. I won an ADA suit but was told to settle because my PTSD was so extreme, my doctors said I'd never survive a jury trial. They said the hospital would demonize me. So I did and I'll never make decent money again and due to my chemical reactions I can hardly go anywhere. My advice to anyone working with chemicals is to get a doctor and never tell them you have PTSD. If you get sent to experts don't tell them. The lawyers will get all your records to attack you. If you have a therapist pay cash, then don't tell them you've seen one. Every doctor that was paid by insurance they have the right to know.
Thanks Kwan Yin Girl, for the reminder of the sh1t you suffered.
Just to re emphasise for anyone who didn't get it first time
A diagnosis of PTSD on your records, brands you forever. In the eyes of practically anyone who's not a regular here, that " mental disorder " meanz ur nutz
Not to be taken seriously, not to be trusted.
Which is itself nutz, but there you go. Abilify was the top selling drug in the US last year, and probably lots of other places too, so what more is there to say?
Just to re emphasise for anyone who didn't get it first time
A diagnosis of PTSD on your records, brands you forever. In the eyes of practically anyone who's not a regular here, that " mental disorder " meanz ur nutz
Not to be taken seriously, not to be trusted.
Which is itself nutz, but there you go. Abilify was the top selling drug in the US last year, and probably lots of other places too, so what more is there to say?
- Post starter
- #24
That's a terrible experience... though do you think they would have used any diagnosis against you in that way? I've experienced first hand having a problem used against you, with the intention of breaking you, and it's something nobody should go through.
- Status
Similar posts
Donation drives
Trending content
-
-
What Are You Feeling Today? Not Thinking, Rather Feeling! Can You Identify Yours?
- goingonhope
Comments: 34K -
-
-
-
