General Rant and complain thread open to all supporters

[shatter eyes]

@shatter eyes: Is there perhaps a way how you can make bathing more enjoyable for you? Yes, I agree that this therapist is very odd and patronizing.

I wish i knew how... with TBI and physical weakness nerve pain balance issues it gets very tiring just to plan how to enter and exit safely. When in bath i get tired scrubbing and cannot get up to exit safely. Once tired it is more wobbly and weak. Doc said wash one or two parts each time. Yup sorry cock its either lefty or righty cant have both nuts cleaned. Bad joke.

With showering it is fearful as the shower pan is curved and soap runs down making floor slippery. Alot of concentration to stand...

I am working towards consistent washing.

 

[Never_falter2]

@shatter eyes: I am not sure what kind of helpful things they have where you live. Do they have these kind of bathtubs which are easier to enter:Dead Link Removed
Do they have non Slip stickers for the shower?

 

[Friday]

If i smell like pee why dont the therapist say i smell like peeeeee rather than writing in my chart i smell like pee.

Cha. They have to... or at least are supposed to because it’s both medically relevant -in theory if someone is unwilling or unable to take care of themselves it also rates a higher level of care- and so that later if you want your insurance to pay for in home nursing, assisted living, or a rehab facility/nursing facility there’s documentation that the problem exists... you aren’t just trying to scam their system for a butler :rolleyes: or hotel with good drugs.

I used these when I was bed bound for 6 months. I was supposed to be in skilled nursing for that time but my insurance wouldn’t pay (long story not relevant, went directly from 2 weeks in the ICU to home, no 6-8 weeks inpatient, no 3-6mo skilled nursing. My doctors were irate. ). I got mine from the same home supply company I got my oxygen and IV supplies, but they’re here on Amazon Dead Link Removed

A different company even has no rinse shower caps Dead Link Removed

A better long term solution would be the disability access baths/showers, but in the interim, these things are a lifesaver.

 

[Never_falter2]

@anon1234 May I ask you what you actually do if you study the arts in your country? Is this like painting/scetching or like music or what. If it is like painting: does he still paint?

It is really bad to seesomebody in pain, isn’t it?

 

[shatter eyes]

Cha. They have to... or at least are supposed to because it’s both medically relevant -in theory if someone is unwilling or unable to take care of themselves it also rates a higher level of care- and so that later if you want your insurance to pay for in home nursing, assisted living, or a rehab facility/nursing facility there’s documentation that the problem exists... you aren’t just trying to scam their system for a butler :rolleyes: or hotel with good drugs.

I used these when I was bed bound for 6 months. I was supposed to be in skilled nursing for that time but my insurance wouldn’t pay (long story not relevant, went directly from 2 weeks in the ICU to home, no 6-8 weeks inpatient, no 3-6mo skilled nursing. My doctors were irate. ). I got mine from the same home supply company I got my oxygen and IV supplies, but they’re here on Amazon Dead Link Removed

A different company even has no rinse shower caps Dead Link Removed

A better long term solution would be the disability access baths/showers, but in the interim, these things are a lifesaver.

Thanks NeverFalter2 and Friday.
I am finally taking a bath. I dont expect to wash but at least i am in water.

I saw the items you both suggested. thank you

 

[Never_falter2]

I am awake while everybody is still asleep. It is very boring.

Did I tell you my guy bought lots and lots of whey protein and protein bars instead of chocolate? It’s a good sign, isn’t it.

 

[Freida]

my guy bought lots and lots of whey protein and protein bars instead of chocolate?

hopefully ..... unless he's going that whole "I'm gonna get big and tough and save myself" route....

 

[Never_falter2]

What do you mean by this @Freida?

 

[Freida]

I was thinking about when people go on body building kicks...they get all the stuff they think they need --protein shakes and bars, raw eggs,etc,- and start working out. Not a bad thing..just kinda makes me chuckle when guys do it. It's the equivalent of women only eating lettuce before their high school reunion

 

[Fadeaway]

@Friday those things are awesome. I have trigger issues with showers. My blood pressure also naturally runs low, and hot showers and baths cause your blood vessels to dialate lowering it even more to the point I get very light headed sometimes and barely make it out and onto my bed.

 

[Orangesfrompears]

Here is my rant for the day... last night, after I finally said I need some words.. need something...she at one point said there is nothing much for her between us.... and later said there is something and she doesn’t want to lose me. And she meant every word. She changed that quick. Said that’s why she doesn’t speak her thoughts so often because they change so often... And folks, I will continue and wait and love. And she has no idea of herself. Wins the prize for most confusing person ever. Omfg... it must be so confusing to be her.

 

[Freida]

Omfg... it must be so confusing to be her.

Yep. It is. And it sucks