So Many Professional Medical Opinions, So Few Answers...

[SeanCharles]

While the video may be helpful, any electrical activity wasn't captured though...

 

[SeanCharles]

Would have been nice if I had been able to have an eeg done as the episode occurred... I don't know what the er saw after the seizure or on the way to the hospital. As groggy as I appeared, I did however do something interesting, rather than just going directly to the ambulance, I do go up to my locker and grabbed my coat(s) and boots leaving my work shoes behind as if I were leaving for the day, the one thing I did not do was punch out though... that was handled to a degree and I will addressing that with my PCD.[DOUBLEPOST=1389243874][/DOUBLEPOST]Yep! Alaska! :)

 

[SeanCharles]

The user map is a good friend;)

 

[SeanCharles]

lol yea, click on the down arrow of the member at the top and it's the last option! :)

 

[SeanCharles]

At this point, I can't admit or deny that I have the other epilepsy until I have my appointment with my primary doc.

 

[SeanCharles]

Ugh! I feel like a yo-yo! my health insurance coverage is in limbo at the moment and I hopefully will have this figured out before my appointment with my primary doc before the appointment. Seems like the stress piles on thick with me as of lately. If not one thing, it's definitely another... oh well... I am going to keep one foot in front of the other keeping my chin up! :-) I refuse to let the negative drive me down...

 

[SeanCharles]

Update: This past week, I did find out that my episode (seizure) was recorded on the camera. I am waiting for permission from our regional person to obtain a copy of the video. Tomorrow I see my primary doc. This appointment is going to be interesting given that until December 16, 2013 I was at least grand mal seizure free for for years (2009-2013) completely off medication. I suspect with the therapy that I did off and on may have touched only the surface, at least enough to keep me from complete seizures and having any auras EXCEPT when I would deprive myself of food. (not purposely) Any thoughts on that?

 

[SeanCharles]

Update: In light of the seizure and my thyroid hormone levels question, the one hormone was still abnormal which is still a concern to my primary care physician. They have ordered a thyroid uptake which I had done a few a years ago. As a result of this visit, I also have the neurologist visit that I am anxious about. I feel that I am being mistreated and misdiagnosed which may be linked to my ptsd which may not have been considered by the neurologist. He may or may not be aware of my past childhood abuse as well as other sexual abuse situations I have been the victim of, one of which was a boss, which may or may not be an underlying stress that I have not worked through in Therapy. (hmmm....) Anyway, At least I am closer to the truth. Not to get all religious, but as it is written, "The truth will set you free." I suspect that my freedom will come when the lies of mistreatment and misdiagnosis; if these are really the case as I feel they are; is addressed.

 

[SeanCharles]

Update: These last two days (off work) have been a bit stressful. Today I was asked how my work triggers my PTSD (which is noted in a plan of care, but the documentation seems to be suddenly MIA?? I was made aware several mornings ago that I seem to disassociate more that I realized. It's not a matter of questioning myself as to where I am and what I am doing, like right now I know I am here at my computer typing this post... I wonder if my disassociation at work is either from PTSD or DID in which I am cooperatively operating... I know too that a past trauma is from a supervisor (who is no longer employed by the agency) and for the first several weeks or so, maybe longer, I had anxiety that someone would violate me. The upside of that is that over the last 6 years (not yet officially) nobody has violated me at least not like before. I do notice or did, that at times I do startle... I think that I tend to hyper focus thus concentrating on me and what I am doing until I realize I am not alone.

On another note: I have been asked to think about therapy to deal with the PTSD and DID. While we have a few counselors and professionals, some I have known under different situations and knowing what I am seeking may or may not match my needs given what I have known before. (I guess what I mean here is their backgrounds not being trauma related therapy).

Too, I have come far from whom I was back in my adolescence years, I have done things that I have walked away from, removed myself from people who dragged me down, and obviously here I am reflecting on it all wondering what now? I feel slightly lost; maybe somewhat misguided? I don't know... I have a ball in my court and it's do I shoot a goal or pass?