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Sufferer Spinal Cord Injury

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WanderingSoul

Bronze Member
Hello everyone

I had battled against forms of PTSD throughout my life. But it wasn't until I was almost 30 that all my hard work and dedication had been thrown upsidown and ruined by a lazy thug who did not seem to care if the job he wanted me to do would kill or cripple me.

If I started from the beginning this would be a very long introduction. But to shorten the story some. I had to overcome other PTSD from street violence growing up. I managed to survive my neighborhood. And I was determined to do something good with my life and for my community.

But sometimes your hard work and skill is a threat to others. I still can not understand this. You can be a skilled, helpful, productive, team worker. And others who are threatened by this will try to set you up and destroy you.

Some are so caught up in this awful lifestyle. That it seems they hope to just die working on the job. Wether it kills you too or not.

I thought I was prepared to face anything after what I survived which was next to a war zone but with kids who had weapons and drugs, not adults.

So I spent my twenties working hard and reaching for a better life. And trying to leave a better impact on the world. I had always been kind and helpful to others. And when the monsters came around, I stood strong.

The first event that truly shook my foundation of strength I rebuilt myself was electrocution at 277v many years ago now. Since that day I had trouble focusing as much as I had been. The licensed guy I was working with was convinced the circuit was not live. I knew from my safety courses to start with the right hand as opposed to your left because of where your heart is. I felt that surge up my right leg up my back and down my right arm as it pulled me towards it. Somehow I fell over instead of into the panel. The other guy shouting at me 'whats wrong? get up he says. It's live I told him. He thought I was lying or something. So he reached in, got shocked too. Swore at it and said we can't get it done. The city wants it done but it cant be done live. It never happened he said. Whatever.

The next event ended my career training. I had to keep my mouth shut about the hazing that sometimes took place. It wasn't often. Some of it seemed like it was just proving yourself. But sometimes you got assigned to someone that saw you as the next victim.

Long story short I was first threatened to perform a two man job. That I had no rights to request a second hand performing it and I should be greatful that I had to do all the lifting for everyone else. I stood up to this man 10 years my senior. And he hated me for it. Although I had OSHA training and other safety courses. 'Our rules are different then the rules' He argued. If you want to work in the city, you have to do it our way. Who do you think you are I asked him? I'm 100 more valuable then you will ever be he said. We don't need any more educated workers in the city he shouted. We need laborers to move material. You wan't to save the job and be a hero? Move the material.

I'll move one peice up one flight of stairs at a time as I do my other tasks floor to floor I told him. Unless you wan't to give me a hand moving it. No he said. I shouldn't have to do that kind of work.

I fractured my spine in several places that day. Was unable to walk for several weeks. Had to crawel throughout my home. Didn't have health insurance so I mostly bit into a towel until the pain spasms eventually eased off me a bit. It was the most humbling experience in my life going through back pain like that. Not being able to balance on my feet. Waking up with numb arms I couldn't move.

In the last several months I was diagnosed with PTSD from not only SCI (spinal cord injury). But the rest of my journey in this life.

I do the best I can to try and leave the experiences behind.
Not many can understand what it is like.
I did not sign up for the military. I signed up to learn a trade skill.

I still have dreams about one instructor who had a very short fuse. He tried to crack jokes and be a fun guy. But his temper.

We laugh in the face of death and embrace discomfort. That is what we are paid to do he shouted. And sometimes I still have dreams I'm in that classroom. And he is shouting how our generation is too lazy to do the jobs.

To anyone who has read this far. Thank you for taking the time to hear my story. I will also take some time to read someone elses.

Do not give up. It is hard to let go of life events that your mind seems to wander back to. But remember it also makes you stronger than others who had it easy could fathom.

You could be incredibly strong if you just find a way to take control of it again. I like to think I am not just a sufferer, I am a survivor.

I have been so many things in my life. I have helped others along the way too. But my stress triggers of laboring keep coming back so many years later. Maybe because I was electrocuted. Maybe because I spent many nights biting into a towel and trying not to scream. Being told I had to wait for health insurance. Shouting into the phone that I can't walk, help me.

We don't need an more educated workers in the city this guy said to me. We need laborers. So laborgrunt was available. Risked my back so the more expesive workers didn't have too. I worked my way up from nothing.

Be careful how you question others about themselves. Because not everyone is a liar looking to gain position with a story about bullshit. Some of us are real authentic survivors who barely got out with our lives. And that puts something into your personality a bullshitter can't fathom.

An instructor told our class once. This training is not for civilians. It is not the military. It is a way of life that you have to mentally condition yourself for if you want to stand a chance at getting your license. Some day everything is going to be wireless. And you will never have to carry materials like this. Too late for me. I had fractured my spine. And another laborer warned me when I started. Don't let them cripple you kid. Be careful who you risk your back for.
 
Be careful how you question others about themselves. Because not everyone is a liar looking to gain position with a story about bullshit. Some of us are real authentic survivors who barely got out with our lives. And that puts something into your personality a bullshitter can't fathom.

Yes @Laborgrunt not all are trying to be team player and not all have your back and I am so sorry about your spinal cord injury and you are so mentally healthy dead on when you said that:
Do not give up. It is hard to let go of life events that your mind seems to wander back to. But remember it also makes you stronger than others who had it easy could fathom.

You could be incredibly strong if you just find a way to take control of it again. I like to think I am not just a sufferer, I am a survivor.
Yes, we definitely are survivors and at times warriors! I too learned hard lessons the hard knocks life on life's terms way as well. I too was electrocuted only mine occurred as a small little girl child by innocently grabbing hold of tv antenna (rabbit ears) and being badly electrocuted. And I tried to let go but the strong electrical conduction would not let me and tv antenna threw me and "rode" me all around the living room (this was some time ago and I like you still on occasion remember this traumatic event0 and was severely beaten afterwards by mother.

Thank you for sharing your story. And yes, not everyone is a chameleon and a liar, and there are truly authentic people in the world. No perfect people not me, for sure. Learned that lesson late in life too - not to put people up on pedestals for they in their imperfection will knock themselves right off, me as well. So finally good to learn that I do not have to live up to anyone's unrealistic and judgmental expectations of who I am, and they too do not have to be judged and live according to the gospel of Jade. I try very hard to stay out of conflict and those who thrive (succubus) on negative attention, conflict, and confrontational behaviors with others. Peace at all costs for me. Peace, tranquility, and harmony, and staying away from those who try to suck the marrow out of your bone. And they are out there and I avoid them once they pull their superficial masks off, like the bubonic plague.

I used to so ignorantly fight other people's battles until I learned that lesson the hard way as well. Just keeping the focus on me. Some people are into domination and control. Not me. Too much work, and those people never live up to their unrealistic expectations either. So grateful for your post. JJ
 
Thank you for taking the time to read my post. Yes I agree I feel like a warrior at times trying to fight off these thoughts and regain control. I'm sorry you got electrocuted as a child. Sometimes our parents or lack of it teaches us what or what not to be. And we end up better than them.

I also went through another experience fighting someone else's battle throughout trying to handle my own. I was over exerting myself again without realizing it. I had to stop myself because it was just too much. That story of being a care giver to someone else I'll save for another time. Some of us could probably write books. I wish you the best towards all your goals.

LG
 
Hello everyone

I had battled against forms of PTSD throughout my life. But it wasn't until I was al...
Hi there Laborgrunt
Thanks for the post. Welcome to this forum. I am sorry for the trauma you suffered. I am glad you found us. You are not a lone in this anymore. Lots of great supportive folks here to share your experiences with. Tons of first hand info from people who live PTSD everyday. This is a large site with lots of forums with very relevant topics. I hope you find the answers you need.
Employers are really bad to workers and would think nothing about your health. I never had trouble with employers until I became disabled and then I was treated like shit and stolen from. My Doctor told me to stop trying to go to work and go and find a volunteer position that I could handle. I did and it was a way better for me than trying to work for those f*cking bottom feeders. I felt like I was useful again well I worked at my volunteer positions. Again Welcome
Peace be safe
 
Hello everyone

I had battled against forms of PTSD throughout my life. But it wasn't until I was al...
Hi and welcome

Thank you for sharing your story. I'm so sorry for the cruelty you have experienced. I find some people so hard to fathom at times. I just remind myself that those who hurt us so badly are suffering too.

Thanks again for your post... the reminder like jadesjewel said... we are all warriors here.

I hope you find the support you need here

"In the broken places, the light shines through." Leonard Cohen
 
I have to travel great distance by train and buss to my appointments tomorrow morning. I have not been able to drive or even afford to keep a car on the road in several years now. Neck pain makes it hard to get anything done. Including turn my head properly while driving. But I tried to manage that for as long as I could. I can't explain what it was like leaning to the right to relieve pain while driving as my jeep limped to the left as it fell apart. I really hope medical science can come up with a better surgical answer. I heard spinal fusion worked well for some people. But the doctors said they would have to fuse one, and after that heals another, and after that heals another. And then he told me because of my age the materials can wear over time and need to be replaced. I am too young to have to have it done he says to me. Hold out if you can. But if your ready to try it come see us again. They made it sound like my whole spine would have to be done.

One of the hardest things about this was my first SSDI hearing. Because I had to wait for insurance. And because I missed some appointments because I was in too much pain to get there. I was found medically non compliant. So I need to comply. Trying not to stress. I don't want to be chained to my past. But this daily pain is relentless and makes me feel useless.
 
I am too young to have to have it done he says to me. Hold out if you can. But if your ready to try it come see us again. They made it sound like my whole spine would have to be done.

The good news? Ortho is undergoing explosive change right now in how we're dealing with bone & CT. 20 years ago (& 15 & 10) I was told I needed total joint replacement. 5 years ago? My joints are infinitely worse, but no replacement needed. It's elective surgery (for now), costs about 20k per joint, and walkin in 2 days, running in 2 weeks, competition training within a month. Seriously. Jaw dropping explosive change is happening in orthopedic sports med. Waiting? Has alternatively felt like the end of the world and pointless, as I'll never make it that far. But each and every single time I check in with my surgeon, he's even more excited. Just this past year silk screws have hit the market (which bend and flex like bone, unlike metal which stresses the bone and causes even more damage over time), which has altered his surgical plans for me, yet again. And there's also some really exciting work happening in nerves & soft tissue & 3D imaging & mapping & printing. I have hated waiting to fix myself. But now that I have? Am not only beyond glad of it, but am still holding off for as long as I can. At least right now. Because daaaaayum. Is sports med freaking hot right now. The innovations that are being rolled out are just as exciting as hell.
 
I have to travel great distance by train and bus to my appointments tomorrow morning. I have not been able to drive or even afford to keep a car on the road in several years now. Neck pain makes it hard to get anything done. Including turn my head properly while driving. But I tried to manage that for as long as I could. I can't explain what it was like leaning to the right to relieve pain while driving as my jeep limped to the left as it fell apart. I really hope medical science can come up with a better surgical answer

Hope your trip tomorrow @Laborgrunt is bearable and that you can get relief from dr. about your neck pain from work-injury. I can only dream and also again hope for more medical breakthroughs being just on the horizon in the spinal fusion field. Won't go into my neck pain just to say - from two major car accidents for I was not fully physically compromised and I have been told very lucky to not have snapped my neck like a twig during both accidents. The pain at times is unbearable, though. Pushing through!

I'm on S.S.D.I. for dual dx of pro. complex p.t.s.d. and maj. depressive disorder and I hope you receive your S.S.D.I. compensation. A lot of hoop-jumping I know.

Almost bought a jeep once and have always regretted not doing so, for this is the only vehicle that I really like to drive and ride in. What nice rides jeeps truly are! Not driving these days either and most of the time not missing it much as well, due to pain from both wrecks and also dual dx. Hope you'll at some point come back on and share about how appt. went after seeing dr. tomorrow. I care. JJ
 
I have to travel great distance by train and buss to my appointments tomorrow morning. I have not be...
Hi Laborgrunt
I have had 2 neck surgeries now. Your Doctor Is right you want to wait as long as you can take it. When it is affecting every thing you do you need to do something. I was loosing use Of my hands and arms. I wasn't long before I was going to need full care. Bathing, going to the bathroom and eating were getting difficult before the first surgery before the first surgery. I got worse in stead of better. Now I was really needing help. They scheduled the second surgery and fuse and plated this time. I now had c-4,5,6 fused and plated with good success. I got feeling back in my hands and the Pain was to where I could now control with out being knocked out by Pain meds all the time. It didn't do away with the need for pain medication but it really cut it back on amounts that I use. When I was finished with all the fallow up appointment the last thing he told me was when I can't get out of bed again call him and we would do some more. I was fortunate My next Bad level was the c 3-4. It fused it self and they sent me for a scan and said it had fuse it self and it was reasonably straight so that was good. I am doing ok with my neck still today as long as I am careful. My last surgery was in 2003. So I have gone away further than they thought I would. Most likely as the 3-4 level fusing its self save me more surgery.
Since then a guy I know had the same kind of damage as me disc compression from a head injury. The same surgeon did his whole cervical spine all levels fused. He was out of the hard collar in 4 or 5 weeks and walking 20 miles a day. He still has enough vision to drive he can still do shoulder checks as he does not have pain stopping him. If I have to go back I am going to ask for the same procedure.
I was happy after my second surgery. Hope that helps you. I would talk more about this if you want.
Peace be safe
 
Well the appointment went OK. She prescribed me some things to help with pain. She understands why I don't want to have multiple fusions from the top down. So she is supportive of me pursuing the SSDI. I did not think I would need it at first. I did months of physical therapy and kept optimistic.

The other thing is this auto-immune disorder they diagnosed me with. I had the worst outbreak of psoriatic lesions at one point. But I volenteered to do UVB photochemo treatments 3 times a day for nearly 2 years which was the exposure limit for a human being. The doctor from Germany actually flew over to meet those of us who took part. So my skin has become maybe %95 clear. I did not know what else I could do other than change my diet to wholefoods, mostly only drink water, and more vegetables.

The UVB machine used to make me feel so much better as it gave doses of vitamin D well beyond what you could get in the sun all day. But the dermatologist says any exposure beyond 2 years can start mutations. I hope sticking to healthy eating and breathing excersices will keep the psoriasis at bay as it once covered around %50 of my body and hurt very bad. If it were to return. The dermatologist found methotrexate which I don't want to take yet will not hinder any surgery I may need to have.

When I did the job I did. We did not always get dust masks for multiple reasons. So I would have to hold my breathe while getting exposed to god knows what. Because of this maybe I had forgotten to breathe properly. It's all part of the training we thought. Some of these guys used to have snow ball fights with asbestos when they were young. They didn't know either. It was just another cheap material. One of the many times I had to relocate some strutting. It happened to have some oily black film on it. The next day I woke up my hands where inflamed twice the normal size and all the top layer of skin had molted off. It sure hurt to call out of work that day. Today my primary care says it's impossible to know what what chemicals I was exposed to during those jobs by now. And my neurologist seems to think that my job was the worst thing I ever could of done to my back. Some times those power drills were big enough to toss a grown man into a corner. Especially if it caught rebar.
 
Good to hear @Laborgrunt appointment went okay and that she's understanding that you are not willing to have the multiple fusion surgeries now. I certainly understand about expense of keeping vehicle on road and being unable to (on S.S.D.I.) afford same. Sometimes I miss vehicle, and other times - not so much. It's so good she is supportive of you pursuing S.S.D.I. and sounds like she'll be in your corner as you travail the social security system; so good to have your dr. being supportive of your pursuit of S.S.D.I. benefits. Good for you. After the 5/5/12 vehicle/bicycle crash I too did long stints of physical rehab, so I understand this painful and for me non-productive and exasperating experience too. I have to have painful knee injections every 6 mths. and p.r.n. pain medication from physical injuries. I get it.

Sad to hear you were exposed to toxic and lethal asbestos at workplace. Shame on employers. Hope karma is a b for them that's how I feel, for exposing you to preventable deadly asbestos dust particles @Laborgrunt. Oh, what is the autoimmune disorder you've been dx'd with and what is caused by asbestos exposure which caused skin lesions? I too have an unrelated autoimmune disorder - Hashimotos (aka hypothyroid) disease and dr. left message yesterday on phone machine that I need to see him next week following last week's abbynormal thyroid blood draw. Ughh. TSH must be low for I feel like I've been run over by a jeep LOL. (When exposed again in a little while to more EMDR sessions, I then also feel like I've been hit by a hurricane, truly). So not much difference to notice physiologically regarding low thyroid issue except that I am dragging more than usual, etc. And I try to eat so much healthier than I used to as well and am being taught breathing exercises by T and also by woman who teaches chair exercises (injured l/knee and back) so chair exercises are best for me and in weight room on Fridays only I do a lot of upper body exercises which aid in better breathing, posture, etc.


Esterio said:
I got feeling back in my hands and the Pain was to where I could now control with out being knocked out by Pain meds all the time. It didn't do away with the need for pain medication but it really cut it back on amounts that I use...

So good @Esterio that surgery helped your hands and your pain can be controlled by pain medications. Sounds like you too have been through a lot as well with your two neck surgeries, and good that you did not have to have c 3-4 surgery that is fused itself. @Esterio sounds like you and @Laborgrunt have some medical histories close and in common and information to help one another, hopefully. TC. JJ
 
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