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Sufferer Spinal Cord Injury

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JJ

I had a rough few weeks and haven't been able to collect my thoughts. I am in the emergency room for my care partner again today. I will try to answer your question when I can. Thank you for sharing your day to day. I will try to respond to you better when I can get organized. Hope your well. Thank you
LG
 
I haven't been in a stable place last week or so to get on this forum. Things got hectic and I just had to adapt again. This question is somewhat hard for me as I have severe trouble on some days as opposed to all the things I used to do.

I spend much of my time laying on my side with proper cervical support. Sitting still causes issues for me so I just have to adjust myself. Once I do that, I can attempt to get lost in something. Usually something worth learning. I don't watch TV if I can help it. I hardly ever did really. There is so much to learn from the internet today. I can learn something while I sleep. New ways to earn a living through many opportunities. It keeps me going to believe there is still something worth putting my time into. I get so tired at times though. So laying down often leads to more sleep then I need. But I'm either learning a course or listening to relaxing things like dna repair frequencies to calm myself. It's a beutiful day today. But were I am staying is up many flights of stairs on the top of a hill. I only leave to get to my medical appointments. Or to support my care partner at the hospital. Seeing as I can't do much for myself anymore, I give my time to her and her mother who sometimes can't miss work to attend her daugters er visits etc. So I go along to support and communicate. In exchange I get to stay where I am again now which is closer to the shuttles into the city.

I use to play guitar or bass. I helped teach many people to build stage presence and just have fun with performing. That was over a decade ago now before all this happened. Today, I am lucky if I can play for 20 minutes. I still keep in touch with some of the people I networked with during my time in music. They are aware what happened with me to a point. I had to turn down a few opportunities to play again because of this medical obstacle. Some of those bands I helped are doing well today. So I guess I did my part enough. Though the love of music does not seem to clear my head enough of my ordeal. I still battle with escaping from how I have to live. I'm looking for ways to not feel held back by the daily reminder I may never do any of the things I wanted to do with my life. The auto-immune disorder drains a person from inside out. I worked around toxic chemicals, and my body is also paying the price for that.

I used to do so much. For the past several years its mostly been aimless wandering for a home. The housing authority told me there was a 6 year waiting list. I guess I could say I just spend my days enjoying clean air and sunrise, sunset. My look at life and the world has been altered forever from this. And I wonder why a back injury that could of killed me didn't. I'm still here trying to find a new way in life, with disability as my new hurdle. And the rights I am still fighting for. I remind myself. Nothing lasts forver. 5 minutes, 5 months, 5 years. Everything is temporary, so no need to get so attached to anything. Once you have nothing again, you remember you've got nothing to lose.
 
I appreciate your honesty @Laborgrunt and really like that you are learning from the internet, me too. You find job opportunities, would you explain? And please, what are dna frequencies that help you to repair things? I would like to know more please as I was not asking to just know I was asking so I might possibly learn other methods, ways of as you filling up my days/nights. And yes, I get so sick of cable, yukk, it's like empty calories may try and fill ya' up yet leaves me filling brain-tired with nothing learned and nothing ventured/gained.

It's wonderful that you taught so many stage presence and to learn how to play and that you are (even through your chronic, constant bodily pain) still playing albeit 20 or so minutes, good for you. And ptsd (history) has permanently so it seems altered my life as @Laborgrunt and I should've died many times as well from car, people, places, and things too. I try not to anymore wonder why I didn't die back there and I too am fighting for rights and am concerned about health insurance and changes acomin' down the road.

You are 100% when saying that nothing lasts forever and I feel somewhat the same regarding once you have nothing to gain, you remember you've got nothing to lose, so I forge ahead and damned the hypervigilance, and damned the sensory overload, and am thankful that I do not have an addictive personality and I know this because of so many poor health choices i.e. meds, relationships, that I've had to either let go of, lay down and not practice or be involved in anymore. Takes strength to admit when I am wrong and try and set about changing things that have prevented me from moving forward in my life. Baby steps and moving ahead and always being truthful now about how am I really feeling, and if not so hot then allowing myself space (like you've been doing @Laborgrunt) and breathing, just breathe.

Also people, places, and things do not have me either although for a long time I pack-rated crap to make me feel better, never worked @Laborgrunt and have been dealing with this issue and letting go of so much stuff, things that had (still have more crap to let go of) prevented me from feeling free, and unencumbered in my personal, private life. This crap all around me was (and there's more to let go of) suffocating me and imprisoning me (entombing) as this was my tomb complete with figurines, mosaics, bullcrap, garbage (some a bit expensive not much) that has been hard letting go of stuff to make me "feel" better and it never ever worked (just brief very short periods of a reprieve from feeling all alone in this huge world, and never fixed the root of my problem, me. Now I am looking at myself square in the eyes and with love trying to come to terms with decisions I've made after traumas that forever altered the course of my life.

And now I'm trying hard to not screw up what's left of my life here on earth, and to try and enjoy a salad, and yes, we're having great weather too! You sound so hard on yourself @Laborgrunt and you are in the solutions i.e. housing wait list, and also where you are living helping with your care partner and her daughter, good for you! I too battle as you with escaping (Emdr helped tremendously) the bike/car crash that has left me with debilitating at times pain throughout my body. Not all you realize I hope am I ever comparing my physical medical issues to yours that said though I am struggling through each day with post crash injuries and severe pain so I understand to some degree about injuries and pain, yes I do.

Am so glad I ran across your post when I was poking through the threads here and ran across your last post to me and again I am so sorry that only now am I able to catch up with you and tell you how much I appreciate your honesty and bravery in facing what you are going through. And I too need respites from the reality of living with p.c. ptsd, crash injuries, and family fallout. I need to just be washed in wonderful meditation music and deep breathing exercises and am taking class tai chi (self-defense). I hurt like hell standing on that d*** wood floor in front of that huge walled mirror, and my mind says sit down what the h*** do you think you're doing, and my sheer will says you can stand up another minute, then another, and so on. It is so hard post crash to do (as you are experiencing first hand as well) all the things I used to love to do e.x. volunteering for 7 yrs. in one of many hospital's e.r.'s and I miss being around people more than I am now. I won't quit trying and thank you for still being here when you can be, and being my battle buddy, for honestly I have come a long way baby, and still have a mighty long way to go! Jade.
 
Well there's been much for me to process. I came to realize some weeks ago it is very hard for me to share my experiences of what created the PTSD because some people get very upset. Mad, disappointed, disbelief. If I were to tell you I also found out the my therapist has only been a nurse practitioner, and my lawyer told me I need to see a therapist more frequently and she doesn't count. I can't even get into that. I told them I have discovered this forum and I had been asking for a therapist for a year now. When I see her this week, I'll mention it again.

So focusing ahead on the good things. I'll just type suggestions as I don't know if I should be posting down links to specific channels.

When all I can do is lay down for a while, or even when I go to sleep. I pull up YouTube and enter 'dna repair frequency music'. There's many of them. They are relaxing, and maybe they even work.

There's also a video out there on how water droplets react to sounds. And seeing as the body is mostly water, I guess it all makes sense.

One of the online jobs I was looking into was publishing an e-book. So if you search for that anyone could learn about it. There's even article writing. You pick a topic, if people like it, you write more. I still have to put time into learning how that works.

Also. I'm not sure if I mentioned, but I was in a car crash too. It was out of state, in someone elses vehicle, leaving physical therapy. Everything that was finally getting organized legally got all messed up. This huge black suv backed into the driver side panel. I couldn't move much. They had an ambulance take me to that states hospital. I remember hearing the girl crying repeating that the computer didn't tell her anyone was behind her. The hospital took an xray and said that's all they could do until I get back to my own state that issued the health insurance. And now they are saying it is all pre-existing. As if things couldn't get any worse, all that happens.

Anyway.

Thanks for referring to me as a battle buddy. I don't think I'm quite worthy of that. I have a friend who's an army vet. He also has called me a battle buddy. He still tries to find me side work here and there for an hour or so. He has said to me maybe once my spine is done healing it will be twice as strong. haha would be great.
 
I also found out the my therapist has only been a nurse practitioner,

That's not necessarilly a bad thing. While common thought = nurses = less than doctors... There are a whole lot of levels of Nursing, and APRNs (Nurse Practioner / Doctorate of Nursing) are the highest level. They can not only diagnose, prescribe, & treat patients just like doctors, but Psychiatric APRNs education level and training FAR exceeds that of most therapists.

A scary high number of counselors & "therapists" = 3 month cert.
Vast Majority of Counselors/Therapists = 2-4 year degree.
Masters of (counseling / marriage & fam therapy / etc.) = Bachelors + Masters
Psychologist or LCSW = Bachelors + Masters + Internship
Nurse Practitioner = RN + Bachelors (s) + Masters (s) + Doctoral (s)


- The (s) is a specialization year which nurses have to take in addition to their baseline requirements in order to be considered (and hired for) their speciality. So you've got your BSRN and want to work in pediatrics, or trauma, or psych, or surgery? You can't just graduate and go get a job in those fields. You have to 5th year, and focus purely on that specialty. After working for a few years (required) You go back to school to get your masters, and want to get a job back in your field? You can't. Not at masters level responsibility & pay. Not until you do another year specializing. And again, once you've got your Advanced Practice / Doctorate. Similar to how doctors have to do their surgical residency, before they can be considered surgeons. Except they have to specialize at each step, 3 times instead of once.

So if you've got a Psychiatric Nurse Practitioner as a therapist? <fist pump> You scored! They have got tons of education and experience (thousands of work & supervised hours are required in addition to the degree).

Granted, just having the highest level of education & training out there doesn't mean they're a great therapist. There are lousy APRNs & lousy Doctors out there. And even the absolute *best* therapist for one person can be :wtf: worst for another. But if you were thinking that because your T is a nurse practitioner they've got some lousy 2 year degree from a community college? Or 3 month certification? Nope. Those are the lowest levels of nursing (RN & CNA). APRNs are a totally different thing.
 
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After reading your post about dna frequency repair, etc. I went to youtube and found what you are referring to and played a couple of the videos and I do believe (whether it was psychological or whatever) that I felt less stressed and calmer in my body and mind @Laborgrunt. And in your trauma diaries here this is your place to post what you need to do heal, and if other people are not into what you are posting to get and stay connected in here, well my understanding is that that is not your problem, it's theirs since this is your trauma diaries journal, makes sense.

I am going to be right now to sleep, and will post more in the a.m. after I have read your most recent post that I am most grateful for as I have trouble with isolating and connecting now and welcome your posts reading them and answering @Laborgrunt. Jade
 
I found the "how water droplets react to sound" videos, too and thank you! How did you sleep last evening? I have slept better these past 2 nights (not great) better, than in past @Laborgrunt.

Since I've never talked about my goal to actually write a book (am in a writer's class w/published authors now) about adult ptsd children of parent's w/ptsd, (whew) well this is a long-standing unrealized goal that I've had for many (beaucoup), as this is how I acquired p.c. ptsd and also from "other caregivers" as well. Doing an e-book sounds interesting and let me know how that goes, okay, as I would really like to write a book about above subject and try and get same published, yet only have journal entries about all of this, up to this point in time.

When were you in the car crash @Laborgrunt? and leaving pt then getting hit! And we both know that with this SUV car accident where woman was using her computer for her eyes! even w/pre-existing conditions, this new accident could have easily still subjected your body to even more injuries from her hitting you with her SUV (again, even with pre-existing conditions, right) WTHey. Just sayin'. Will return later, need to go walk. BB, Jade. (and I see all members on here as my BB's one way or the other, for I learn so much from every single person here about myself. tbc
 
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