So f-ing much going on. Not all bad. Good stuff too. Just stuff. And stuff, these days, gets me wiped out. I think I need a sensory deprivation tank or something. I did sleep for two hours this afternoon and felt like a new person afterward for a few hours. I am nearly overwhelmed though. Maybe if I just sleep all day with a few short functional hours in between, I could get better? Hmm. My life does not work this way.
I made the dire error of looking at the newspaper AND facebook today.
I have felt extremely guilty because for the past several months I have intentionally resisted the news to keep my stress levels down. But a family dinner last night had much conversation about things going on in the world...things I was aware of but was working pretty hard to keep from fully penetrating my consciousness because there is not one single bloody thing I can do about any of it. And I know from past experience what too much news (especially visual) does to me.
Anyway, I read the Times today and looked at facebook. Big huge mistake. It will be a long while before some of the stuff that penetrated gets processed. I truly can only process things I can actually have some agency in. Everything else is purely intellectual. And that is not processing, as I have learned and am continuing to learn.
So tonight I am sending lovingkindness prayers to lots of people throughout the world. That's it. All I can do. Totally helpless to make any difference at all in this world. A wave on the sand. Whatever.
I am trying to be okay with this. Trying to just focus on being fully present in now and getting ready for the big trip on Monday. Husband is freaking out worried about me, but I'm pretty sure I will be okay. I have a rental car. The first two nights, I'll be at my son's college. Then I drive north and have booked a cheap funny little place on the lake that has a...FIRE PIT! (
@shimmerz... :) !) S'mores, here I come. Then I'll spend the last two nights with friends of my husband's I've never met...but they sound pretty cool. Artists. I will be staying in their barn/studio on their farm. Kind of a writers' retreat thing. Then I drive a long way to fly home.
I am hoping the trip will be rejuvenating after the first couple of days. I have made my peace with taking my canes and with the fact that I will likely need to ride on one of those airport transport thingies because one cannot drag a wheelie and have two canes. I'll be one of the "passengers who require assistance." I learned that when I was on crutches for my last few trips for work. I'm not bringing much...pretty minimalist trip with plans for laundry in the sink...but still need more than just a small day pack. I am hoping I will be able to write, and rest, and do some drawing and photography. Perhaps speak to nobody at all for three days. (I haven't done that for a long while...I need to). I am hoping the lake people will agree to rent me a jet ski even though I have canes. I am fine as long as I'm not on my feet, after all. I am dying to go jet skiing again! I'll probably never again do alpine skiing, but this kind of "skiing" is actually way more fun and not nearly as bone chillingly cold! I am also hoping to find a fish boil. I think where I am going, these are as common as bean suppers and clambakes where I live. But I'm not sure. I've always wanted to go to a fish boil.
My uncle is here to "help" with my mother. Whatever episode he had on Thursday seems to have passed. (It likely was a stress reaction to the SEVEN HOURS he spent with his sister on Tuesday). Anyway, hopefully, he will be able to fend off the calls that would normally go to my husband if I am unavailable. Hopefully, the hospice people will continue to take good care of my mom.
I'm tapering off my meds. Probably not the smartest thing prior to a big trip, but really I feel it is the right thing to do. And once I decide something, it is pretty hard for me to backpedal. So far (day 3), okay. We'll see how it goes. I will bring some just in case. I'm pretty much feeling "done" with meds. I would rather deal with the chronic pain than all these other side effects. Yoda says that this trial-and-error stuff with meds is quite normal and common. That makes me feel only vaguely better. I'm not profoundly adverse to meds. But I simply cannot and will not accept gaining all this weight. That will be about as anti-therapeutic as one can get for me. I can tolerate blurry vision, agitation, insomnia, mood swings, lots of other things. But I cannot tolerate this. (Hear the banshee screaming...). It does NOT help me to be in my body which is already a profound challenge!
So...here goes. Hoping to sleep tonight. Be wildly functional tomorrow to get ready to go. And then...
Well, one moment at a time. Wish my parts could get on board with this.