The Albatross
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Holmes River Creek, NW Florida Alex? This is where we launch to take a ride in the swamp.
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Holmes River Creek, NW Florida Alex? This is where we launch to take a ride in the swamp.
Whitneys story
Diamond Member
Link Removed
Travel over mountain pass from the desert! Mossyrock, Wa
Travel over mountain pass from the desert! Mossyrock, Wa
Whitneys story
Diamond Member
Arrival at the Pacific Ocean
Whitneys story
Diamond Member
Very mysterious! This is a 2 hour log I lit at 10 pm, photo taken at 4 am. High pressure?
Whitneys story
Diamond Member
((((((((((((Alex))))))))))
I have a suite with an extra bed! It must be for you. Rest all you want. Hugs Whitney
I have a suite with an extra bed! It must be for you. Rest all you want. Hugs Whitney
D
Deleted member 12723
(((Alex))) I am thinking of you today. I hope you are feeling better today.
Icon Nikon
Gold Member
Hi all,
I absolutely love ALL the pictures, especially because they remind me that people do care. I feel bad because I have not been up to being on this site to say thank you or to contribute to others due to the hospital admin wishing I would/wanting me to die. Sad but statistically and financially true.
While my neurosurgeon was not in last Thursday and after my oxygen sats dropped some because of the presence of severe secondary pneumonia, ER doctors unnecessarily intubated me with a non-pediatric tube (and put the "mostly paralyzed" me in restraints because I resisted this tx to the extent that in could - horribly wrong on so many levels). Tubing me is a last resort medical tx for me as my autoimmune system disorder reacts severely to pressure against any soft tissue, especially my airway.
And without informing my doctor, which were the standing orders in and on my chart, the ER doctors administered antibiotics without asking me if i was allergic and without countering with drugs to prevent my intestinal C-Diff from getting worse (think fatal 3rd degree burns of the intestinal tract, but with pain).
Besides being tubed they injected me with epinephrine instead of glucagon, but with no steroids, which made my heart tachycardic and arrhythmic and ultimaty crash again. Then they had to inject drugs to combat that but not before needing to restart my heart. Several huge jolts for a weaken body.
Then due to my elevated heart rate from the swarm of people and massive epinephrine in my body, they idiotically decided to administer high blood pressure meds. And these meds only made my heart rate drop into the 40s and BP drop into the 90s/50s range (fainting range for me since I am not a long distance runner).
Since then, last Thursday, my "hero" neurosurgeon has had to fight the ER doctors, the hospital admin/insurance, the ER/ICU nurses, and so on...and on a career level that one should not need to do.
A weeklong battle where I continued to receive these harmful meds while sitting up and nebulized tx were discontinued. And because of such blatant mistreatment (or CYA tx), I also was accumulating even fluid inside and outside my lungs, while my O2 sats ran dangerously low.
And all because the hospital wants to cover its tracks by saying that the tube was in fact warranted under the circumstances yet they were somehow "unaware" of the adverse effects of epinephrine when I wear a medic alert tag and carry with me at all times the proper angioedema protocol - protocol that they flat out ignored, even though it is a nationally recognized protocol.
As you all can imagine my health has deteriorated greatly over this past week, which ironically a DNR would have saved me from both the tube and this further decompensation. And I was too lethargic, wheezing, and lightheaded to do much of anything except hearing my doctor fight for me at the expensive of himself - but I suppose that when he was transferred into my case that he knew that the hospital was going to throw him under the bus regardless of my outcome. :(
However, yesterday my neurosurgeon came into my room, fuming and rattled, and announced to me that he had contacted his lawyer and that his lawyer was going to contact mine.
Well something took place overnight and today my doctor looks as if he has been up all night (or many nights). However my antibiotics have been changed, nebulized tx restarted, and no HR/BP meds administered. There is no miraculous change in my state, but he needle aspirated my plural effusion as best he could consider that my entire torso is one big open and scary wound. :)
So breathing is a bit easier. I also do not feel quite as faint today (though I must admit that that improvement maybe just psychosomatic relief). And although the tube remains in place, my doctor has started me on steroids as that is the only safe way to remove the tube (though when he does my airway will be excruciatingly raw). At best he could remove it tomorrow, but more likely it will have to wait until Saturday.
Nonetheless, my doctor has a heart and the humanity to go with it. He fought for me when I had said in my head to the hospital and ER doctors, "you win...you broke my will". And during that fight he came in and whispered to me that he would care for me even if it meant us both leaving this hospital. He was not going to abandon me as so many have during this 13+month stay in two hospitals.
Now I have to try to heal when my WBC, which normally runs abnormally high on most days, is so depleted and low. So I am terrified that with or without drug, my body will not be able to heal from this insane debacle. And I can not rest for fear that if I doze something else will happen. Although, after aspirating the excess fluid, my "champ" doctor sat in my room with me so that I could close me eyes - likely he needed to sit a spell too and to not run into anyone he was angry with.
I have to go now as I am completely spent from writing this. So thank you to those who read this, as my medical battle is too far fetched to do justice rO it. And thank you to all who truly care about me and have wanted to do whatever they could to help. I know how hard it is to be on your side and be limited as to what you can do online or from miles away.
I know it is often easier to walk away than to feel helpless, but thank you one and all for staying and for the pictures that enable me at times to escape from or laugh in spite of my fragile future. And that does not even reflect on the panic surrounding my needed brain surgery which may or may not be possible if able to become stabilized enough for it.
My heart goes out to all of you!!!!
All from Chincoteague, Va my peaceful place. This is where I stay:
Affectionately yours with a hardy:
Alex
I absolutely love ALL the pictures, especially because they remind me that people do care. I feel bad because I have not been up to being on this site to say thank you or to contribute to others due to the hospital admin wishing I would/wanting me to die. Sad but statistically and financially true.
While my neurosurgeon was not in last Thursday and after my oxygen sats dropped some because of the presence of severe secondary pneumonia, ER doctors unnecessarily intubated me with a non-pediatric tube (and put the "mostly paralyzed" me in restraints because I resisted this tx to the extent that in could - horribly wrong on so many levels). Tubing me is a last resort medical tx for me as my autoimmune system disorder reacts severely to pressure against any soft tissue, especially my airway.
And without informing my doctor, which were the standing orders in and on my chart, the ER doctors administered antibiotics without asking me if i was allergic and without countering with drugs to prevent my intestinal C-Diff from getting worse (think fatal 3rd degree burns of the intestinal tract, but with pain).
Besides being tubed they injected me with epinephrine instead of glucagon, but with no steroids, which made my heart tachycardic and arrhythmic and ultimaty crash again. Then they had to inject drugs to combat that but not before needing to restart my heart. Several huge jolts for a weaken body.
Then due to my elevated heart rate from the swarm of people and massive epinephrine in my body, they idiotically decided to administer high blood pressure meds. And these meds only made my heart rate drop into the 40s and BP drop into the 90s/50s range (fainting range for me since I am not a long distance runner).
Since then, last Thursday, my "hero" neurosurgeon has had to fight the ER doctors, the hospital admin/insurance, the ER/ICU nurses, and so on...and on a career level that one should not need to do.
A weeklong battle where I continued to receive these harmful meds while sitting up and nebulized tx were discontinued. And because of such blatant mistreatment (or CYA tx), I also was accumulating even fluid inside and outside my lungs, while my O2 sats ran dangerously low.
And all because the hospital wants to cover its tracks by saying that the tube was in fact warranted under the circumstances yet they were somehow "unaware" of the adverse effects of epinephrine when I wear a medic alert tag and carry with me at all times the proper angioedema protocol - protocol that they flat out ignored, even though it is a nationally recognized protocol.
As you all can imagine my health has deteriorated greatly over this past week, which ironically a DNR would have saved me from both the tube and this further decompensation. And I was too lethargic, wheezing, and lightheaded to do much of anything except hearing my doctor fight for me at the expensive of himself - but I suppose that when he was transferred into my case that he knew that the hospital was going to throw him under the bus regardless of my outcome. :(
However, yesterday my neurosurgeon came into my room, fuming and rattled, and announced to me that he had contacted his lawyer and that his lawyer was going to contact mine.
Well something took place overnight and today my doctor looks as if he has been up all night (or many nights). However my antibiotics have been changed, nebulized tx restarted, and no HR/BP meds administered. There is no miraculous change in my state, but he needle aspirated my plural effusion as best he could consider that my entire torso is one big open and scary wound. :)
So breathing is a bit easier. I also do not feel quite as faint today (though I must admit that that improvement maybe just psychosomatic relief). And although the tube remains in place, my doctor has started me on steroids as that is the only safe way to remove the tube (though when he does my airway will be excruciatingly raw). At best he could remove it tomorrow, but more likely it will have to wait until Saturday.
Nonetheless, my doctor has a heart and the humanity to go with it. He fought for me when I had said in my head to the hospital and ER doctors, "you win...you broke my will". And during that fight he came in and whispered to me that he would care for me even if it meant us both leaving this hospital. He was not going to abandon me as so many have during this 13+month stay in two hospitals.
Now I have to try to heal when my WBC, which normally runs abnormally high on most days, is so depleted and low. So I am terrified that with or without drug, my body will not be able to heal from this insane debacle. And I can not rest for fear that if I doze something else will happen. Although, after aspirating the excess fluid, my "champ" doctor sat in my room with me so that I could close me eyes - likely he needed to sit a spell too and to not run into anyone he was angry with.
I have to go now as I am completely spent from writing this. So thank you to those who read this, as my medical battle is too far fetched to do justice rO it. And thank you to all who truly care about me and have wanted to do whatever they could to help. I know how hard it is to be on your side and be limited as to what you can do online or from miles away.
I know it is often easier to walk away than to feel helpless, but thank you one and all for staying and for the pictures that enable me at times to escape from or laugh in spite of my fragile future. And that does not even reflect on the panic surrounding my needed brain surgery which may or may not be possible if able to become stabilized enough for it.
My heart goes out to all of you!!!!
All from Chincoteague, Va my peaceful place. This is where I stay:
Affectionately yours with a hardy:
Alex
amethist
VIP Member
Just for you Alex.
:mad: OK, I am FURIOUS! You need a bodyguard, a Lawyer and a TV Crew to
1. Protect you
2.Sue the bastards that are torturing you
4. Expose what is going on!!!
What can we do?
OK, I just took a deep breath and finished reading your post! I am sending thanks and a big hug for your Doctor. What a wonderful soul he is.
1. Protect you
2.Sue the bastards that are torturing you
4. Expose what is going on!!!
What can we do?
OK, I just took a deep breath and finished reading your post! I am sending thanks and a big hug for your Doctor. What a wonderful soul he is.
Icon Nikon
Gold Member
Thank you Movin'On (but I hope you stay ;))!
You actually did exactly what I needed the most, which was to throw away my submissive surrender to the will of others (like what I did/had to do when young), validate my insane experience, and stir up my anger!
Much appreciated, and I am glad you came over and hung out on this thread to lift you up. All are welcome and nothing is off topic in this thread as I view it as just a supportive conversation between friends, with me willing to listen/help and struggling to know how to receive such support.
Hugs!
Alex
You actually did exactly what I needed the most, which was to throw away my submissive surrender to the will of others (like what I did/had to do when young), validate my insane experience, and stir up my anger!
Much appreciated, and I am glad you came over and hung out on this thread to lift you up. All are welcome and nothing is off topic in this thread as I view it as just a supportive conversation between friends, with me willing to listen/help and struggling to know how to receive such support.
Hugs!
Alex
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