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No end in sight and extremely sleep deprived.

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NicknameB

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New to this site but am hoping to get some feedback from others who understand. I have had PTSD for 7 years after witnessing my husband's suicide, which was 100% unexpected. I lost my career, my home, my health, my role as a mom (son went away for college), everything that was "me" was gone. I no longer see or talk to anyone, other than my parents and my son apx once a week. I only go to doctor appts and sometimes stop at the store on my way home when I must. I have seen a psychiatrist and psychologist on a consistent basis since the week after his death, but my symptoms continued to get worse. I have 3+ doctor appts every week, because I must make it to all of my doctor appts, I am not able to take the higher doses of meds that helped me get some sleep. I am so extremely exhausted all of the time and literally have to drag myself to my doctors appts. My panic attacks have evolved into my heart rate jumping extremely high and causing me to pass out, despite my calm disposition and breathing.. it's very difficult to get my mouth to move to form words, which has been mistaken by others as a stroke. My condition despite my diligence to get better, extreme symptoms, and exhaustion for so many years seems rather hopeless to think I will ever really "recover". Has anyone else experienced a lack of results? similar panic attacks? Debilitating exhaustion?
(Sorry for how lengthy this initial post is)
 
Hi and welcome. I am so sorry that happened

I agree with skywatcher. Wondering exactly what you have tried treatment wise. What type of therapy, with a specialist or not, what was actually done. Also wondered if you had anxiety or anything pre this. If they think there is an anxiety disorder along with the PTSD.
 
Thank you both for replying
Prior to his death, I had no real compression of what anxiety was or felt like. I did have stressful times and a stressful job, but was very social and was never bothered at all by crowded places or events. The person I was is the complete opposite of the person I am now....

I was first seen by a psychiatrist as I knew I was going to need help getting tbrough the tragic loss. I never had any trouble sleeping, I used to joke that sleeping was my favorite hobby because I loved to sleep in on the weekends. But from the first night without him, I couldn't sleep. I was given valium, which didn't help me sleep more than 30 minutes, at which time I'd have a nightmare and wake up hysterical. In the 6 months I was put on a coctail of meds to help me sleep and help with the flashbacks I was experiencing. I agreed to admit myself into the psych ward so that my doctor could attempt to medicate me enough to sleep in a hospital setting, because I had trouble with low blood pressure causing fainting with some medications. After a week and adjustment to meds, I was finally able to sleep better and started seeing a neuropsychologist, both doctors diognosed me with PTSD and I started therapy with EMDR.. but could never calm down during the sessions....

In addition to medications, Therapists and specialists tried trauma EMDR, positive EMDR, CBT, lots of homework sheets to reconnect with emotions.. I didn't realize that I was only using words that described physical feelings rather than emotions. Group therapy for PTSD, Suicide Survivors, and Grief/loss as well as Yoga and breathing/ meditation classes. The only improvement is that I don't appear to be hysterical when I have panic attacks, but being hysterical and/or vomiting seemed easier than losing consciousness.

In addition, I was hospitalized with a pulmonary embolism just after the first year anniversary and had a DVT the following year, at which time I was put on blood thinners for life and requires me to get my blood checked once a week. Within 6 months of the pulmonary embolism, a lump was found in my breast requiring a lumpectomy which then required a second surgery of a partial mastectomy and reduction for the other breast. It was contained, and benign but I have follow up care as I am at high risk for developing breast cancer. Developed A-Fib and like many wirh PTSD, my resting BPM is always 115+. So Half of my appts are for PTSD, but I also developed high maintenance medical issues that require frequent appts. I am so extremely exhausted all of the time, and have to drag myself to appts, but am too tired to do anything else. I try visit my parents once a week who live only 2 miles from me, but they don't visit me and are frustrated with the fact that I have not gotten better and aren't very understanding. I do my best to not let them witness symptoms because it is very scary for them. My son lives a few hours away, has a busy life, and I try to protect him from any extra concern.. but he gets frustrated with me not being able to go places like I used to, even though he has witnessed several severe panic attacks and had to rush me to the hospital. They are the only people that I have any contact with besides my doctors....

I have been told that the success of treatments have been delayed because mindfulness and being in the moment doesn't provide relief from the trauma connected to the memory of the moment of his death. Being in the moment just triggers the same traumatic sinking feeling that he is gone. I didn't expect that ever be in such a debilitated state, especially for so many years.. although it doesn't seem like that much time has passed. I keep trying, keep going to appts.. but I am so so so exhausted. I have been surviving for the sake of my parents and my son. I would give anything to be able to stop pushing myself to go to all of my doctor appts and just be able to rest in bed for however long. I am so so tired.
 
I am so sorry for the tragic loss and trauma you went through, but also so very sorry you're going through this. I am horrified and saddened by the lack of support, which seems traumatic as well after your huge loss. Your family - who should be there for you during this really awful time - is frustrated with you. I'm so so so sorry. From the outside looking in, it sounds like you're being isolated and left alone in your grief, which isn't helping you to step out of your current shoes and find a new place/moment to feel comfortable and happy and calm, which would make mindfulness easier. Dealing with long-term stalking, I feel afraid all the time, so mindfulness is hard for me as well. I've been advised to find times when I'm NOT afraid, and focus then. I wonder if that could apply to you as well. Can you find something to do that will take you out of this, and then try focusing on mindfulness? Do you have any pets? If you don't, and you like animals, animal shelters are always looking for volunteers to just go and sit and pet animals who are lonely. It's hard to do anything when you're tired, I know. :(
On the insomnia - I understand the crushing weight of tiredness - I do sleep, but not very much. Have you tried the CBT-I stuff? I have been assigned to do that, and it's supposed to really help.
Are your doctors treating you for PTSD alone, or also depression? I've been told that moving/speaking very slow is a sign of depression - my kiddo says sometimes I look like I'm a movie in slow motion.
I do hope you can get some support, and again - I'm so sorry you're going through this.
 
Crikey but that is rough. I can’t relate to exactly what you’re going through - because my symptoms seem to stem from childhood- but I do get that feeling of “nothing works”.

So....I am new to this but the things that strike me are:
* please make sure you have the right team - my psych was out of her depth and referred me to a psydoc who I now see weekly and is managing my symptoms better. I’m not on any meds at my request. I still see my psych but for equine therapy sessions. It’s a nice fit. My GPs have been amazing. You have to have an awesome regular doctor. I also have 3 regular physio/remedial massage folk who look after unrelated (or not?) injuries and rehab. I have fought hard for all these great people.
* mindfulness - thinking about breathing makes me want to throw up or run or dissociate. Trauma Sensitive Yoga has saved my butt. I don’t love it but it’s such a non-judgemental, gentle approach that encourages you to just notice - it helps me have (slightly) more compassion for myself. It’s totally about baby steps though. And it doesn’t help me sleep better but it helps me ground better when I wake up.
*find something that helps ground you - for me it’s gardening, walking, training my dogs. I try to reserve time for that every day. Equine therapy is good too. Even when I have flashbacks my psych will give me a task with the horses to ground me.
*one step at a time - for me quietly sitting and drinking a cup of tea is a challenge. If I can’t do it I just try to notice without judgement. That’s not easy and I’m not even very successful at doing that! I’m kinda reading a fair bit of self-judgement in your posts. That’s ok too you know. But you won’t find judgement here. We are much better at accepting others than we are ourselves ?
 
Thank you so much for taking the time to reply. I'm sorry to hear of your struggles and stalking, that is scary! I wish you success in your efforts, it takes a lot of work and dedication.

I have done a lot of CBT worksheets, but will look up CBT-I to see if I also did that, thank you for the recommendation. The safe focus sounds very similar to the positive EMDR I tried.
My parents are angry with my husband for destroying their daughter, which I understand. I wish they refrained from rolling their eyes. I am isolated, but it isn't due to the lack of friends, as I don't want to feel pressured to go places, although I am aware that isolation is considered a negative thing by all doctors. What makes me feel isolated is that I can't talk about my husband (of 13 years) and the love I still have for him. My Son told me he doesn't like me to talk about him, because it's painful, so I respect his wishes.

I do have a dog, I love him to peices and am so thankful to have him in my life!. but he is getting up in age and has had some health problems, so I am very afraid of losing him.
It is very comforting just to have someone say that they know how hard it is to do anything when you're tired. Most people don't understand. My heart goes out to you!
My diognosis is PTSD and depression. I don't really have any interaction with anyone that would tell me if I seem to be acting different.. although my fatigue is so profound that it seems like one of my doctors would be able to tell when I am worse than other days.
Thank you very much for your kind words and helpful recommendations. I'm very sorry that you are going through difficult times as well.

Thank you MyWillow,
I wish you the best results, it sounds like you have a great team in place :)

I don't think I have the best doctors at the moment, but I have called every PTSD specialist in my city and none of them accept my either of my insurances, which unfortunately rules them out for me.
My doctors are nice and caring, but I definitely had much more structured therapy geared towards working to improve my PTSD symptoms when I had a specialist also. Mine moved out of state.
I have had a hard time finding something that I enjoy doing, because the only thing I feel like doing is laying down.. so laying with my dog is currently my one thing that I set aside time for.
I appreciate all of your tips!!
Thank you!
 
My parents are angry with my husband for destroying their daughter, which I understand. I wish they refrained from rolling their eyes. I am isolated, but it isn't due to the lack of friends, as I don't want to feel pressured to go places, although I am aware that isolation is considered a negative thing by all doctors. What makes me feel isolated is that I can't talk about my husband (of 13 years) and the love I still have for him. My Son told me he doesn't like me to talk about him, because it's painful, so I respect his wishes.
As a parent, I can understand that, however, they should also understand that their anger toward your late husband is hurting you as well. If something horrible happened to your son, would you support him or would you roll your eyes? Seems like they're not being as supportive of you as would be helpful.
You can talk about your husband here. :) Maybe being able to talk about it, get it all out, will help. You need a chance to grieve, maybe. Tell us all about him. Anything you feel comfortable sharing. I do hope it helps. Sending hugs if you are Ok with that. :) :hugs:
 
I agree that you do need to talk about him. Have you looked into someone that specializes in grief and depression? Also, nature. My T reminds me that exercise and being outside is so so important in combatting symptoms. Your health problems seem to be so much to handle on top of everything else. Do you have a diary on this site? Let me know and I will check in on you.
 
I agree, my parents would argue that they are supportive. I learned not to mention things that would result in a negative reaction. My son calls me when something happens because he knows that I will do everything I can to be helpful, even if I decide to include some advise, its in a helpful way.

I would like to be able to talk about my husband here. We shared many good times over the 13 years we were together. No relationship is perfect, but I always loved him and still do. There isn't a moment that passes that I don't feel like he is supposed to be here.
Thank you ?

Skywalker,
Yes I have gone to some groups which I found to be traumatizing to see others in during such pain.. it never made me feel comforted, just more sadness than I could bare. And I don't have a lot of time with my therapists, so when I start to cry they transition the conversation into something positive to focus on, to insure that I leave on a positive note.

I actually crave seeing nature! Pretty trees, waterfalls, and the ocean! The old me would have chosen shopping over the outdoors, but that quickly changed with PTSD. I had to move back to my hometown, which has the worst air quality in the nation, and nothing but dirt. It's a 2+ hour drive to the beach, mountains, or trees. I have looked up all kinds of places I'd like to go but I have some roadblocks keeping me from going.
The main issue is that I'm on blood thinners and my parents don't want me traveling or hiking alone. I've had some bleeding emergencies that made it a realistic concern. I don't have anyone to go with me, and I don't have gas money to drive out of town.
But I look at pictures of amazing places online often, and can almost imagine actually being there.
 
@NicknameB,
Welcome. I’m so sorry for your losses. I know several women who have gone through major depression after their children leave. That alone can be tough. The trauma and loss that you experienced with your husband topped off with your health issues is a lot. I hope that you are able to acknowledge that you have been through a lot and have plenty of self-compassion.
Women go through lots of different stages of our lives and wind up re-inventing ourselves, multiple times. I’m not the same person I was when I graduated from high school, or college or got married or had kids. Some of those changes were subtle, some were fun, some were almost effortless. But the person I was before my trauma and the person I am now are also different. That wasn’t a change I wanted, expected, or needed, and moving on is hard. Focusing on something for the future helps.
Give yourself credit for getting to your doctors appts. Not everybody does. Build on that, something small. Stop somewhere. Near a bridge or a park maybe before or after your appointment. See if you can make those stops a little bit longer gradually.
I make appointments to force myself to get out of the house. I have places I can go, but sometimes, I just can’t.
If talking about your husband helps you, do it. Do it here, journal, blog, whatever works best for you. Check out the book, #posttraumaticgrowth. You should be able to get it online.

Take care of yourself.
IQC
 
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