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Sufferer I'm Tim, A Noob, Father Of 3 Yr Old Child Having Chemotherapy

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Tim in tn

New Here
Since 1 yr ago, when my precious little 3 year old boy was diagnosed with an extremely rare disease (3-5 children per million) that causes random tumors, my life has spiraled out of control. I thought I was going crazy. I finally sought professional help and have been told that I am showing 2 of 3 symptoms of PTSD, common amongst parents with children with cancer.

I'm not sure what to say. I'm afraid of my own shadow which is unacceptable for a man in this world, but I can no longer hide from everything due to this fear. So here I am. Sorry to sound so pitiful, but basic daily tasks have become so so difficult over the last several months and I was told it would help to reach out to others who understand what life with PTSD is like.

Thank you for reading me,
Tim
 
Hello Tim,

Welcome to the forum. :)

I am sorry your little one has to go through what he does, and you as his dad as well. I am glad you have sought professional help; I imagine what you're going through is just too much to deal with.

Many people here will be able to relate to what you're saying, for example the feeling of going crazy and life spiralling out of control. We all have different experiences that caused our PTSD but on the whole I think lots of people here understand.

Again, welcome.

p-no
 
Hi Tim from TN!
Did you catch Kathie Lee and Hoda at the University of Tennessee this morning?

First, I want to tell you how sorry I am that your child has cancer. It is a terrible disease! I cannot imagine having a child with a serious illness and I can only imagine that EVERYTHING you are going through is so very justified. I hope you are able to find some peace and stability during the process.

I am sending Strength, Love, and many Prayers to you and your child! Keep the faith and keep posting! ((hugs))

Cancer Sucks!!!
 
Hi Tim and welcome to the forum. Like Ayesha said, you are not alone. I am sorry for what you have been going through. I cannot imagine what you feel. I lost my 30 yr. old son to a motorcycle accident so I do know how it feels to lose a child. I do not compare your anguish and pain to mine. My heart goes out to you.

They have a forum here called the trauma diaries. Mabe you would consider starting one here about your experiences with your little one. You would get alot of help, support, and encouragement there.

You must be beyond exhausted and so depleted with grief. Your fear is understandable. You will heal from this but it will take a long time. i am so sorry your little one is suffering so. I wish I could give you a big hug. Please keep on talking about it and get it out of you. You must be have alot of inner strength and character.

I do not blame you for being where you are in life. I cannot imagine the horror and terror you know. You came to the right place. The people here are so wonderful. It is a very safe forum. No trolls or flamers allowed. So you do not have to worry about that. Take good care of you. You will need much as time goes on. We will be there for you. Big hugs.
 
We all have different experiences that caused our PTSD but on the whole I think lots of people here understand.p-no

I completely agree with Prime-no. I have found others on this forum with completely different trauma experiences that are going through the same difficulties that I am.

I can't imagine how it would feel to be in your situation and I am so sorry for what you and your family are going through. But I do understand the way PTSD seems to take control of your life.

I have found this forum VERY informative and supportive. I am sure you will too.

Welcome!
 
I'm sad for the pain you are enduring. I'm glad you found this site. You can be angry. You can be sad. You can be bitter. You can cry. You might even be able to find something here that can make you smile. We will support you through it all.

If it is ok, can I pray for your child?

Peace for you and your precious child.
 
Hi Tim,

Welcome to the PTSD Forum. What everyone has written is true about this site and I am sorry that you, your son and your family is having to go through this experience.

I have PTSD from other trauma in my life, but right now I am battling cancer and my daughter is also battling brain cancer. I can honestly say this site and the support of the members has helped me keep it together more times than I can count.

Definitely reach out to the hospital staff as they may also be able to direct you to a therapist and a support group for parents. Reach out for all the support you can get as it will benefit you and your son in the long run.

Deb
 
Hi Tim,

Welcome to the PTSD Forum.

I am so very sorry about your little boy and how this is affecting you, and your family. I have a three year old little boy and I can't imagine the pain you are in with him having this terrible cancer.

I really hope you have support and I hope this forum helps you too.

Shellbell
 
As I read all of these responses, it was almost as if I felt like I could finally catch my breath. So I just kept reading over and over..lol. Thank you all so much. I had no idea that other people understood. For the longest time now, I really thought I was going crazy, that maybe dementia was setting in early.

I have learned a little in the last week. Apparently I need to learn to grieve. I figured that was just automatic, it happens on its own, then you move on. It looks like I was wrong about that.

1 month after my son's diagnosis and after many nights of surgery and hospital beeps and clicks, (sounds that later began to haunt my dreams) and watching poisons being injected into his little body, we found out we were going to have our 5th child. What a joyful celebration in the midst of so much calamity. However, it wasn't long after, that we found out that we had lost our 5th child. This devastated all 6 of us, especially my wife. I had to stay strong though, had to be strong for my wife and my children. I dove head first into finding a cure for my little boy. Somebody had to save him.

A young man from our homeschool group and from church who had been there daily for our other children during all of this was coming over to be with them after they were told their new little sibling had passed away. We were sitting at home waiting on him. You always knew when he arrived that the room would light up, he had that gift which was remarkable for a 17 year old. He was late though and that wasn't like Matthew. Shortly after we receive a call that there has been a very bad wreck and the end of our street. I felt a sickness in my gut, but thought surely not. It was Matthew. As he turned off of the main highway into our neighborhood, a car doing over 80mph in a 45mph zone hit him and instantly killed him.

I believe it was this event that began to cause my 17 year old daughter many issues. She could not sleep and was soon diagnosed with an anxiety disorder. Not long after, my 17 yr old baby girl started making many choices that just weren't like her. 2 months later she told us she was moving out and getting married. It felt like I had lost another child. Our family of 6 was now a family of 5, or so it seemed. I have begun to see that differently, but the effect of it must have lingered.

I know things will somehow work out, but I sometimes wonder if that's true. The other day I was in line at the grocery store and heard a loud beep that reminded me of the hospital monitors. The panic that overcame me from a simple cash register beep was unbearable. I left everything I had spent an hour shopping for and walked out to escape for fear of passing out right there in the store. These are the daily things that I have told no one about, well, not until now. I have to now because they only seem to be getting worse, not going away.

Thank you again for the warm welcome, the kind messages, and the caring words. It already means more than I can put into words here. -tim
 
My heart goes out to you. You are doing well writing it down and getting it out of you. I encourage you to keep on writing and get the release of letting it go and recieving help and support. You surely have been through so much, no wonder you feel the way you do.

I think you are normal for what you have been going through. You have suffered so many deep losses. That is alot of grief and anguish. Do you journal? I did that and it helped me to sort out alot of things.

You and your family are in my prayers. Big hugs.
 
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