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DID Thought i was cptsd and could not get better .... new diagnosis did

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shiraz

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It took most of last year to come to terms with the idea of being DID (Dissociative Identity Disorder) and now that I have, everything changes.

About a year ago I went through a period of very vivid flashbacks in which I began to act like a very young child. DH was with me onet night and began to speak to that little person, helping her through the flashback and asking her for a few more details. I was present the whole time, just watching from inside, kinda like from inside myself and becoming more and more aghast at the words coming from my mouth. This little one began to put pieces to the puzzle that we had never even imagined existed.

My T at the time didn't put too much weight on the situation and just suggested I find out if the little girl wanted to say anything else. Well, we never saw her again and T led me to believe that it was just my inner child, the one some T's get us to connect with from time to time during stressful and over emotional periods. I had all but forgotten the experience and nothing like this came up again for most of last year.

Around October last year, I began to feel a physical pressure building, like trying to hold back a tidal wave. I would go to T and just sit and shake and weep (very uncharacteristic) with a very clear feeling forming behind it all that :He (T) would not believe us. T suggested that I was in fact the one that would not believe and I would go home terrified by my research into DID and wondering if it was true, was it me that could not believe such a diagnosis - the answer. YES! I could not have DID, I could not have that!

The end of October brought two house guests and one crazy weekend of triggers and chaos which ended with me moving out for a few days to finally face it, whatever it was.

I had paper and pen and wrote down every thought and image which came to me. I simply asked 'who is there' and within an hour had discovered the names of three personas, who I realized had been there all along but I had not recognized. They knew each other and could interact and were happy to cooporate with me. Two had very specific traumas they were stuck in and one was a protector personality. Three days later I knew of eight personas, one of which is still unable to speak of her trauma and the other seven are all communicating and participating in therapy.

I found a T who specialized in DID and was told that DID is a very intelligent and creative coping mechanism (that mad me feel better) for people who have experiences very sever abuse. The new T helped me accepted these personas as parts of myself which need to be re-assacociated to one another so that they could all begin working together to give us all a healthier and more fluid life.

That healthier and more fluid life is still a long way away, but at least now within reach. Therapies such as exposure therapy are out of the question now, purposefully triggering children only adds to the trauma. We make use of EMDR and EFT. A few of the 'kids' get together from time to time to tell me more about the abuse and they only do so when they are not triggered. It is all about feeling safe and nurtured and they get plenty of that.

What I thought was cptsd dissociation and could spend hours trying to move, I now know is something altogether different - it is the overwhelm of too many personas all flooding emotion at once or all trying to be conscious at the same time ... I am learning how to communicate with them and they are learning how to hear me and respond.

There are way more than 8 personas now and a few more each month as everyone hears that it is safe to come out now. They pop up and speak at calm times, looking for shoes or being wowed by a movie .. it is sweet. It is no longer anything to be afraid of, It is a relief to finally have a diagnosis - this coping skill - to be off all meds - to sleep when I can get everyone to be quiet - to remember who I am without the constant fog of dissociation - to calm a little one in a flashback, even though i can feel it too - and every now and then to share the fun stuff - being overwhelmed by a christmas display and too many flavors of ice cream ... I get to relive childhood again!

I have been wanting to write this for a while ... a few of you talk often about your inner child struggling. It took me 43 years to be on the right healing journey for me. We all know we don't want to be on the wrong journey, we don't want to miss a day of not being on the right path - it takes too much from us, demands too much from our souls. I wanted to share my journey in case anyone reading realises they might be on the wrong healing path too. If you think this might be you, please ask for a re-assessment. I am co-conscious with all my personas which I why I never once thought I was DID ... to have DID one should lose time right? Not right? I don't lose time, I never have, but I am DID.

I would gladly respond to questions here and answer pm's to the best of my ability.
I have been on this journey for four months though ... it is all still new to me.
 
It is very refreshing to hear your story. Mine is somewhat similar.

After believing (for many years) that I have PTSD but having no validation for my beliefs I ended up finding out approximately one month ago that I was diagnosed with PTSD back in April of 2011. I just wasn't told (it was assumed that I knew). So, this non-trauma focused T inadvertently triggered me the other day and then got mad AT ME for my reaction. I didn't know it at the time but I had dissociated from about halfway through that Tx appointment (on a Friday) until about halfway through next Wednesday (when I felt like I *woke up* so to speak).

I then very much accidentally came across a blog about DID and I have NEVER felt more "at home" than when reading the blogs of a few DID-ers. I now have an intake appointment set up with a psychiatrist at place which offers exclusively trauma-focused and EMDR therapy on this coming Tuesday 2/25.

Ironically this is also the 5 year anniversary of my Service Dog's passing. I can now look back and say he definitely stopped me from dissociating on several occasions and met quite a few of my alter personalities (SOME of whom I am co-conscious with). Can't wait to hear what my new Doc and T have to say. Perhaps I'll finally find my much-needed validation as well; either on Tuesday or in coming-weeks.

Thank you again for your post - it's nice to not be alone and to share camaraderie with others who dissociate (as I'm sure many do but I've just never had opportunity to talk to them).
 
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Thank you Snafu for the encouragement - all the best to you on your journey too.

DogMom, I'm so glad that you will finally have a voice! Validation is so important - as soon as my new T said 'yes, this is DID' I almost cried, I had been needing to hear it for so long, needed to turn that corner and allow myself to walk a different direction - it was a very powerful moment. I wish you all the best on Tuesday! Let me know how it goes!
 
Shiraz - just dropping in on your thread to say hello from an old friend :) So glad you've gotten a helpful diagnosis and are making progress!! Wishing you (ALL of you!) nothing but the best as you move forward :inlove:
 
what a lovely surprise Mina! It is lovely to hear from you. I just had a quick look round - hope you don't mind - I am really sorry about your grandfather passing, I hope you are finding peace. As for the job leaving - great way to go about it! Loved the calendar idea - very empowering and so now you have your freedom !!!!! And time to recover. I am busy reading a book called the power of the introvert - trying to teach some of my 'people' how we can use introversion for our advantage instead of trying to pretend that we are extrovert.

After that I need to find a book about the powers of multiplicity - so that we can stop trying to present as singletones .. if it is out there ... lol

Anyway, just thrilled to hear from you and wishing you all the best.

Care and concern
Shiraz
 
@shiraz

Just thinking of you today.
I miss feeling like I could communicate with you.:(
I don't know what happened between us, we were having such a lovely conversation, at least it seemed so.:(
Then I signed on to the site and :speechless: boom...our conversation was locked and I couldn't open your profile page to say hi or ask what happened.
I was stunned:wideeyed::wideeyed::wideeyed::wideeyed::wideeyed:.
I mean I respect boundaries and am respectful and kind. I don't know what I missed.

Anyhow, I don't know if you'll ever read this or if you'd even want to, but fwiw I'll miss knowing you and I'm so very sorry.
I have never met anyone online EVER that I felt such a natural connection with and now you're gone.:cry::cry::cry:
Just know that I care and will never stop.
Namaste.
May peace replace your pain.:hug:
 
This is a very encouraging post to read for me today. Thank you for sharing this.

I am possibly in a similar situation. I don't have the Dx for sure yet because I suspect and am afraid of the Dx, just as you said. Yes, my DH has had to talk to a child who took over for whole days. As her I remembered trauma that I don't normally have any access to from that angle but already knew happened, without specific memories.

My specific questions is, Does getting off of meds help with DID or does it really depend on the person, in your experience?

Thank you for any thoughts you wish to share, and if you don't wish to share, that's okay, too.

Muse
 
Hello Muse,

I remember those early days of coming to terms with the dx ,,, I was in such chaos .... I really did not want to be DID ... it scared me silly! And then, I realised that if I am DID ... I have been DID all along and the DID system has been supporting me all these decades, so, nothing to be afraid of at all.

I has been living consciously DID for almost 2 years now and it has been a remarkable journey filled with much pain and much joy. Knowing now that the CPTSD symptoms are not my own but 'someone' else's has relieved the chaos greatly and given me the opportunity to help heal many of my parts. I don't think this would have been possible if I was on meds - meds muddle it up too much for me. I need to be able to feel everything, the highs, the lows, the choas ...so that I can help my system heal.

If I am feeling irritable, I need to be able to identify that the irritability is not my own (it might be my own) and then find out who is irritable and why. If I am feeling depersonalization, I need to know if that is me or someone else ... I can't do that on meds. There are many professionals in the DID field who do not advocate medicating DID and for that matter CPTSD. For me the symptom affected the most was the dissociation. Now when I dissociate, I pick it up as a road sign to what is happening in the system; there is internal conflict which needs to be sorted out. On meds, I was always groggy/foggy/froggy and couldn't find my way up to clear skies and this went on year after year after year .. no real progress being treated for CPTSD and actually became suicidal with exposure therapy, and no way to work with the symptoms ... well of course ... they were not MY symptoms ... I do not have CPTSD ...most of my personalities do!

I went onto meds in the first place as I was suicidal. At least I thought I was suicidal. That was inaccurate; one of my personalities was suicidal and even that is not 100% correct. One of my personalities wanted the pain to stop and thought that putting herself to sleep forever was a reasonable escape and that it would not affect anyone else. I worked with her this last year and she has since integrated .... no more suicidal fears. if I was still on meds, I would never have figured this out.

It seems to me, from your post, that you and DH have met at least one other personality. This is a good sign, she felt secure enough to come out and share herself ... this is a very good sign that your system is ready to start discovering themselves in the present. i would encourage you to find a DID specialist and get a dx. true healing can only begin with an accurate dx, no reason to waste any more time.

And one last thought, coming off meds was difficult, but finding myself clear and light and breezy on the other side was a real fantastic reward. There are many alternative natural meds you can use (just not weed - weed is going to make you foggy too). I have been fortunate enough to find a therapist who agrees that meds are not appropriate for my dx ... that has also been helpful and the only natural alternatives I took in the beginning were for sleep ... but I don't even need that anymore ... good nutrition, hydration and exercise are all that are needed to keep me stable.

I wish you all the best! Please keep communicating (here or PM me) - I would love to help if I can.
 
Knowing now that the CPTSD symptoms are not my own but 'someone' else's has relieved the chaos greatly and given me the opportunity to help heal many of my parts. I don't think this would have been possible if I was on meds - meds muddle it up too much for me. I need to be able to feel everything, the highs, the lows, the choas ...so that I can help my system heal.

If I am feeling irritable, I need to be able to identify that the irritability is not my own (it might be my own) and then find out who is irritable and why. If I am feeling depersonalization, I need to know if that is me or someone else ... I can't do that on meds. There are many professionals in the DID field who do not advocate medicating DID and for that matter CPTSD. For me the symptom affected the most was the dissociation. Now when I dissociate, I pick it up as a road sign to what is happening in the system; there is internal conflict which needs to be sorted out.

I hadn't caught this thread before, but it is SO fitting to my world with my man .. he is "undiagnosed" and we have somewhat landed on c-PTSD Dissociation (honestly, yes, we have been "avoiding" DID as a real descriptor, too), but now I wonder .. He doesn't "lose time" in the conventional sense, because he is also co-conscious, so he "knows" for example, when "Grumpy" (protector) takes over - even if it's for days - in fact my man feels "imprisoned" by Grumpy during these stretches, says he doesn't like it, but seems always to admit that Grumpy "knows what he's doing" - because he's picked up some external threat and takes steps to protect himself....

But this above quote? Was HUGE for me .. because I think it is accurate to say that the core person, the "heart of the man" as I say, is NOT traumatized - because the others carry the trauma for him. So his "trauma" is more the ongoing fall-out from the "others" trying to deal with theirs. His body will jerk and spasm, usually when sleeping but sometimes when awake, he will blurt out things - often unintelligible syllables - which we have somewhat identified as "Little" trying to speak to something, because it's usually a "silly" thing or when my man is particularly happy. Or, in darker times, "Grumpy" (I am trying to see if he will consider calling him Watchman, or Protector instead, cuz "Grumpy" seems negative! ;) ) will "force" my man to do things that when he is awake he really regrets - like dealing out some kind of punishment on a perceived opponent.

A complication - we are in agreement NOT to seek official "dx" at this time .. there is too much going on in and around our situation to make this a wise option right now. So if you know, going in, that we will not have a professional T to assist, or financial aid for medical evaluation/treatment, what might you suggest we could do ourselves to encourage internal communication? (I am the first person in his life he's ever felt "safe" enough with to even SHOW his "sides" let alone operate as a whole person with me - because he knows I can adapt to his "switches" and that I love ALL of him.)

That's perhaps a big question for a post like this .. nevertheless, the SUGGESTION that the trauma is NOT his, that HE can be "in control" of helping his "others" heal from theirs .. that was a big "AHA!" moment for me! I would love to chase this for his peace of mind!

:) :inlove: :)

~S2B
 
Hi ptsdspouse2b,

Your man is one lucky guy to have such a supportive SO! You are already doing a lot just accepting the diagnosis and adapting to the switches (understand you are not talking dx in any finite terms). I think there are many cPTSD dx that are actually DID.

So about internal co-conscious communication ... that would be your man and his personas learning to communicate ... first step is his openness to the idea and then him letting everyone know they are in a safe environment and safe to 'come out' and experience life in the present. next up would be letting everyone know he appreciates the jobs they have been doing and that he would like to get to know them ... he can't stress this enough, and he can't tell them often enough .... very little ones need to hear it every day.

This is literally what I did and everyone started speaking ... 'speaking' for DID would be like hearing your own thoughts .... it is difficult to trust you are hearing, but you do get used to it. Everyone will have their own name, so he can ask Grumpy what his name is ... it might even be Grumpy, if that is how he has identified himself, and then that name should be used until the personality decides to change his name. Everyone will have a name a gender and an age. In DID world we call them Littles, Tweens, Teens and Adults.

You have probably realised that DID personalities are highly sensitive to judgement, guilt and shame and will quickly move back if they perceive any of these threats, so it is important to be conscious of being respectful, polite and most of all compassionate ... they have been through a lot keeping your man safe and functional all this time and they deserve the utmost respect from both of you. Many will not have full language (yes, I ramble too and mix up my idioms and have odd words popping up and sometimes I am just mute - so much fun!) and some will not want to show themselves in language but will be out in different ways, i feel them in the body and my co-ordination might jump to that of a 2 year old for example. It is also important to speak to them in age appropriate terms and content, e.g. don't discuss financial problems if there are Littles out, it will just scare and confuse them. Speak to teens as you would adults, but don't expect them to be adult in their processing. Don't push for information, but let them know you are listening, they will communicate what they can when they can. If someone is out, they (a) have something to say or (b) want to see what life in the present is like or (c) want a peanut butter sandwich (or something). He can ask 'Is there something you need?' "Is there something you want me to know?' if there is no answer, assume they are not ready to talk and just want to hang out.

.... I am going to take this conversation to PM now. I am not sure how the admin feel about DID chat on a PTSD forum .... I am really happy to help anyone who wants to chat and will also refer you on PM to some useful sites.

I am so glad you reached out !!!
 
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