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Undiagnosed 25 Years Later...

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Riot

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Well, I'm here.

At some point in my life between 6-8 (it's a bit foggy and fragmented) I was violently sexually assaulted by a 17 year old neighbor that I didn't know well. Really though, it started before that in different ways, with parental abandonment and neglect. It was no wonder that when I finally came crashing (well, okay, shaking and on the verge of a panic attack) that I didn't even know where to begin when my psychiatrist asked me, "So, what brings you in?"

I know I still have a long way to go, with only three weeks under my belt. On my second visit, my psychiatrist told me that what I described sounded like PTSD. I left with mixed and confused emotions, mostly due to the severe anxiety I've suffered most of my life in talking with a total stranger about intimate issues, but after reading up on CPTSD privately, I'd have to highly agree with his observation.

The hardest thing, I think, isn't so much that I disagreed with his idea that this might be what it is. On the contrary, I feel very strongly that most of what's going on right now is CPTSD. I just lacked the vernacular of the therapy world to describe what I was feeling into something that made sense.

For example, flashbacks. PTSD always seemed to me to represent combat veterans, people with 'shell shock' so to speak. I know, I'm groaning right along with anyone who might read this... but it's true. And although I did suffer a very 'true' trauma (sexual assault as a child) I didn't realize how long it can last untreated, and how much more complex (do you see what I did there?) it can be. As if it were ever that simple, right?

Well, by the last visit, I did inquire about it, but I felt like maybe my psychiatrist was being evasive about the possibility in our previous session. I told him that I really felt like he was right, and volunteered that I read up on CPTSD. He explained that he prefers to approach the symptoms rather than applying labels. While I understand this, I have mixed feelings on it. (Some of which are insurance purposes, as I would have more coverage if it was diagnosed.)

My anxiety is what is kicking me in the teeth in effective communication, but I am really feeling impatient about the evasiveness in just giving me a general idea of what he thinks is going on. For me, this is a big trust barrier. I feel like he had me pegged from our first session, and like he's waiting for something, I just don't know what. Similarly, I'm waiting for him to acknowledge that he sees me suffering and puts a word to it for better communication. (So I know what sort of words to use for certain feelings, etc.)

The second reason is, I have told him I feel like I'm going crazy. He asked, "What do you mean?" and I feel like if he could just give me some general idea of what might be going on, I could just use the words (that I have now learned are in fact what I'm experiencing) instead of wasting time stuttering out obscure descriptions or scene-by-scene recollections that cycle me right back into PTSD mode between sessions. (Which hey, I learned about those, too.)

Now I'm just afraid that when I see him again, if I use 'his' language, he's going to see me as self diagnosing, and I really very badly want help, but I'm so exhausted all the time and I have a toddler that relies on me to function. I can't shoot off into disassociation mode for two days every time I see him, especially if I seek help for her care taking and need to answer to other people as to why I need the help in the first place.

I know that this isn't exactly rational, but at the same time I think it'd make between sessions so much easier if there were a little validation. I need to be able to talk to my husband, and open up certain barriers that have kept me from getting close to him when I feel vulnerable. Coming home and describing to him that we just 'talked about feels' and 'reminisced' doesn't exactly feel satisfactory. I want to tell him, yes, I have CPTSD, here's what we can do, and here's what you can do.

Furthermore, I know that he has to take family history. Absolutely, and truly. I have no qualms about this. I have made a lot of truly remarkable realizations myself, too. I acknowledge this, too, is also part of the process. I guess I'm just super anxious, and I feel like the chief complaint (nightmares/flashbacks/disassociation) from my childhood (more classical PTSD) hasn't even really been mentioned since then, and I feel clueless as to what's next.
 
Hi Tyke,
Welcome to the forum!

That feeling of being in the "Red Pill" scene in the Matrix, or like waking up as a character in a Philip K Dick story (who am I? and is my life really what I remember?)... sucks. We do adjust to it though.

Well done for sticking with your T, long enough to get some realization that PTSD really does apply. I was in the same sort of total disbelief when PTSD was first suggested for me. I was in so much disbelief that I lost all trust in the guy and never went back. As a result, I wasted several more years, and a marriage, before I found the idea of CPTSD and realised that it explains so much about me.

This is a really great place.
We all got here by different :poop: (the traumas all different and individual - they can't be compared, all that can be said is that what got each individual here was bad enough to get that individual here), but, you can rely on there being a bunch of really great, compassionate people here virtually 24/7, who really get it. they know what it's like.

There are some articles on the front page here, which might help you and your husband understand better, and there is also a forum for supporters.

:hug:@
 
@Anarchy, I just felt you should know, I totally tried to snag your name. I have a feeling we'll get along just fine. ;)

As for disbelief, well, I don't think I did. I'm just having problems getting a direction from him, and I think that's where some of the hangups are. For example, I really want to just get this whole childhood sexual trauma figured out. He knows I have experienced it, just not in great details. It's just sort of sitting there in the first session quietly brewing a storm.

Thanks for the response, it means a lot to me!
 
Hi. I joined here this morning. Hope you are ok.

My experience with counselling is that it is hard work. It's good to stick at it. Sometimes you may want to run and never return but to tell the counsellor where to go. Sometimes you may feel ecstatic. So many emotions.

Please know you will be ok. You're not alone. Huge hugs
 
@Poppy Petal, thanks. I'm okay right now. It comes in waves. I know therapy is hard, I just want to feel more active. I have no clue what I'm supposed to do. Am I shooting the shit? Describing symptoms? Telling him how my week went? I need a common vocabulary, some sort of meeting point in where this all goes. That is my frustration. (Well, heh...)
 
Dead Link Removed, I just felt you should know, I totally tried to snag your name. I have a feeling we'll get along just fine. ;)
:):hug:

As for disbelief, well, I don't think I did.
That's me reading too much into your paragraph about mixed emotions after the first session.

I'm just having problems getting a direction from him, and I think that's where some of the hangups are. For example, I really want to just get this whole childhood sexual trauma figured out. He knows I have experienced it, just not in great details. It's just sort of sitting there in the first session quietly brewing a storm.
Going to a trauma memory, isn't straight forward. Theyre usually in fragments, and they're dangerous to us, it's easy to get sucked straight back there and re-traumatised.

There are ways of dealing with them, that don't simply result in re living the terror and reinforcing and exercising the brain circuits which hold the memories, but like competing at the olympics, it needs a lot of preparation before you get there.

You can do some of the stuff yourself, without worry of it interfering with what your T is doing. One of the most important skills you'll need is "grounding" - pulling yourself out of a flashback or triggered state and into the present.
I'm on a machine that I know how to post links on today:singing:, this should give you some background https://www.myptsd.com/threads/grounding-techniques-group-effort-article.57440/

There are also "Mindfulness" skills
People with PTSD are typically hypervigilant, and we often have a ferocious "inner critic" so some of the more outlandish meditations can leave us feeling like http://i.imgur.com/o0C4FPs.jpg
Ganon explains it well:

If you search youtube for the full audiobook of "the mindful way through depression" and download it, then listen to about 10 minutes or so at a time (there's over 5 hours there in total), it will get you started.
I won't post a link as youtube keeps taking it down due to copyright, and for that reason links soon go dead.
:hug:
 
@Anarchy, thanks for the response again. Yeah, I think so. He didn't mention PTSD in the first visit. I have been having a very difficult time between sessions. Well, yesterday it started getting better, but the anxiety and anticipation is certainly high. I won't see him again until the 16th. I'm very happy I learned about grounding yesterday, but this is sort of... what I was talking about. I feel like if we had just, like, not circled around the issue a million times he could've helped me with some between session coping. I'm not intending to blame, I'm just crash coursing and it's difficult. (PS: Check out my new name.)

@intothelight, heh, I have no idea what that even means.
 
I feel clueless as to what's next.

Basically a treatment plan is an type of outline as to what steps are to be taken to help you get better. It is important for you to know how the doctor plans to proceed so you can express any concerns or perhaps prioritize areas that are of greater concern to you.
 
@intothelight

I can see that. I'm sort of just scratching my head at why this hasn't really been offered yet. I feel like he understands that I'm struggling to communicate.
 
Now I'm just afraid that when I see him again, if I use 'his' language, he's going to see me as self diagnosing

Welcome to the forums :)

One trick here, is to tell him you've been reading & to ask for his advice/clarification. AKA Is XYZ Disassociation, when you're doing ABC panic attacks, & what are some other examples, etc. That way you're both speaking the same language, but there's a dialogue between the two of you establishing a baseline of what each of you know & understand.

As far as diagnosis goes... I am a huge proponent of diagnosis (because treating the wrong thing? Wastes years & causes serious repercussions). That said... Proper Diagnosis is a bit of a process.
- First off all medical causes / contributors need to be ruled out, which means sending you for a very thorough physical, and sometimes further testing by specialists.
- Secondly, an initial diagnostic appointment generally runs anywhere from 3-6 hours and includes a whole lot of testing (because disorders all share symptoms), followed by a secondary appointment that goes through all the subjective results of that testing, which can take just about as much time. These appointments usually aren't covered by insurance and run anywhere from $500-$1500 depending on your region (it was $800 for my son's most recent ADHD diagnosis which is normal for my region, my PTSD diagnosis was paid by the military).
- Conversely, instead of a few massive appointments, a diagnosis can also usually be done (after the medical appointments) over about 3 months of normal sessions with a little bit here, a little bit there, so it isn't a huge stressor to lay on a client (emotional or financially), and still get them the acute help they need surrounding pressing issue.

My own diagnosis included some from column A some from column B. A few 500 question tests, and 3 solid days of observation. So there's a number of ways to go about diagnosing someone in an ethical manner... But the one thing they all share is that they take a great deal of time to do right. While someone can get a feel for someone, right off the bat? The actual process of making it official / ruling out all the other possibilities is a pretty intensive thing. Especially when someone is having a lot of problems right now, a lot of professionals prefer to hold off on the official diagnosis & get a person immediate help with what's going on in their lives... And worry about what to call it, later.
 
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I want to tell him, yes, I have CPTSD, here's what we can do, and here's what you can do.

CPTSD isnt in the DSM 4 and he cannoy diagnose you with that. He can dignosis PTSD.

Also, going around insurence, labels can do more harm than what they are labeling so i think he wants to treat without labeling it. Have you seen tour chart to see if he has in fact diagnoised you?

I have CPTSD, here's what we can do, and here's what you can do.

CPTSD isnt in the DSM, here is Anthony's information on it, but you cant be "diagnosed" with it:

""Whilst PTSD requires abnormally traumatic events as diagnostic criterion (and though complex trauma is entangled within that requirement), the PTSD diagnosis fails to concede to the longevity and duration that complex trauma encapsulates. Examples of trauma which fit the criteria for CPTSD include:
Physical abuse - ongoing, typically administered within a family or by caregiver / Domestic Violence (DV).Sexual abuse - ongoing, typically administered within a family or by caregiver / friends of family / DV.Imprisonment - prisoner of war / incarceration / forcible confinement for long periods of time.Repeated tours in combat.Other possibilities."

Secondly, an initial diagnostic appointment generally runs anywhere from 3-6 hours and includes a whole lot of testing (because disorders all share symptoms), followed by a secondary appointment that goes through all the subjective results of that testing, which can take just about as much time. These appointments usually aren't covered by insurance and run anywhere from $500-$1500 depending on your region (it was $800 for my son's most recent ADHD diagnosis which is normal for my region, my PTSD diagnosis was paid by the military).

FJ, depends on the Dr & the insur. All of my diagnosis was inside of a normal appointment and took about a half of a session to talk about my symtoms, read in the DSM one at a time and agree on which ones i have to be dignosed. Some have to take like tests, i didnt on any of mine.

But thats true with some.
 
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