Hello,
I am a caregiver for my lovely spouse and friend. Here I will call her Mary ( not her real name ).
Mary has PTSD and MS.
Her PTSD traumatizing event occured in 1975. Her conscious awareness of some of this event became apparent in 1998 by means of EMDR therapy. She shared these reliving sessions with me. This sharing caused me also to suffer. I thought I could handle the terror, fear and anger that came to my ears.
A Robert Ludlum book is a fraction of the amount of strangeness I was hearing. I hope this does not upset anyone. I just need to express this to others who might have a similar plight.
Anyway I pretty well lost all sight of my life's direction, not to mention what my wife was going through.
Soon after the EMDR sessions ended ( 1 per week for 10 weeks ) Mary started experiencing physical symptoms such as incontinence and falling through her left hip. Disoriented, seeing blue spots and experiencing flashbacks through her various senses. These symptoms became more apparent as time went by.
In 2003 after a trip to her homeland her symptoms were so bad she needed to go to the emergency department in our local hospital. So to make a long story short and many visits to various neurologists and neurosurgeons a diagnosis was made of PPMS ( Primary Progressive MS ) in late summer of 2004. Prognosis was no hope of recovery.
When I mentioned Mary's trauma event to a neurosurgeon and that there was probably a connection here, the reply was. "Well. everybody's got a theory". This doctor's view point seems to be acceptable in those circles. This I believe is very detrimental to one who is a PTSD sufferer. I also believe her diagnosis is a mis-diagnosis. Perpetrated by the various neurologists who do not want to look further then what the general belief is regarding MS in their circles. It seems no one wants to rock the boat to much.
Well I would like to rock the boat and as Howard Beale said," I'm mad as hell and I'm not going to take it anymore".
The internet is giving much more power to the individual by access to others, professionals, scientists through journal and forums such as this one. It was because of a psychiatrist my wife was not given the opportunity to work through her trauma at the time. She was told to forget the event under hypnosis.
Ironically the lead perpetrator of Mary's traumatizing event was also a patient of this psychiatrist. A very wealthy and influential patient. When this information became apparent I lost most of my trust in authority.
Maybe more people on this forum have the same feelings, I don't know. I probably should stop now because my anger management is being stressed out to the limit.
Anyway I hope to let the good people of this forum now how Mary and I are coping with the unfolding and renewing of our lives. By the way Mary is recovering from both her PTSD and her so called MS.
Thank you for reading all of this.
Remember : Service to Others is the Best Medicine out there.
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I am a caregiver for my lovely spouse and friend. Here I will call her Mary ( not her real name ).
Mary has PTSD and MS.
Her PTSD traumatizing event occured in 1975. Her conscious awareness of some of this event became apparent in 1998 by means of EMDR therapy. She shared these reliving sessions with me. This sharing caused me also to suffer. I thought I could handle the terror, fear and anger that came to my ears.
A Robert Ludlum book is a fraction of the amount of strangeness I was hearing. I hope this does not upset anyone. I just need to express this to others who might have a similar plight.
Anyway I pretty well lost all sight of my life's direction, not to mention what my wife was going through.
Soon after the EMDR sessions ended ( 1 per week for 10 weeks ) Mary started experiencing physical symptoms such as incontinence and falling through her left hip. Disoriented, seeing blue spots and experiencing flashbacks through her various senses. These symptoms became more apparent as time went by.
In 2003 after a trip to her homeland her symptoms were so bad she needed to go to the emergency department in our local hospital. So to make a long story short and many visits to various neurologists and neurosurgeons a diagnosis was made of PPMS ( Primary Progressive MS ) in late summer of 2004. Prognosis was no hope of recovery.
When I mentioned Mary's trauma event to a neurosurgeon and that there was probably a connection here, the reply was. "Well. everybody's got a theory". This doctor's view point seems to be acceptable in those circles. This I believe is very detrimental to one who is a PTSD sufferer. I also believe her diagnosis is a mis-diagnosis. Perpetrated by the various neurologists who do not want to look further then what the general belief is regarding MS in their circles. It seems no one wants to rock the boat to much.
Well I would like to rock the boat and as Howard Beale said," I'm mad as hell and I'm not going to take it anymore".
The internet is giving much more power to the individual by access to others, professionals, scientists through journal and forums such as this one. It was because of a psychiatrist my wife was not given the opportunity to work through her trauma at the time. She was told to forget the event under hypnosis.
Ironically the lead perpetrator of Mary's traumatizing event was also a patient of this psychiatrist. A very wealthy and influential patient. When this information became apparent I lost most of my trust in authority.
Maybe more people on this forum have the same feelings, I don't know. I probably should stop now because my anger management is being stressed out to the limit.
Anyway I hope to let the good people of this forum now how Mary and I are coping with the unfolding and renewing of our lives. By the way Mary is recovering from both her PTSD and her so called MS.
Thank you for reading all of this.
Remember : Service to Others is the Best Medicine out there.
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