There is a reddit group called r/FND with other patients speaking about what helped them and some links to FND & NES resource websites.
There are also online videocall support groups which show up on the calendar if you sign up for emails at FNDHope.com.
I am not sure if they are also visible on the website without signing up for email because they were difficult to find.
Looking into how dissociative disorders are treated can be of some help since FND is connected to that.
And looking for PT that uses distraction & external focus and OT that teaches pacing. (Which examples of can also be seen on the YouTube channel "reactive therapy & wellness."
CBT is assigned to help reduce triggers (anxiety, depression) & can help with reframing catastrophizing thoughts about symptoms.
Many people have also improved mentally or had remission from FND after doing trauma therapy. (Some people learn how to adjust parts of their lives to the symptoms and slow down.) I don't think it's a quick process, more of a journey.
"Active relaxation" can be helpful (Therapeutic/relaxing things that are more of an activity than resting in bed would be.)
Treating mental health conditions & physical medical conditions has also helped FND patients with reducing triggers according to the support group.
Some people learn how to restructure their life - to go slower, take many short breaks to do calming/coping techniques such as breathing exercises when symptoms do come up/increase.
There is a woman with FND who writes a blog about her life and treatment called thrivingwhiledisabled.com
Another good website by a patient is FNDhealth.com but I am not sure if there is still a recently appearing issue with that website.
Neurosymptoms.org had some info on it including dissociative amnesia.
And FND hope.com has a directory map of providers.
Lorna Myers & David Perez have written about FND seizures & treatment if you also have those.
I am sorry about what you're going through. You are not alone in what you're experiencing even though both stigma & certain FND symptoms make people feel very alone (mainly I am referring to dissociation & depersonalization derealization or DPDR)
I hope that this information can help you since most doctors and therapists do not explain FND or are not very informed about it (if they know what it is) or share/know about resources for it in the area where patients live. (There are several FND treatment program centers located in certain states. Maybe 5-7. Not all have the same level of knowledge or are up-to-date on research about the condition)
