Has Anyone Been To A Neurologist

[Anita]

Has anyone been to a neurologist, have appt on Monday ,one of my psychs recommended I see one and also had severe jaw pain not caused by tooth or gum issues a few months ago, dentist recommended. It took months to get in.

 

[Lost in the Woods]

I have a neuro condition and I have seen countless neurologist’s. Be prepared to hear lots of “hmmmmms”. I think they teach them that I’m medical school. Most likely they will listen to your narrative and walk you through some tests. Then you may be sent out for a MRI and perhaps a blood draw. It is really nothing to stress about. It is very unlikely that you will get any real insight on the first visit.

 

[PamelaS]

Welcome to the forum, Anita. I agree with lost in the woods. I have been diagnosed with multiple chronic illnesses for almost 25 years now. I have been so sick that I have been wheelchair bound at some points. I had a dozen doctors who saw me regularly for a variety of different things. I have extensive experience with the medical field. I have had migraines and vestibular vertigo. That requires a neurologist. And I have seen neurologists throughout that time. Absolutely nothing to worry about. Oh, by the way, God, miraculously healed me of a lot of that stuff. I have been sorting out what is gone and what is left for the past few years. I am no longer in a wheelchair. I am no longer confined to my home. I am no longer spending the majority of my time in my bed with pain searing through throughout every fiber of my body. I have some minor symptoms of many of those things that come and go. And in the last two years on top of all that I have complicated mental health issues due to abuse. I have experienced abuse all of my life starting with my parents. My father was diagnosed manic depressive schizophrenic. He was extremely abusive, mostly to my mother when he was drunk. But my mother used me as her protector. When I was 16, he committed suicide. My first husband was just like my father. I was stuck with him off and on for 19 years. Don’t need to go into detail right now about all of that but there’s a lot. The final straw was when my body gave out from all of the stress, and I was flat on my back, unable to lift my head off the pillow with lupus. After being out of the house and safe for two years, I discovered that my husband had turned into a pedophile and had been abusing my baby son for up to three years. I never even suspected it. I was watching out for my 12-year-old twin daughters. I never even imagined that I needed to protect my baby. Now I know the reality of life. The reality of the evil that is out there. My son has been suicidal for 23 years, both active and ideation. Tried to kill himself at least 100 times. Because of my experience with my father’s suicide, I coached him all of his life, and he is still here. Until a recent day in a facility where they gave him medication for the night terrors, he had not had a decent night of sleep for 23 years. Now my current husband is a corrupt and abusive police officer, now retired. I’ve been stuck in this marriage for 21 years. No more detail details about that either for now. I apologize for over sharing. It’s something I’m working on.
Back to the neurologist, please feel free to ask me anytime about any questions that you have. I have not always agreed with the decisions of the neurologists and I have not always followed through with their recommendations. It’s our body and we are the ones who have the right to say yes or no. I have had extensive experience with the medical field. I’m here as a resource. Please feel free to use me. Don’t worry at all about any concerns at your first few appointments. And by the way, it takes six months to get into any specialist. I know because I’ve done it with many specialists. Be patient with the process. They’re just trying to figure out what’s wrong so they can provide their options to fix it. Western medicine, however, does not have all the options. Western medicine does not train in nutrition, nor does it in many of the benefits of eastern medicine. 25 years of dealing with all of this, I’ve gained a lot of experience, insight and wisdom. I spent three years doing extensive research into all types of medicine in order to help my body recover. I learned a lot, and I improved a lot. But I still wasn’t well. God is the one who made me well again. I was on my way out. My doctors were telling me there’s nothing more they could do for me. I refused to die because my son had finally promised that he wouldn’t harm himself as long as I was alive. But the moment I was gone, he was gone. I didn’t leave my apartment during Covid. A mother‘s burden for their child is far greater than in the other force, especially when we hold some responsibility for their trauma and their pain. I married the men who caused his problems. Did the best I could, but that’s not always good enough.
Again, I apologize for the over share. Move forward with no fear. They’re only there to help. Hope some of this has been helpful. Take good care of yourself. Have a nice day.

 

[Anita]

I just got out of psych-ward a few days ago and it’s also a teaching hospital with a school, it was embarrassing when I went for evaluation like one flew over the coo coo’s nest, students staring stearnly at me , looked away embarrassed cause I could not explain how I feel, told dr taking a too high dose of Zoloft and wanted to adjust it, he was combative verbally about it but all the meds prescribed gives me restlessness. I wanted to open up with you cause I have no family and don’t trust enough too make close friends.

 

[PamelaS]

I just got out of psych-ward a few days ago and it’s also a teaching hospital with a school, it was embarrassing when I went for evaluation like one flew over the coo coo’s nest, students staring stearnly at me , looked away embarrassed cause I could not explain how I feel, told dr taking a too high dose of Zoloft and wanted to adjust it, he was combative verbally about it but all the meds prescribed gives me restlessness. I wanted to open up with you cause I have no family and don’t trust enough too make close friends.

Anita, I’m so glad you opened up. I have a horrendous experience of six weeks in a facility where they misdiagnosed me and put me on antipsychotics. They did not even have PTSD as a possible diagnosis. I now have physical manifestations of the trauma in the form of bodily ticks… I am here for you and we are here for each other. You’re never alone.

 

[Lost in the Woods]

Wow, the misdiagnosis thing seems to be common. I lived with increasing PTSD symptoms for almost 25 years being told by the docs it was my neuro condition and nothing could be done about it as it was just my brain rotting. Turns out 90% of my symptoms were PTSD. I am probably the only person ever to be thrilled to get a PTSD diagnosis. There are things I can do about PTSD and I am doing them.

 

[Susan Jane]

Anita, I’m so glad you opened up. I have a horrendous experience of six weeks in a facility where they misdiagnosed me and put me on antipsychotics. They did not even have PTSD as a possible diagnosis. I now have physical manifestations of the trauma in the form of bodily ticks… I am here for you and we are here for each other. You’re never alone.

Yes Anita, I agree with PamelaS, I had some horrible experiences in a facility as well, might open up another time, just reading the words about these places triggers my nerves. I am new, but here for people as well, I feel safe to write here already. Thanks to all of you wonderful people. Susan

 

[Susan Jane]

Wow, the misdiagnosis thing seems to be common. I lived with increasing PTSD symptoms for almost 25 years being told by the docs it was my neuro condition and nothing could be done about it as it was just my brain rotting. Turns out 90% of my symptoms were PTSD. I am probably the only person ever to be thrilled to get a PTSD diagnosis. There are things I can do about PTSD and I am doing them.

Hey Lost in the Woods,

I was much more content once I knew what I was dealing with. I lived through it for more years than I care to remember, before someone actually explained it to me, and yes there are more things one can do.

 

[PamelaS]

Wow, the misdiagnosis thing seems to be common. I lived with increasing PTSD symptoms for almost 25 years being told by the docs it was my neuro condition and nothing could be done about it as it was just my brain rotting. Turns out 90% of my symptoms were PTSD. I am probably the only person ever to be thrilled to get a PTSD diagnosis. There are things I can do about PTSD and I am doing them.

You are not the only person who is celebrating a PTSD diagnosis. I hate it the lies they were telling me and the medicines they were pumping into me. I knew the truth. Now they’re going to learn it. Since they did that to me, I am making it a mission to make sure they know the truth and change their practices. So very glad that you know the truth as well.

Hey Lost in the Woods,

I was much more content once I knew what I was dealing with. I lived through it for more years than I care to remember, before someone actually explained it to me, and yes there are more things one can do.

I am now reading the book “the body keeps score” by Bessel van der Kolk. I highly recommend it for every single one of us. It explains physiologically what happens inside our body when we experience, trauma and trauma triggers. It is equipping me with the knowledge to be able to move forward in my healing. I did not do this to myself, but I am the one who is responsible for healing it. Not doctors. Not medical practitioners of any kind. It is my responsibility to use them as resources as I heal myself. Allow that to empower you. You can participate in your healing as well, when you recognize the lies and embrace the truth that you have power in your healing. I have fired doctors and therapists. Please don’t be afraid to do the same if they are not serving you according to your needs. So very, very thankful for this platform, how it has helped me and how it is providing me an opportunity to help others. So glad to meet each of you and walk side-by-side in our journeys of healing.

 

[Susan Jane]

I am now reading the book “the body keeps score” by Bessel van der Kolk. I highly recommend it for every single one of us. It explains physiologically what happens inside our body when we experience, trauma and trauma triggers. It is equipping me with the knowledge to be able to move forward in my healing. I did not do this to myself, but I am the one who is responsible for healing it. Not doctors. Not medical practitioners of any kind. It is my responsibility to use them as resources as I heal myself. Allow that to empower you. You can participate in your healing as well, when you recognize the lies and embrace the truth that you have power in your healing. I have fired doctors and therapists. Please don’t be afraid to do the same if they are not serving you according to your needs. So very, very thankful for this platform, how it has helped me and how it is providing me an opportunity to help others. So glad to meet each of you and walk side-by-side in our journeys of healing.

Thank you for the tip. I am listening to CPTSD by Pete Walker and it is informative but the person's voice is not for me. I will have a look at the body keeps score . It is a scary road, admitting that I have to fix this, when I felt I was on top of things again. I guess truly understanding trauma and triggers is the key to the real beginning of my healing. I have spend most of my life believing I was not repairable. I have had some treatments that make me feel sick to my stomach just thinking about them. Susan

 

[Anita]

I am freaking restless along with I can breathe like not getting air, happened before with Geodon same thing, breathing still at right levels but like ran a sprint, I got to see MD Monday and get me on Zoloft, which was no affects, just need a lower dose cause I am small frame and take a long time for affects of medication to take effect like weeks, not days.

I am freaking restless along with I can breathe like not getting air, happened before with Geodon same thing, breathing still at right levels but like ran a sprint, I got to see MD Monday and get me on Zoloft, which was no affects, just need a lower dose cause I am small frame and take a long time for affects of medication to take effect like weeks, not days.

I don’t think it’s my frame , just takes a while for a yay or nay affect

 

[PamelaS]

Thank you for the tip. I am listening to CPTSD by Pete Walker and it is informative but the person's voice is not for me. I will have a look at the body keeps score . It is a scary road, admitting that I have to fix this, when I felt I was on top of things again. I guess truly understanding trauma and triggers is the key to the real beginning of my healing. I have spend most of my life believing I was not repairable. I have had some treatments that make me feel sick to my stomach just thinking about them. Susan

I have heard that Pete Walker is a good resource as well. I think he actually does therapy, based out of California if I recall. Maybe I’m wrong in remembering, but I think that’s right. I hope you’re getting some good information. I get it about not liking the voice. But at least you’re getting the information.