Just Got Diagnosed With This Today

[Abbe]

I wish I coulda done with a long time ago. It woulda helped me ALOT. Glad to find this forum. Hopefully yall can help me.

One thing I want to know for you guys who have had this for a while...how in God's name do you get a good nights sleep????

 

[Sandra]

Welcome to the forum.

 

[shadowchaser]

Sleep???? For me it's more of a temporary medicated coma. Insomnia and night terrors. Talk to your doctor about sleep aids.

 

[Eleanor]

Hi Abbe. Welcome!
Sleep is a big issue for my husband too (he's the sufferer, I'm the carer). Do a search of this site for "sleep" and see what you come up with. Or ask on one of the more specific forums. Put the question in the title - that will help others respond. For my husband all the standard sleep advice 'helps' but a good night sleep is never a sure bet. (Standard advice : bedtime ritual, no t.v. in or right before bed, dark room (get rid of those LED lights) don't lay in bed awake, etc.)
There is lots of information and help to be found here.