This article explains working part time, below the "substantial gainful activity" (SGA) amount while on SSDI or SSI:
http://www.disabilitysecrets.com/work-part-time.html
If someone has SSDI, they can work full time or make any amount of money above the SGA limit, and still collect full amount of SSDI for up to 9 months in any 60 month period. The rules for SSI are different.
@Kristina25 - In order to have SSDI, someone must pay FICA taxes into SSDI for at least 5 years prior to becoming disabled. Most disabled people your age do not qualify and get SSI. SSDI is harder to lose, while SSI is much easier to lose based on income and resources.
The difference between SSI and SSDI is not minor. You are clearly counting on using your husband's income. If you have SSI, and you get married, the government will count on you using your spouse's income too. You could lose SSI if your spouse's income or assets go over certain amounts. The amounts are more or less equal to the poverty line.
For more information, check out this site:
http://www.disabilitysecrets.com/counting-marital-income.html Or talk to a good attorney. You may especially want to talk to your soon-to-be-fiance, so that you both understand that once you get married, his income will be considered into SSI calculations can could lead to a significant and immediate reduction or elimination of your SSI payments.
No matter how disabled you are, There is no way to stay married and collect full SSI if your spouse makes income any income much above the poverty line.
Also, if at any point in time you and your spouses combined resources go above $3,000, you can not longer collect SSI. Again, it doesn't matter how disabled you are. If your spouse ever wants to have a savings account above $3,000, you will lose all ability to stay married to him and continue to collect any amount of SSI. Period. For more info, check out:
http://www.ssa.gov/ssi/text-resources-ussi.htm
If you have SSDI, then the rules are quite different when it comes to if you can keep your disability payments while married.
Working or not, I don't support your plan to not take more steps towards your own well-being, working or not, and to rely quite so much on others. But, it is your plan. None of us can change your mind any more than you can change your uncle's mind.
Your plan includes relying on your soon-to-be-husband support you and for you be able to collect disability as well, for the rest of your life, as you put it. If that is the plan you want to stick with, then you probably need to check what kind of disability payments you are getting, and possibly meet with a good financial planner or attorney to sort these matters out further. Otherwise, you could quickly end up in a financial situation you and your fiance didn't expect very quickly upon getting married.
p.s. sorry to verbally vomit so much info and data all over. I hope maybe it helps someone. :)
