@SheilaKathy i am in the same situations as you. I have been disabled since 2000. I am 63 now. Last year I had a no charge supplemental policy that paid some of what Medicare didn’t. But I had deductibles, copays and a $5,000 out of pocket minimum before it paid 100% of my unmet charges. And I had a severe reaction to latex and it acted like a heart attack. I ended up owing a boat load that I got sent to a collection agency. I’m going to pay them $75/month. This year I bought an upgrade plan that will cover everything but a small copay. Most of my medical costs are psych related.
I am self employed and I have to be careful not to go over the amount allowed by Social Security or I’ll lose my disability, like you said. So I got a letter the other day from my new supplemental insurance company that states that if you qualify, “Medicare could pay for 75% or more of your drug costs including monthly prescription drug premiums, annual deductibles, and co-Insurance. Additionally, those who qualify for these savings and don’t even know it. For more information about this extra help, contact your local Social Security Office, or call Social Security at 1-800-772-1213”
Considering that you only work 3 hours a day, I’m sure you’d qualify. I know this info doesn’t help you pay what you owe up to now, but it may help with your future prescriptions.
Despite the facts that states vary about how they dole out Medicaid, that still doesn’t help you with your current debt. I have had years that I had large bills due to ER visits for chemical exposures, I have always worked it out with the hospitals billing office for as little as $25/month.
We all worry that congress will outlaw Medicare, but it doesn’t serve your higher need to worry about the future at the expense of the need for you to try to be calm so you can cope with Lyme disease. It really sucks your energy. I have a law office that pays my bills so I don’t get calls from those bills I owe. It is such a relief not to deal with phone sharks. I don’t know if medical expenses would be forgiven in a bankruptcy.
Are you in Subsidized housing? That would help lower your monthly bills. I’m on a couple of waiting lists. I was told it can take 3 years to get to the top of the list.
You are the best person to determine your work capacity. I only work 2 hours then go home and take a nap and then go back for 2 more hours. My doctors agree that I’m the one to make that decision. We can’t risk losing our SSDI. I hope I have offered you some useful support and good luck with the bill.