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Ptsd With Me For Life?

  • Post starter Post starter Deleted member 18673
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Deleted member 18673

I'm beginning to realize that while I do need to give this upcoming DBT group a chance, I also need to realize that I may struggle with PTSD, depression, anxiety, etc for the rest of my life. There's no magic pill that's going to make me happy 24/7. I've been looking all this time how to get OVER it, instead of maybe how to live with it, like a chronic disease. I'll have better times and worse times but I've just got to learn how to ride the rollercoaster.

I've been trying to heal from my PTSD for four years, and I'm beginning to believe instead of needing to find a way out, I need to find ways to cope each day, like a chronic condition.

Has anyone else come to the opinion that their PTSD/anxiety/depression can't be fixed, just regulated?
 
I created a thread on this just a few days ago. This topic comes up fairly frequently. To say there was consensus on the topic would I think be an exaggeration, but....

When you say there's no magic pill, no light switch, you're absolutely right. I think most posters on that and similar threads would agree that whatever our trauma was has permanent effects. However, it is just as true that we can still have meaningful, fulfilling lives. We can be like old whales with scars that uniquely identify them but are still magnificent. We undoubtedly were not put on the blissfully happy path, the one we always see in TV commercials, but there is a noble, fulfilling path available to us. Takes a lot of hard work and is a painful road.

And I would say too that the idea of getting over it with one knockout blow sets us up for disappointment. It's a lot more like a journey of a 1000 miles or maybe 10,000, that begins with steps both forward and backward. I do some cross-country hiking and sometimes you end up at a cliff and have to back up and choose a different path toward your destination. It's really hard to think of that as progress, because you aren't any closer. But if you have to recon a bit to find the right path, then you are at least making progress possible.
 
I think we all disagree because in part our symptoms are so varied. I kinda wanna kick people when they tell me I'm so negative for thinking its a matter of management rather than cure, as I think they're a bit closed minded for not actually considering that my symptoms are quite possibly different than theirs. I've been through processing....and guess what? While many of my symptoms got better, I actually had a new symptom pop up that has actually gotten worse over the last two years. Yes, my new symptom literally popped up at the same time as I was going through processing. I can work on the negative thoughts and improving my functionality and things along those lines, but I have ZERO control over the fact that my flashbacks now have physical symptoms as well. But, we're all different, and we all heal differently depending on what we're dealing with. I don't think one person can sit here and determine another's prognosis.
 
Has anyone else come to the opinion that their PTSD/anxiety/depression can't be fixed, just regulated?
What is fixed? Does it mean repaired or does it mean static ( as in fixed versus change)
I think PTSD can be managed. I think there are always likely to be relapses and remissions. Hopefully the remissions get longer and the relapses less. However even that has its downsides as you get tripped up and fall harder from the relapse that you had forgotten might happen as it has been so long...

For me psycho-education has been the key to my recovery. The better I understand what is happening in my head, the better able I am to cope with it.
 
Has anyone else come to the opinion that their PTSD/anxiety/depression can't be fixed, just regulated?
This is pretty much the conclusion I've come to for the time being. I recognize that it's possible I could reach a point of full recovery if I was ready and able to put forth hard work into specialized trauma therapy, but I don't feel like I'm at a point of mental and lifestyle stability where I could face up to that. I have co-morbid Bipolar Disorder and am not sure when or if I'll feel like I have the strength to attempt that kind of trauma work without having a very dangerous breakdown. So for now I've decided to use DBT techniques and things I've learned here to better control my symptoms and live with the disorder. That may be the best I can ever manage.
 
When I am lost in hopelessness I definitely do think that way. I think 'just because I lived 12 years in-between bouts of PTSD, doesn't mean iI will overcome it this time, I will ALWASY be stuck like this, I'll NEVER get my mental health back!'.

As others have said - we have different symptoms, as well as different strengths and support systems. I don't think there is a blanket outcome for all sufferers of PTSD, as we all have different journeys.

I am in the camp of 'it is possible to live a life free of PTSD'. I also believe that some people might have it in their lives to varying extents, for long periods in their lives. I know there are some people who might always struggle with managing the PTSD. But I also think it is possible to not have PTSD in your life for long periods of time, and that some people will fully recover from it.

My own journey saw me in intensive therapy from ages 17- my late 20's. Then I lived 12 years free of PTSD. I had no dissociation, no flashbacks, no symptoms of it at all in those 12 years. It did not mean I was a perfect person without issues to still deal with, but tyne PTSD part was gone. I did not see myself as 'mentally ill' in those years. I faced periods of intense stress, but was able to cope with, and handle it in healthier ways than the average person (who had never had mental health issues). In those years, I graduated twice (university), moved cities, began a professional career, bought my first house, faced intense work stress, and my father was dying, and did die, from cancer. None of those usual life stresses triggered PTSD symptoms. But a series of strong earthquakes did. Interestingly, it wasn't the first out the blue large quake :O_o:.

The first one hit 4:30am, was a 7.1, caused significant damage across my city, cut power, threatened water, food and petrol supplies, and triggered thousands of aftershocks. Literally I got shaken out of bed, ran of the doorway, flicked the lights on only for them to black ou a second later, and trying to hold onto my doorway as my house - and I am not kidding here - moved almost 2 feet in every direction! And immediately, ongoing aftershocks that meant for the first few hours, there was just minutes in-between them. Talk about terrifying! It was a pretty traumatic time for everyone in my city of half a million people; but at that time, I managed to cope pretty well. It wasn't until the next very large, (and fatal) quake 5 months later, that I developed PTSD symptoms for the first time in over a decade. I had both earthquake PTSD (although an official diagnosis was almost impossible to make because PTSD isn't diagnosed until 3/6 months after the trauma, and the ongoing aftershocks meant that although I spent 18 months with PTSD typo symptoms related to the quake, there wasn't a period of 3/6 months without ongoing large aftershocks in that entire time, which be differentiate 'ongoing stress trauma' and PTSD! :eek:) and then PTSD related to childhood trauma. The latter I am still experiencing.

Sometimes I lose hope and think 'this time I wont be lucky enough to fully recover' but then on my better days / weeks, I totally believe it will again be possible for me to live free of being triggered into dissociation / have flashbacks. It will just take time, and who knows how long that will be.

Never give up hope, is all I can say.:)
 
I started therapy in 1985 and it has been a painful journey, but something has changed and I am healing and recovery is progressing.

I wasted too many years in hopelessness. I had too much false guilt and survivors guilt.

But I am doing so much better these days. I do think I will have PTSD symptoms the rest of my life, but I now bounce back much, much quicker.

I am finally maturing and growing up.

I can think for myself.

I work very hard on self care and give me the things I need to feel better when I am down. There are more and more good days. I feel good most every day now. I am continuing to learn and grow and do reach out for help when I need it.
I still have the occasional nightmares and the anxiety is so much better now, but I still have it.

It can be compared to a amputation and how to learn to adapt and accept my limitations. Now I am more focused on being and staying positive and balanced. I can still get triggered etc. but like I said I bounce back quicker.

I try to focus on being more healthy. I hope this encourages you. If not please disregard. There is hope and a future. One step at a time.

It is so hard for so long. But there really is a life after so many years of working on yourself. I wish you the very best.
 
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