BPD Questioning BPD diagnosis

hypervigilant

Silver Member
I recently had an assessment from the NHS mental health team who after a 25 minute call decided I have BPD and have put me on the waiting list for DBT group therapy. So I've done some homework and feel that very little in my symptoms that line up with BPD and it can often be over diagnosed in women. I would love any points of view on this.
 
Hi. I suspect a lot of cPTSD can overlap or look like BPD in some respects. But if you have sensitivity to interpersonal stuff and emotion regulation difficukties then it might help a lot to do regardless. I love DBT.

What difficulties do you experience? What don't you relate to with the BPD stuff. Ridiculous to decide you have BPD after a 25 min phone call. Shocking.
 
If you are female, under 35 first presentation and impacted by symptoms associated with trauma the NHS will almost always jump to EUPD.... If you've been under services before they've almost decided before you even show up to the appointment. Worked in the service and saw it far too many times.

My brain will not give me any form of power here to give remotely intelligent answers but yeah there is growing research that there is a huge huge amount of misdiagnosed women, who actually have a neurodiversity (predominantly Autism) and/ or complex trauma and not EUPD...

Have they formally diagnosed or was it a MH triage team?
 
not too many of today's dx'es had coalesced when i started my recovery from child sex trafficking in the early 70's. combat PTSD was still being called, "shell shock" and BPD was still, "manic depression." i was receiving my treatment through the veteran's administration (u.s. army). as my recovery progressed far enough for more generic dx'es, i began to participate in manic depression group therapy for the sake peer support and learning new coping tools. i scarcely noticed when manic depression morphed into the bipolar spectrum. the name change didn't mean much to me.

fast forward to the turn of the millennium when i segwayed into the ptsd classification. my counselor asked if i wanted to have the BPD declared an official misdiagnosis. i couldn't see the point. ptsd is a malady of extreme mood swings. the coping tools i learned in md/bpd therapy had proven effective, along with the peer support i had received from the group therapy. the official name for ^it^ doesn't seem highly pertinent. "recovery" remains my personal favorite name for my healing journey. recovery is a journey of many ^its^. having names that look trendy on fb isn't on my priority list. i focus on remediating symptoms.
 
Thankyou guys for getting back to me.
What difficulties do you experience? What don't you relate to with the BPD stuff. Ridiculous to decide you have BPD after a 25 min phone call. Shocking
My mood doesn't swing from minute to minute, I'm certainly not a risk taker and I'm rarely angry.
I have terrifying flashbacks and very low self esteem and boundaries.

My brain will not give me any form of power here to give remotely intelligent answers but yeah there is growing research that there is a huge huge amount of misdiagnosed women, who actually have a neurodiversity (predominantly Autism) and/ or complex trauma and not EUPD...
My brain is like that too, I know what I want to say but it doesn't come out that way. My daughter( psychology degree) suggested it's over diagnosed in women all the time.
I felt very unseen and unheard by their jumping to conclusions and trying to fit me in yet another box. Even the counsellor I'm currently seeing for shallow counselling was upset about the way it was handled.

If those that are trained can't get me the right help who do I trust.
 
felt very unseen and unheard by their jumping to conclusions and trying to fit me in yet another box. Even the counsellor I'm currently seeing for shallow counselling was upset about the way it was handled.

If those that are trained can't get me the right help who do I trust.
Can you counsellor write something (if you'd be happy with that too) to support the lack of thorough assessment and their thoughts about it? ... Obvs they can't diagnose but they'd know far more about your needs than someone whose spoken to you for 25 mins...

You can ask for a second opinion too via the NHS...an actual proper assessment rather than a triage system

I ended up having an assessment away from the NHS (I can't manage NHS services at the minute so I didn't have many options as my therapist at the time was pushing for a psych evaluation)... I get cost is a massive factor in that and so wrong that people are almost left stuck.
 
I went to my GP to get funding for a psychiatrist through the Saturday fund but she said I had exhaust the NHS system first hence the triage. My counsellor is stuck by ethics as she's part of the same system but she has made a note of it on my records.
I find the whole NHS system so frustrating they only want to help if you are suicidal.
 
i can relate. to be honest in general its very overdiagnosed if youve ever been female. its like what people used to do with hysteria... there is a very real bias towards BPD (Borderline Personality Disorder; not "manic depression", like a different post said, which used to be whats today's Bipolar Disorder (BD)) and a lot, especially european mh professionals, like to ignore other diagnoses that can lead to mood swings, self-injurous and impulsive behaviour and dissociative symptoms. one being CPTSD which is sometimes not taken into account because a lot of Europe still uses the ICD10 which doesnt even have CPTSD in it (it also still calls DID "MPD"- atleast the German version does). and some mh professionals in hospitals or psych wards or anything, can be very frigid and act like the sometimes vague dx criteria is the only strict thing that matters. other options are also undiagnosed autism, cptsd, adhd, any mixture of other cluster b personality disorders, etc. so yes, there is a very prevalent bias to diagnose BPD in women who've been through trauma, though that doesnt invalidate the existence of it in people who do have it. like me. ive come to accept that it can be both biased, and what i do have.

also usually a BPD diagnosis takes a long time (atleast 6 months) because these can be complex to figure out, so its always ridiculous to me to hear that people are getting diagnosed after 25 minutes... that's really no way to go about it in my opinion. but a very hard label to shake off later, sadly. i know because something similar happened to me and even after i said i didnt think i had BPD, i was treated like i was just crazy and didnt know what i was talking about. which wasnt true, i knew my stuff. and after learning about CPTSD, that made a lot more sense but.. its like i said above, sometimes mh professionals can be hard to deal with... also they are mostly understaffed and have a lot of people to deal with, so i get why they say they cant take their time with everyone... still, 25 minutes is something where id doubt the diagnosis too tbh. thats not enough...

anyway, If you really dont think your diagnosis is correct, which is valid and should be heard, there is always the option to go to a specialist who knows more about personality disorders who can say for sure and take their time getting to know you (specialist dealing with trauma can be helpful too).
if you have any other resources id use those, trying to go back and refute them wont do anything and most likely only make them more sure of their bias.
 
Thankyou Outside Humanity, I think that rash jump to BPD angered me. I'm not impulsive or self harming, I'm quite logical, high functioning and not in any way fit the profile and felt totally unheard amd unseen again.
The trouble with it comes the only therapy they will offer which may not be what I need so it's whether I will be offered anything else if it doesn't fit or will I looked at with disdain and seen as a "difficult" case.
If I had a broken leg I would see a bone specialist and medical treatment tailored to my needs but in the UK mental health is nowhere near the same level of care.
 
If you are female, under 35 first presentation and impacted by symptoms associated with trauma the NHS will almost always jump to EUPD.... If you've been under services before they've almost decided before you even show up to the appointment. Worked in the service and saw it far too many times.

My brain will not give me any form of power here to give remotely intelligent answers but yeah there is growing research that there is a huge huge amount of misdiagnosed women, who actually have a neurodiversity (predominantly Autism) and/ or complex trauma and not EUPD...
Tooootally agree with this... If you're young, female and having "emotional trouble" then it must be BPD... Big siiiiiiiiiiiggggggghhhhhhh... It's ridiculous...

ETA: Oh yeah, and if you argue back about it then that proves that you're "difficult" and that it must be BPD 😆😤🥴
 
Tooootally agree with this... If you're young, female and having "emotional trouble" then it must be BPD... Big siiiiiiiiiiiggggggghhhhhhh... It's ridiculous...

ETA: Oh yeah, and if you argue back about it then that proves that you're "difficult" and that it must be BPD 😆😤🥴
It's the 'hysterical woman' diagnosis of the 21st century, or good old 'accopia'. One day I really hope society will look back in horror with how an earth 'we' collectively decided to care for people with horrendous abuse and neglect histories. Until then...
 

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