Heya,
I just wanted to update everyone who gave me such encouraging comments on this thread.
In the end, I decided to go to the citizens advice bureau and we sent off a letter to start the appeals process. This would usually end with us having to build a case with evidence from my medical people and present it to a tribunal, who would then have the final say.
Amazingly, I received a letter this morning saying that they have reviewed my case and changed their decision! I'm entitled to the maximum amount, with no tribunal!
It's such great news and a weight off my mind. It's amazing that they can completely change their decision though...I'm so glad I appealed.
Hope that's an encouragement to some other people who might be in the same situation.
And thanks to everybody's comments here, you helped me to go for it and not just give up!
KJ