• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

When Do You Know - Inpatient/intensive Treatment And Disability?

Status
Not open for further replies.

SeaQuel

Silver Member
Can anyone tell me how you knew going inpatient or intensive treatment program and/or going on disability was the right decision at the right time?

If you went on disability, did you have to disclose why to your employer or to future employers? How protected is the information? Like actually protected... not supposed to be... legally... but really is water fountain fodder.

Has anyone ever gone back to reoccupy their old jobs afterwards?

I know that's a lot of questions, I'd be grateful for any answers to any parts thereof.
 
I'm employed now, and let my employers know about by diagnosis. My T felt it was in my best interests to not work with certain people because it could set back progress I had made. She also felt I should be able to take days off if needed without fear of retribution (FMLA). I can only speak for myself, but I'm glad I let them know. They have been very understanding and helpful in making sure I get / have what I need to succeed at my job. Plus I don't feel like I'm lying or keeping secrets which for me was a huge stressful thing. There's no right or wrong answer, you have to find what's right and works for you. Good luck finding what you need and I hope everything works out for you. ((Hugs))
 
Can anyone tell me how you knew going inpatient or intensive treatment program and/or going on disability was the right decision at the right time?
Those are very broad questions. It might help if you break them up into individual threads and give more specifics about what pros and cons you have for each option for yourself. The members of the forum would likely be able to give a lot more feedback on these difficult and important decisions you are considering.

In regards to going inpatient, are you talking about a trauma/PTSD specific inpateint program or an acute adult psych inpatient unit?

If you are in danger of likely hurting yourself or others, or you are "gravely disabled" and can not take care of your basic needs such as feeding and clothing yourself, then it would be a good idea to talk with your current treatment providers about if going to an adult acute impatient unit would be a good idea. In general these general psych units will do a good job of keeping you alive and safe, and helping come up with a treatment plan to keep you alive and safe... and that's about it. They will not really treat any of the underlying trauma. Some places may be somewhat re-traumatizing, but this risk is worth it if the person is in severe danger of harming themselves or others.

If you are struggling in daily functioning due to PTSD and you are having chronic problems staying safe, but you are not in imminent danger of harming yourself or others, then I would recommend investigating more about one of the specialized inpatient PTSD treatment centers in the US. I have gone to two of them and they have helped my recovery greatly. It did some at some considerable cost and time away from work, but in my case, it was worth it.

There are also alternative options such as partial hospitalization programs, adding group therapy to individual therapy, etc. In my case, none of these options were available to me locally, but if they had been, I would have tried them first long before I went through all the time and expense of going inpatient to a specialty PTSD treatment center in another state (or even if there was one close to my home.)

One of the key factors for going on disability or not, is considering if you would qualify or not, and if the potential gain would be greater than the potential losses of going on disability. If you are referring to SSI or SSDI one possible gain is government insurance and income. An important loss to remember is that it is limited income, and there are limited treatment options through medicare/medicaid.

It's also important to consider alternative options to staying in the job you are in vs. going on disability. It may be that with some training through Dept of Voc Rehab or on your own through a variety of educational options, you may be able to do another job better than you can the one right now. This may even be true without additional training. For example, when I first had string PTSD symptoms, I could not continue to work as a teacher in a classroom of 30 very active kids. However, I could work as a teacher in special education with small groups of children.

If you went on disability, did you have to disclose why to your employer or to future employers? How protected is the information? Like actually protected... not supposed to be... legally... but really is water fountain fodder.
No. In the US, it is usually illegal to require applicants to reveal past disability status. It is also illegal (and punishable by possible jail time for your doctors and therapists to reveal your past disability status without your authorization.) However, that being said, you will have to somehow address the gap in your employment history.

One alternative option to look into: see if your employer or your state offers the benefit of short term disability, and to take time off for intensive treatment, and utilize the family medical leave act to ensure your job will be there for you when you return.
 
I've been on Disability since 2002. I am now in my early 60s, so if I had not "retired" early, I might have still been able to work. I managed a motel for awhile, my hubby and I owned it. We had 10 rooms, 3 of which were kitchenettes, though every room did have a microwave in it. A lot of our guests were construction workers, since our rates were just about the least expensive in town.

I loved that job, until the WTC bombing happened. Then no one was travelling by plane, which was our main source of business, since we were near an international airport. The place was overrun by drug dealers and prostitutes. I'd kick one out and the next "guest" turned out to be someone just released from prison for murder. He'd served a 15 year sentence and was let out early on parole. One of his buddies from prison got out soon thereafter and then we had 2 murderers at the place. It went from bad to worse... until finally I just handed the place back to the bank. We could not pay the mortgage!

I was homeless for 3 years after that, and have been on Disability since. I got back pay from them when my SSI was changed to the Disability. I collect on my dead husband's SS#. We were married for 23 years. Life goes on....
 
Thanks for all of the info. I'm having trouble responding to all of your questions @Justmehere. I'll see what I can address.

Well I've decided I'm done with work, I can't do it anymore, at least not now. My therapist thinks I should be going to an intensive trauma/PTSD treatment program and has said this for a long time. She told me to check into short-term disability or some kind of medical status at work. I'm trying, it's very hard to research at my particular place of work. I'm also not sure I want to have everyone know even though I know shouldn't care. I would rather just quit and maybe I will, but then I won't have anything benefits or salary or anything. But I can't keep working. Sorry I know this is jumbled.
 
Your fear of "everyone" knowing is understandable. It's not really what happens though when someone goes on short term disability or takes medical leave. Most employers go to great lengths to make sure the minimal number of people know the minimal amount of info due to rear of lawsuits.

Can you call your HR dept or boss or someone else at your employer and begin the conversation with them about options?

You don't have to tell them why you are considering disability, not to find out info or take medical leave. You can just say it's personal medical matter (and it is) and you doc can sign off on the paperwork.

If your job involves security clearances and psych evals, or even if you work for the CIA, you can still ask questions of your employer about options for medical leave without having to tell them you have PTSD. It's gatheringt anymore. info to make decisions. (Ok, so maybe all kinds of rules apply for the CIA that I don't know of, but you get the idea. Even ther you can stil ask about options.)

It can be overwhelming and difficult to sort out when already overwhelmed with PTSD. It's also hard to admit it when it comes time to say we need help and cant do it anymore. Hang in there and keep taking it one step at a time. :hug:
 
Yea that's what i keep telling my therapist. How to leave work if you can't leave work. I can't figure it out and just think it would be easier to quit. I wish I could talk to HR but I don't trust them. They are incompetent and my workplace is so clubby nothing is really private. I do have an appointment to speak to someone in a different office who said she could help me, I hope so, I need quit yesterday. This is all feel so complicated and hard.

I hate the idea of going on disability and keep thinking I shou;d be able to suck it up.
 
Hello! I would like to share with you my employment and short term disability and SSD journey. For some reason I have been extremely lucky as to how I'm not homeless. I worked physical labor for the same company but at 3 different states for 11 years and absolutely loved it. I was such a hard worker and hardly ever called in sick even if I was. I don't want to sound conceited but the managers and fellow co workers enjoyed and cared about me (of course there was problems with sexual harassment that caused me problems). I was almost "manic" like everyday. I think it was adrenaline I was running on to be super human. Anyway, I didn't know that things were affecting me until all of a sudden I walked out of work, packed some clothes and started to drive to California to live on the beach. My parents got involved and talked to my work and got me on short term disability. I later went to the same company in a different state and was able to transfer but I told the manager I was on disability because of back problems. I think he found out but thank goodness I was such a hard worker he didn't let me go. I did go on short term disability two seperate times. One because my thyroid stopped working then the other I asked my doctor to say I was being treated for an eating disorder. That sounded better than admitting to mental illness. I was very lucky in that regard.

I moved to a different location and I was the star. The best worker they have had. No one knew I don't think I even knew I was starting to unravel but I ignored it because I wanted to be the perfect employee.

I have had an ongoing problem of shoplifting but I never did steal anything from work. I actually did get caught for the first time about 7-8 years ago at a department store but nobody knew nor did I tell my live in boyfriend and soon to be husband anything. I got a lawyer and went to court and had to do community service. It was a felony but that was the first time I recognized that something is really not right with me so that's when I began seeing a counselor and psychiatrist. Nobody knew what happened but 5 years ago I had an 8 month long "manic" spell and I started stealing from my work. My therapist thank goodness convinced me to take short term disability immediately until this "episode " ran it's course.

On the papers to give to human resources was I think bipolar because at that time it seemed like that's easier for someone to understand. I still didn't like anyone knowing but at that time it didn't matter.

While I was on short term disability, I thought I was okay to go to another building in a different city of the same kind of work to shop and I ended up stealing 3 books and got caught. Long story short, my manager was so nice to me when I saw him for the last time. I think I've been pretty lucky in that regard.

I was surprised that because I was already on short term disability it would continue to go to long term disability but as soon as I was fired, I applied to see if I could get on SSD. Getting approved for any kind of mental anything is extremely hard. I kept getting denied for 2 years until I had to go before a judge to see if I get approved. First of all, I used this company that all they do is help people get through all the messiness of paperwork. They do get paid only if I win and I did.

I write too much and everything turns into a novel that should be a very short story. I don't know if this helps but please ask me any questions or anything about anything. I hope you feel better:)
 
I don't understand why a therapist or doctor has me totally believing that I will be leaving home to check into an eating disorder inpatient treatment if I was anorexic at that specific time or a mental health inpatient or outpatient care from a certain clinic that is not in the state I live because we don't have anything like that. I'm Already in that highly dissociative state so I assumed I'll have to pack my bags and leave for months. My therapist gives me the number of the clinic she thinks would be good for me so at home I call and ask about what insurance they take . There is absolutely no clinic that will accept my insurance but worse is that even if they accepted my insurance it did didly squat! If you're lucky the least I would have to pay is like $30,000 for one month!!! I was floored!

I spent hours looking into different places that didn't cost so much but I came to the reality that most people can't afford to get that kind of specialized care without paying thousands of their dollars which alot of people don't have. I came upon website after website of mothers going to government to make these services be able to cover the costs of treatment. There are people dying who can't get the help they need. It's so sad:(

I was angry at my therapist internally for not telling me how impossible it was for that being an option. Even my psychiatrist mentioned for me to seriously check into a hospital. Don't therapists and doctors know how ridiculous it is to not even mention the cost of treatment?

I got down to a really low weight so of course that's what needed to be addressed right then. But I went to the other end of the spectrum and went to Bulimia so as soon as I put on a couple pounds that whole topic dropped.

Then she was trying to find me treatment for dissociative disorders and the exact same scenario happened.

All I know is that the government or something needs to help more with the cost of mental health care for people who seriously need it.
 
You are right that there should be more options for PTSD sufferers.

For the US, if you have SSDI and thus also Medicare (instead of SSI and only Medicaid) then Medicare should cover most of the cost to go to River Oaks Hospital in Louisanna or McLean Hospital in Massachusetts. Both have solid PTSD treatment programs and both take patients with eating disorders. There is also Timberlawn and The Center, in other states, that also take Medicare, but I don't know as much about those programs.
 
I'm so sorry that I hijacked your thread! I have a bad habit of writing a novel instead just giving an answer:( I hate that I do that and I apologize to you. I sincerely hope you will take care of yourself first without being too worried about what others think but I know that's extremely hard to do.
 
You are right that there should be more options for PTSD sufferers.

For the US, if you have SSDI and...

I had called my Medicare provider and all they can do for anything to do with being hospitalized for inpatient treatment in a treatment center for any mental health conditions is that they give you 190 days for your whole lifetime and they pay 80% which is good but paying the 20% is still alot of money that lots of people don't have including me.

Also if I were to go to an eating disorder clinic you have to be extremely careful because different parts your treatment may not be covered by insurance. For instance, seeing a nutritionist, which obviously you would do but Medicare doesn't cover seeing nutritionist so I'd have to pay the full amount which would be an outrageous amount of money. Even after you get out of treatment and relapse and you've already used your $190 limit then you're screwed.

Even that these facilities accept Medicare doesn't necessarily mean that Medicare will pay up. There's so many rules and restrictions. I've called all those places when I was looking for a place to go and it was impossible to go because I couldn't afford the 20% that insurance doesn't cover.
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom