• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

My spine surgery journey: from preparation to recovery

I'm so glad discharge from hospital is back on the radar! And likely tomorrow. Yay!! :)

I honestly don't think anyone really sleeps well in hospital regardless of how drugged up they are. Being in your own bed with familiar surrounds, the right kind of foods - oh man you will be jumping for joy! And so will your belly :) And I imagine you will sleep so deeply too!

You are almost out of there!! :)

????
 
Ook, so not coming with flowers to your room, more like balloons and cake for Welcome Home and wishing everything go smoothly. :) ✌/? (or which ever emoji better suits Success and All the best to you.)
Ohh, very very appreciated. Thank you @Ronin ?
You are almost out of there!! :)

????
I am!!


During my mum's visit today, we were able to borrow a wheelchair and we went on an excursion out of the orthopaedic ward and also (briefly so I didn't get a chill) went outside!!

I felt fresh air for the first time in over two weeks!
I took a deep breath in and it was amazing.

I got back to my bed and looked at my phone and saw I had more wonderful posts from you folks, and all of this together made me tear up with happy tears.

I'm always reluctant to acknowledge my own happiness as it is still such a novel feeling to me and I worry that it will be over by the time I've realised that that is what this is.

But, f*ck it.

Right now, in this moment, I am just so happy. So happy.
 
A note to self on the effect of stress on the tolerance of medications.

I'm currently on gabapentin as part of my analgesia. 300mg 3 times daily.
Presumably I got up to that dosage relatively quickly; in a max of 14 days at least.

It may be a contributor to some of my current symptoms e.g. nausea, but my essential tremor itself has not been exacerbated whilst in hospital these last two weeks (I've had muscle twitching and spasms, but those are a separate issue).

In 2015, I saw a neurologist for the first time and he confirmed the diagnosis of ET that my GP had given 5 years prior.
He was a bit of a dodgy doc; he totally ghosted my GP on several lines after I started taking primidone and became extremely suicidal.

We stopped that med, and GP took over my ET meds again (it was a time of med trials for me as my tremor was wayyy bad - this will also make more sense later, though you might have figured it out). She asked neuro for a special authority number which was needed at the time to get gabapentin subsidised; my next med trial.

I didn't stay on it for long. It didn't make me suicidal. Instead, it made my tremor so bad that I literally (true sense of the word) could not tie my shoelaces.


Yesterday I was talking to my pain nurse about the gabapentin; how I was surprised I was tolerating that dose so well, given how it affected me back in 2015.

Then pain nurse asked me: "do you really think that it was the meds that had that effect, then?"

Huh.

No.

God I'm glad I'm not back there.
And because I'm allowing myself to feel anger in a healthy way and be ok with it: f*ck you, Z.
f*ck you for 2015. And all the shit in the years since then.
And f*ck you for preventing me from having this operation.
But you know what? I'm glad I had it now when I'm free from you. When I can sit here, on the eve of my discharge, and know that none of my nausea is due to my fear of returning home to you.
 
All these intense experiences, and they are all in the present! You are doing a great job leaving Z behind and washing all the residues of Z from your soul.
:hug: thank you

--
Something very odd just happened.
Again, this is one of those things where I'm afraid it'll be over before I finish my sentence, but I tentatively want to document it.

If you've been following along, you'll know I've been waking very consistently at 3.30/4am in intense pain.

Well, the same happened about an hour ago, but something felt really off.
It took a while for me to realise it.

No intense pain.

Wait, what?
Some low level pain, but nothing that left me desperate for morphine asap.

Huh.



There was also something else I noticed upon waking, which was just as cool.

Last night, my hospital roomie, an 88 year old gentleman who came in the night before with a broken hip, went for a surgery.
I was very very nervous for him.

Then when I woke, the sound of slow and restful breathing.
Relief.
 
Thank you MrM. :hug: ? and SRG :hug: ?
No intense pain is amazing, I can't imagine what a relief that must be for you to realize you are healing correctly and on your way.
Yeah, that feeling like -- Holy crap, I actually made it through my surgery, and I'm actually getting better.
It makes me tear up.
I guess I never thought I'd get to this place.

--
I think I have one more day to recap: post op day 3, which was Sunday 3 March, and then I will be all caught up.
It feels fitting, really, to recap it now on the morning of my discharge, so that we can then move forward onto the next leg of the journey.

Day 3 seems so long ago, so this one is likely to be very sparse.

It was a Sunday, and my last day where I was in ICU.
The obvious highlight was having my chest tube removed.

Holy shit. That test tube was probably the single most physically painful thing I have ever experienced.
Every single time I inhaled and my lungs inflated, there was excruciating pain.

According to my carers, I turned a corner pretty fast after that sucker was removed.

I did more standing up and sitting in my arm chair; 3 times that day I think.

Then in the evening, I was discharged to the orthopaedic ward.
Before I left, my nurse brushed and rebraided my very knotty unwashed hair. It was very sweet of her to do so.

I think I must have had to transfer into a different bed before we left ICU; the ones down there had much niftier controls ?

The orderly arrived to take me to my new ward, and my nurse came with us to transfer me over to the new nursing staff.

I'm someone who finds change very difficult, and even leaving ICU after 3 days was a big deal for my body to adjust to.
This was NOT made easier by the nurse I had immediately when I came onto the new ward.

Aside from this past weekend and early this week, that Sunday was my next lowest moment while in hospital.

In short, that new nurse was a bitch.
I'd left the familiar, caring environment of ICU, and was now in a completely new environment with completely new nurses. Even the light was noticeably different.

I was also in a lot of pain from the journey there. The orderlies are great, but there were still little bumps along the way and I was just 3 days post op.

It took me a long time to settle down, mentally and physically.
Just when I finally had, my nurse decided to make me sit up, in bed, and started changing all the controls on my bed.
It was so painful.

In addition to that, she had a major passive aggressive complex; one of those people who make you feel on edge just by being around them.

My parents visited me that evening, which was good. But also extremely challenging as I was very upset. My cousin and her fiance visited after.
I was happy for the company, even if it was hard.

Fortunately, when I woke up the next morning, there was a new nurse. And I started to settle in again.

I did have that nurse again several times since. But never on enema shifts, though I would have requested someone else without hesitation had I.

--
So I think that is the end of our journey around the solar system of my hospital post-op stay.

Today, I will see my surgical team again, and will get my dressing removed!! (typically happens around the 2 week post op mark)
I'm very excited to see my scar in its fullness, for the first time!

Then I will meet with the pain team to get my discharge analgesia plan, as well as my discharge summary from the ward.

And then we'll be off :)

Thanks again to all of you for your support on this leg of the journey.
I made a little 'spinal fusion by numbers' for my time in hospital:

1 fall
2 hospital wards
3 nights in ICU
4 types of laxative
5 spinal levels fused
6 weeks until my next hospital follow-up
7 am report time I had for my surgery
8 steps I climbed before I was cleared for discharge by physio
9 enemas
10 xrays (that I was conscious for)
11 tubes + patches in/on my body when I woke in ICU

Cheers!
 
Just saw my surgical team on their morning round.
They did a formal wound check, and said it has healed beautifully :) and so they are happy to discharge me today.

This morning it was my surgeon's 2IC and cute registrar.

I'm maybe just a little bit swooning right now.
He asked how my gut has been since he last saw me on that night on the weekend.

I told him that it has been better these last 2 days , and that I was put on an intensive gut program since last seeming them.

And then he said yeah, that was partly on my instruction.

Like, I'm not even mad :hilarious: :hilarious:

I'm a little gutted that I won't be able to see him around anymore. He was always so kind when he spoke to me, and he was looking so handsome this morning. And he was wearing a stethoscope. Uggggggggggghhhhhh :inlove: hopefully our paths will cross again under different circumstances.
 
And f*ck you for preventing me from having this operation.

You did the best f*ck you you could, though:

Having it now. The prick left so far out in the past... because you are here, living, & getting well in so big steps.

I'm a little gutted that I won't be able to see him around anymore.

Aww okay not really sure what their policies are on that, but I am soo not above sending helping people a post card or fan mail like that, so.... totally got ways to say the gratitude? :) And you say it by being well and recovering, too. :hug:
 
you are here, living, & getting well in so big steps.
:hug: made me smiley
Aww okay not really sure what their policies are on that, but I am soo not above sending helping people a post card or fan mail like that, so.... totally got ways to say the gratitude? :) And yo
So I did give gratitude cards to ICU and the orthopaedic ward. A mention inside to "registrars", but I withheld the word "cute".

A third for the surgeon + team, but our journey with them will continue for one year at least, so we will save it till then. It's still early days.

Maybe CR will be at some of my clinic follow-ups.

I was just wheeled out of the ward by an orderly, down to the transit lounge.
Who would I see, silhouetted through the glass sides of the central nurse fish bowl office and standing down the far end of a ward wing.

He's so attractive, it's not fair. The universe is teasing me.

And he has, like, the world's most generic name. So my sneaky Facebook search turned up nada.

Sighs.

On a more cheerful note, I've decided to refer to my brace as my exoskeleton. So that's fun.

ETA: my apologies for this thread temporarily turning into a telenovela.

He just walked into the transit lounge.
I think he's the mysterious "house surgeon" who's been writing my discharge summary.

Well crap.
Bellbird has zero chill.
It was a good day to remember deodorant :laugh:
 
Last edited:
ETA: my apologies for this thread temporarily turning into a telenovela.

On another hand, your cute guys (okay. I will not call him your. Decency and all. Stiill, smiling.) talks are totally bettering accessibility an reaading (cause I mean come on, I should not whine bout medical triggers, this be a story time instead, and a kiinda love story, with health AND then the cute guys even).

... So noo apologies needed. .)

Bellbird has zero chill.
But come oon, both in (and freshly out of) hospital, and in a soap opera, you are suppooosed to have zero chills ??
 

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom