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Sufferer New To Forum, Symptoms Keeping Me Bedridden, Need Some Help

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Meza

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Hi, all. My PTSD came about as a result of medical malpractice. The initial event was years ago but my symptoms still wax and wane. I just went through another surgery that didn't go well and recently just lost my pet dog. As a single person sharing a house with another person who is not my partner, losing my dog was like losing a beloved member of the family. She was my motivating factor to get me going each day.

I have some health issues still but they are not keeping me bedridden. My anxiety attacks and depression are keeping me where I am. I lost my ability to work and now must put together a new life for myself. I can't seem to push through the pain of getting up each day with so much loss and so little direction for myself and all the panic and fear. I hope someone here can suggest something... perhaps something to read, or a similar challenge, or some advice. I am open to just about anything in order to get my life back on track. Thanks so much.
 
Welcome to the forum. I found for me, when I'm not able to get out of bed due to depression or anxiety I got some books on tape. The reason was my eyes don't function well sometimes when my ptsd symptoms have raised those ugly heads. On type of books is humor. Anything that makes you laugh right out loud. At first, you might not do it out loud, but even if you can only smile inside, it helps. The other type of book is written by those who have gone through some pretty horrific things, like a concentration camp type of thing, and come out the better person for it. I gleaned a lot of ways to stay sane in an insane situation from those types of people. I'm not talking about Anne Frank, since she died. I'm talking about those who lived. Check out the book section and see what Anthony suggests. Also, read the threads around here. Good information within the site.

By the way, I don't have those type of bad days any longer, but I still do the books on tape when they eyes don't function. For me, that's one of my ptsd symptoms. Good luck to you, and I hope you feel free to ask any questions. Good support here.

safenow.
 
Hi and welcome to the forum. This is a real supportive community. Take your time getting familiar with the site and read the rules; it is to help you. I am sorry for what you are going through. One foot in front of the other will take you to where you want to go. One day at a time, even one second at a time.
 
Hi Meza,
Are you under the treatment of a psychiatrist? I think when we are like this we really need medication. If you are already then that is tough. I found one of the most important things to watch out for self hatred and try to curtail it as much as possible. Affirmations seem lame but they really can be a help. Take care and welcome.
 
Thank you everyone for welcoming me to this forum. I've been going to some forum posts and read Anthony's paper on PTSD. There is a lot here.

safenow, I appreciate your suggestions. When I'm bedridden it's difficult to know whether to fight it or go with it. Believe it or not I have thought about audiotapes but haven't followed through on obtaining any. Every 2 weeks I am close to a library in my travels, so will keep this in mind. Currently I go on the computer but like you my eyes hurt and become blurry after awhile, so listening to a good tape would certainly help.

Abstract. Yes, I do see a psychiatrist. She is aware of my problem and has suggested a change in antidepressant medication to an MAO inhibitor, for atypical depression. My family doctor suggested ECT. That's a bit scary for me.

My current state-of-affairs comes on the heels of a lifetime of struggling with my health atop of a severe form of PTSD that took place when I was sixteen years of age. I was sexually assaulted while in hospital for Crohn's disease by my gastroenterologist and almost died because he abruptly stopped my high dose steroid treatment (prednisone). Instead of a two week stay it became three months, during the whole time this specialist seemed to enjoy giving me painful treatments. I only survived because a young resident doctor took an interest in me and discovered I was in an adrenal crisis. He immediately ordered ACTH therapy which had terrible side effects. But saved my life. Many more things happened there that I won't detail here. But I did lose my memory of this event, although I suffered symptoms of hyperarousal whenever I had any contact with the medical profession afterwards. My memory came back during a very stressful time in my life... my father's terminal illness and being given medication for fibromyalgia that put me in a mental fog.

I seem to be the type of person who becomes physically ill when traumatized or triggered.

Now I have secondary adrenal insufficiency, came down with a life-threatening form of psoriasis three years ago, have a fatigue and pain condition diagnosed as chronic fatigue syndrome and fibromyalgia. Also have degenerative disc disorder and a pelvic misalignment from a motorcycle accident years ago. I am in remission with Crohn's disease however had to have surgery last year for a blocked bowel that took one year to finally do. And, unfortunately, was done incorrectly. So now corrective surgery needs to be done which is also taking over a year to put into place which means I must do dressings twice daily which are painful and time-consuming.

I lost my partner to suicide 6 years ago. We weren't together long, only 2 years, however he threatened to kill himself if I ever left him (which he told friends of mine, not to me) and sure enough, four days after I left him (for continuing to binge on alcohol) he took his own life. I was devastated.

I am on a disability pension which means my finances are very limited.

I am blessed with a few friends and family members who care about me.

My health has kept me mostly homebound for 16 years. Consequently making new friends and getting around the community is difficult.

I guess I feel the need to let everyone know about my obstacles. I do worry about overloading others with this information.
 
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